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Old 02-12-2013, 03:17 PM   #16
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Re: Chronic all over muscle pain, joint pain, fatigue and headaches

Hi all, well the dr called me today. Apparently I have a slightly elevated SED rate. It's 35, I guess normal range is 0-20. I should have asked, but I didn't, about the fact that I have been taking anti inflamitories for the past 7 yrs would affect the results at all. I mean, that is the point of the medication! I take 2 mobic a day and some days I use the Voltaren gel some as well. Lately I've been using the gel on my wrists. When he initially called, he said...well all your blood work came back fine. So I said really? He says, ....well all but one, the SED rate test, remember that's the test that will show any inflammation. Well it's minimally elevated at 35. So I asked, what is the normal range. He replies...well that's not really important, it's a very subjective test. So I say, ok...but I want to know what the normal range is. He tells me and says, as you can see it is hardly out of range. So he will refer me to a rheumy. But I didn't think about all the anti- inflamatories I take and if the test would be affected by them....or not? Any of you have only slightly elevated SED rates? Thanks

 
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Old 02-13-2013, 08:21 AM   #17
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Re: Chronic all over muscle pain, joint pain, fatigue and headaches

You have to get rid of this Dr! I wonder if he would have even told you about the sed rate if you hadn't questioned it. 35 is not "slightly elevated". It is clearly elevated, especially with being on regular antiinflammatories. Most normal people run sed rates of 2-5, even though the female range goes up to 20. I would definitely get a copy of your labs and see what he tested and if anything else was glossed over. This is your chance to find out what is wrong, now that there is something objective showing up that is clearly not normal. The rheum should be able to identify what it is.

 
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Old 02-13-2013, 08:54 AM   #18
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Re: Chronic all over muscle pain, joint pain, fatigue and headaches

Just read all that you have gone through with this idiot dr. Get a copy of all your labs, going back to day 1 and RUN as fast as you can. Nobody deserves to be treated like that. I wonder how many times your SED rate was showing to be high and you were never told.

I was on the typical dr hunt while looking to see what is wrong with me as many with FM do and came across a dr like that. saw this guy 2 times ,had a UTI so went back for a recheck mainly out of convenience. He basically told me what you were told, you are overweight and need to get off your butt blabla bla. He never saw me again.

 
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Old 02-13-2013, 01:03 PM   #19
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Re: Chronic all over muscle pain, joint pain, fatigue and headaches

Ladybud...I was wondering what most people's typical SED rate is even though the range is 0-20...thanks. Yes I was wondering the same thing- if he wouldn't have told me if I hadn't pressed and then to make it like it was really nothing at all ( which compared to what some people may have, I'm sure it's minimal). He almost didn't want to seem to send me to a rheumy either...sort of brought it up like - well I could send you to a rheumatologist, of that's something you think you want to do. I said - of course I'd like to go, I'd like to have someone figure out what's going on with me.

WoodsWalker- you couldn't be more right. I am going to get all of my info from him and RUN away as fast as possible! My husband was away for 2 days while all this was going on and I wasn't able to speak to him the day I went to the dr and he was SOOO rude. So the next morning I filled him in, he of course agreed the guy is an *** - he goes to him too. Or I should say ...went, because neither one of us will go back. My husband joked by saying " oh great, this is the guy we've trusted our health to?! Well, I've got to get all my stuff too from him to bring to another dr (and then totally joking says..) who knows, with this guy I could be dying and not even know it. My husbands point...something could be seriously wrong with someone and he might not even know!

I feel like the fool for even hanging around this long with this dr. I've never had a real good feeling about him and he always seemed to minimize whatever I was there for. Mind you I wouldn't even go unless it was really something. Funny I had an experience with him regarding a possible uti too. I went to him, can't remember exactly what for, but I gave a urine sample. He comes in to tell me I have a uti. I've never had one in my life and have always heard from people they are painful. Well, that's not even remotely why I was there, so I was very surprised. I had said to him..but I don't have any pain of any kind in that area and actually going to the bathroom is fine. He insists and gives me antibiotics. So I take them and come back after they are finished to be retested...he says I still test positive for it, yet I've never had any pain or any signs. He puts me on a stronger course of antibiotics..I go back and the same thing. Now he is questioning me if I know how to give a proper sample and all (embarrassing!) . So this has been 3 was now and is going to put me on a third antibiotic. I'm insisting its not necessary so he tells me to start the meds and he will send me to a urologist. Now I have been on antibiotics for about a month and you can imagine what I got because of that. I then went to the new dr, totally not expecting that I would have to be cathed, only to have him tell me NO UTI and probably never was. Niiiice. So, that is only one story of many, I'm such an idiot for not leaving sooner. I feel like I sort of brought this on myself for knowing he wasn't the right dr for me ( or anyone really) but not being proactive enough to find another dr. No worries now....I won't be hesitating finding another one.

