Stufftie

Hey Sweetie31!
I recently returned from a rheumy for fibromyalgia testing, which I utterly failed! Even though my thyroid numbers are within range, I believe that I am being under treated. The rheumy prescribed a different medication for hypothyroidism, something I could NEVER get my primary to do. I will slowly increase it as time goes on and find a new primary that is thyroid savvy.

Unless I missed it I didn't see any thyroid medication listed? If your thyroid is removed this is EXTREMELY important.

I suffered from exhaustion, light headed days (my flu days as I referred to them) severe muscle cramps from legs, arms, to shoulders. Each month I would have 2 - 3 days of severe stabbing pains that would last 2 - 3 seconds, some bringing me to tears. Each month everything would worsen, add new symptoms, and I ended up with no pain free days. The "good" days it would feel like something pinching my muscle all over my body, with the tight muscle cramping. My bones would ache and throb, worse in the evening.

I have only been on the increased/different thyroid medication for two days but my legs and arms are 90% better already. But, could just be the cycle of my pain, it is always worse a week and a half before my monthly is due. Patiently waiting!

At the rheumy he went over all my symptoms. He had me change my pants to some awesome paper shorts Reflex test on arms, legs, feet. Felt all my joints. Pressed (not hard, but not soft) in tons of locations on arms, legs, neck, back, hips etc...I would either say painful, uncomfortable, or no pain.
I have already had a ton of blood work done, so there was nothing left for him to test for. If they don't have a electronic copy of your blood test bring a paper copy! I was surprised that my primary's office didn't send everything! Thank goodness I pack a folder with all my bloodwork, etc.

I am happy that I failed and am excited to find a primary that is thyroid savvy. I am angry that my primary completely dismissed my requests to up my thyroid meds! If undertreated thyroid was the problem I have spent a lot of time, worry, and money for nothing.
Trust your instincts! Good luck at your appointment!

Edit: Post your thyroid tests on the thyroid board. They are so helpful in figuring out where our "normal" ranges should be. It might be a surprise, it was for me!
TSH Before T4 replacement TSH was 5.1
After levothyroxine TSH 1.03 Free T4 .82

I would like the full thyroid panel.

But, with the help of the thyroid board I found that my Free T4 is only 8% and should be 50% - 70%! To bad that I haven't found a doctor that took everything into consideration. I would like to thank the specialist and primary for scaring me by testing for fibromyalgia, MS, nerve disorders, etc!! Each appointment and test was another 2 - 3 week wait & bill.
Chalk it up to learning, I suppose.