Thanks for the support and encouragement, it really does mean a great deal.after my last visit with him I really was so mortified and upset. My kids are 11 & 9 and they even asked if everything was all right. I responded with...not really. The dr I saw was very rude to me and it upset me. The kids asked why, what happened. ( they know, and see, how I am always feeling and know I've been trying to get some answers) So I basically tell them the conversation, not to draw them into my problems, but to reiterate to them that they always deserve to be treated with respect and to always treat others with it too, how a callous comment can really affect someone so to always think before saying so etching that could possibly upset someone. They were so funny because they were so ready to defend me and wanted to know if I had to go back again if they could come with me so they could tell the dr how much I hurt and that I try really hard even though its hard for me. I told them I appreciated it, but I would only be going back to get copies of my records. They said they were proud of me for not going back to him ( which of course made me very misty at the little role reversal that had just gone on!

I'll keep y'all posted...thanks again.

 
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Old 02-13-2013, 03:09 PM   #20
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Re: Chronic all over muscle pain, joint pain, fatigue and headaches

Most people run a sed rate less than 5. So a 35 is well above average and well above the upper limit of 20. He was minimizing to save face, since he tried so hard to tell you there was nothing wrong with you and now has to back-peddle. Don't be hard on yourself though. We put a certain level of trust and faith in our Drs that they are looking out for us and have our best interest in mind, but some fall very short of that ideal.

 
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Old 02-13-2013, 07:16 PM   #21
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Re: Chronic all over muscle pain, joint pain, fatigue and headaches

Ladybug...less than 5 typically Hun? Yeah so I guess there is a bit of a difference. I'm sure your right about his back peddling since something has shown up. I can guarantee that from now on, I be making sure whatever dr I choose, will actually have my best interests in mind. Again, thanks for the info and the support!

 
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Old 02-15-2013, 07:08 PM   #22
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Re: Chronic all over muscle pain, joint pain, fatigue and headaches

So I guess he ran a metabolic panel - everything in the normal range. My CBC showed my MCHC low, just barely, but at 30.6 when the range is 31.0-36.0 . The Hemoglobin AIC is just barely low at 5.3, the range is 5.4-6.5 , as we know my SED rate is high at 35 , range 0-20. The only other test was thyroid stimulating hormone (TSH), which is inormal 1.79 , range .35- 5.50.

The dr told me about the SED rate, but nothing else...I guess it's not low enough for him to pay any attention to it. I briefly looked up the MCHC which I guess has to due with your red cell count...possible anemia?

I go to the rheumatologist on March 11 th...soonest appt. so that's where I stand. Any ideas what other tests the rheumy will run? Thanks

 
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Old 02-16-2013, 04:22 AM   #23
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Re: Chronic all over muscle pain, joint pain, fatigue and headaches

I hope the rheumatologist can give you some answers... your GP sounds like the orthopedic doc I saw who said I was fine - and then handed me a copy of my MRI report to give to the neurologist and I was shocked to see the length of the write up.
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Old 02-16-2013, 09:22 AM   #24
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Re: Chronic all over muscle pain, joint pain, fatigue and headaches

Rheum should check you for lupus (ANA) rheumatoid arthritis (RA) thyroid disease for starters. He will likely repeat sed rate do urine check comPlement CRP and a bunch of specific antibodies. Some good clues should emerge from all that.

 
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Old 02-16-2013, 04:18 PM   #25
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Re: Chronic all over muscle pain, joint pain, fatigue and headaches

I had gone to my primary care doctor for migraines (and even though I had medical records dating years w/migraines and meds for it) he wanted me to come in every time I had a headache because he needed to see it for himself. I went to him for leg pain and he told me it was bursitis, rest and take ibuprofen. I could tell more stories with regards to him but what ultimately happened was I had to go to the walk-in clinic that he also was tied in to, because of extreme back pain. The nurse there told me to go to a pain specialist, one that she also worked at. At my next appt I TOLD him that I wanted a referral to go there. He huffed and puffed but by the end of the appt he gave me one. That was the best thing I could've ever done! I was recently diagnosed with FM and although I'm still in pain, I at least have a doctor who believes me. I am being treated for it with meds, infusions, etc. Exercising is my next step. Because its winter here and its C ~ O ~ L ~ D I haven't been walking but soon it will warm up! Good luck to you!

 
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Old 02-16-2013, 06:59 PM   #26
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Re: Chronic all over muscle pain, joint pain, fatigue and headaches

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Good luck!
I am setting an appointment with a primary that specializes in internal medicine. Maybe I will have better luck with her.
I know my ex-primary kept blowing off my hypothyroidism. I recently found out that she has kept me on a dosage that is a starter point for someone over the age of 50 with heart issues.
35 years old and no heart issues - I also read that birth control pills bind with my hypothyroid medication (T4) and she recently prescribed that without increasing dosage. Also, a blood test to check the levels should be done every 2 - 4 months when first diagnosed. She checked once a year. My Free T4 was only 8% when it should be around 50 - 80-% No wonder I kept getting worse!

It has been a painfully rough and medically stressful three years, but I was very relieved that I failed the fibromyalgia tender point exam. I did get the Rheumy to let me try a new thyroid medication and am taking the old and the new. I still need to give it time, but am hopeful! I am hoping the internist will help me with this.

I am seriously going to be angry if it was my thyroid all along! I kept bringing that up to the primary and her response was, "Levels are fine"

Throbbing headaches, migraines, joint pain, exhaustion, light headed days, muscle cramps, stabbing pains, etc..
Tests: Electromyography(EMG), Nerve Conduction Study(NCS), MRI, Lots of Blood Tests, CT scan, laparoscopy surgery
Doctors: ENT, Neurologist, Oral Surgeon, Allergist, Gynocologist/surgeon, Rheumatologist, Eye Doctor

All for a search for an answer - things just kept getting worse.

I think someone owes me a refund for not just trying a higher T4 in the beginning.. lol
I am not implying that yours is all thyroid - I would have no idea. I guess what I am saying is that I wouldn't of found all this out without having a copy of all my bloodwork and some wonderful women on the thyroid disorder board!
I was initially here - and everyone was so helpful - so I am still lingering. How can so many doctors be so wrong?

I wish you the best!
Your post reads like I wrote this. I started having problems at 39, not counting the migraines at 37, and now I'm told it's Fibro. I found a functional medicine doc who takes my insurance, he's trying me on Diflucan and checking me for coinfections (bloodwork at Qwest labs, nothing expensive), and I'm hopeful he can get me back up and running. I have been sick since 2010. I just stopped taking pain meds last month, I was tired of them, so now it's me dealing with all this. It's hard to have a good quality of life when you're in pain. That heel pain you have, I have it too, if I'm on my feet too much (like at a theme park) I am barely able to walk, for those days I need pain meds I'm afraid. I wake up feeling some I've been in a wrestling match, or other things just hit me and it's confusing. I know this is hard, takes the wind out of your sails. I see a very mild imporvement with the start of my Diflucan, mainly in the muscle aches (my stomach is the worst but tonight it's not so bad). Check out a new doc and see if he or she can run some tests on your, I am learning that those of us with fibro can have another bugs at the same time, mainly because our immune system is down.

 
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Old 02-16-2013, 09:13 PM   #27
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Re: Chronic all over muscle pain, joint pain, fatigue and headaches

I really appreciate all the posrs from all of you. Each of you have lifted my spirits some with the fact that my dr apparently isnt the only idiot out there and there are good ones too, that actually listen and help. Too bad you have to go through the bad ones to find the good ones! Its nice to hear so many of you are finding out what's going on with yourselves and getting some relief. Thanks and I'll keep you posted!

 
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Old 02-17-2013, 05:27 AM   #28
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Re: Chronic all over muscle pain, joint pain, fatigue and headaches

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I really appreciate all the posrs from all of you. Each of you have lifted my spirits some with the fact that my dr apparently isnt the only idiot out there and there are good ones too, that actually listen and help. Too bad you have to go through the bad ones to find the good ones! Its nice to hear so many of you are finding out what's going on with yourselves and getting some relief. Thanks and I'll keep you posted!
I spent 2500 each year for my deductible since 2010, probably going to do hit it again this year too. I finally found a doctor who's an MD but he focuses on functional medicine. I'll post any positive results I get from this experience. He's the doc who told me I had Fibro, the Rheum blew me off, totally blew me off, and others said I had anxiety, which of course I do because I am ill all the time and I'm upset about it. Makes sense to me. I don't know if the new treatment plan will help me out, and I'm still going to see my neurologist and gastro, but it can't hurt at this point. I have a blood test scheduled to test for any coinfections. Pain, illness and stress can bring down our defenses, plus a lot of antibiotic use (or even a little), and we can get smacked with all sorts of stuff that just won't go away. It can't hurt to find a doc like this and consult with him. If you're like me, you've seen everyone in town anyway, what's one more. I know it gets embarassing. I don't even tell anyone when I'm seeing a doc now, and when friends ask how I am, I just say I'm great. I hope to be one day.

 
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Old 02-28-2013, 11:56 AM   #29
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Re: Chronic all over muscle pain, joint pain, fatigue and headaches

Oh I totally do the "smile and say...oh I good, how are you!" to people. They ask out of politeness but not real concern. I know that Many members of my family literally just think I'm lazy. Now I'm not referring to my husband, children, or mother....but I have 3 sisters and a father that have distinct opinions. Of my 3 sisters, only 1 will actually ask me how I'm doing am mean it. She is the only one that shows any sympathy or concern for my physical well being. I think she understands more because she struggles with drugs and alcohol. I was always trying to wake my parents up to what was going on...obviously we were younger than, around college age. She resented me for a VERY long time after she was basically made to go to rehab...but it was the only way at the time to assure we'd have more time with her- she partied REALLY hard...a lot! She had actually been put on a ventilator in the hospital on 2 seperate occassions, among MANY other things. Ok...back to the topic...she is literally the only one that will ask me how I'm doing, and actually mean it. My back issues are major and have been going on for a really long time. These other issues seem to have been creeping up on me over the past 5+ yrs. Thank goodness for the family that do actually support me, they have made things much more tolerable. I even met a stranger a few weeks ago who only lasr week did we realize we both suffer from back problems and she's been diagnosed with FM almost 10 yrs ago. We spome at lenth and exchanged numbers ( she's a parent of another child that one of my childen participate in the same sport). She actually texted me after my rhuemy appointment to see how things went.

Soo...to the appointment. She obviously had actually read over everything on the forms I had filled out...and they were very in depth, specific, and lengthy forms!). So, according to her, my best case scenario is that, yes, I do have Fibro. However, that is only being said without blood work being back yet. Yes she retested the SED rate and was hoping that it would come back lower, she said it it came back the same or higher...she'd have to look further into an autoimmune issue. She will be running other tests as well, took 4 viles of blood, but can't recall exactly what she said...she did say she would run a number of tests and see where we stand. Apparently I had at least 12 of the tender points for FM. Blood work should hopefully be back on Fri. Glad I brought a copy of my blood work with me because my idiot of a regular dr apparently never sent it to her...how hard is that? She also told me my regular dr. said he prescribed pt for me for my neck issues (car accident 2yrs ago), however he never called me to say if the xrays taken last week were clean or not nor did he call to tell me I should go to pt.(we know my feelings on him now!).


So basically that's were I now stand..hopefully I'll hear from her tomorrow...if nothing else come up in the blood work, I guess FM it is. Of course she mentioned trying to do some type of exercise would benifit me tremendously - and in there lies the catch 22 for me. My back issues are so bad and extremely limit what I can do. Even a simple little walk in our neighborhood isn't really possible because of the slightest hills. Now, in the summer when we go to the beach, I ALWAYS feel better and it allows me to go for short walks (the sand is hard so it's easir to walk on it as opposed to soft deep sand. People are always riding bicyles and walking along. It's the warmer weather in the summer that is easier for me, the cold, damp weather kills me (as I'm sure you ALL can sympathize with.)

So know I just wait another day and hope to hear something. It was very nice to go to a dr that actually listened to me and examined me! She asked tons of questions and it was nice to have a dr that seemed to understand what I was saying, even if I wasnt saying it exactly as I should...when I was stumbling to find the words about how stiff, tight, sore, my joints and muscles were...especially when trying to get up out of bed. My total lack of energy...she loomed at me and said, " many people say they feel they feel like they fought a fight in their sleep, and lost.." ..exactly I said! So, I'll keep you posted! Thanks

 
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Old 02-28-2013, 11:27 PM   #30
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Re: Chronic all over muscle pain, joint pain, fatigue and headaches

I hope they'll find a cure for this rediculous thing called chronic pain.

Last edited by nochange; 03-02-2013 at 09:31 PM.

 
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