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Old 02-13-2013, 12:35 PM   #1
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Unhappy Undiagnosed, help?

Over the past few months, in the back of my head I've thought that the symptoms of FM sounded very familar to me. In the last month, it has really hit me that the symptoms completely fit me and it just makes so much sense.
Yesterday, I went to the doctor about my vertigo since it's gotten much worse in the past two weeks and brought up the fact that I have some symptoms of FM. (My vertigo and back/neck pain were triggered after two car accidents but that has nothing to do with most of my other symptoms). He was really busy and we didn't get a chance to discuss all of my symptoms I just mentioned my chronic back/neck pain and sleep problems, and he just said that he didn't think that I fit the criteria for vertigo. I have a long history of health problems and I often bring up my many unexplainable aches and pains and he usually doesn't do much about them or does some testing and finds nothing. I'm at a loss as to what to do and he said we would talk more about my back/neck problems. I'm going to see the vertigo(ENT) specialist again soon and I'm wondering if I should bring up FM to him? They haven't been able to really pinpoint the type of vertigo I have either. Any help as to what I should do to figure this all out or get some testing done would be great.

My symptoms are:

Chronic long-term vertigo (diagnosed)
Constant muscle stiffness
Chronic back, neck, knee, jaw and abdominal pain
Many differents knots in my body and muscle spasms
Frequent headaches
Little or no relief from pain medication
Probable sleep disorder(VERY light sleeper, waking up multiple times every night, sleeping 10 hours a night, waking unrefreshed and feeling worse)
Chronic fatigue that affects my life
Numbness
Anxiety, panic attacks, and depression
Sensitivy to light, smells, temperature and noises
Problems with my sinuses(constant pain and post-nasal drip)
Frequent urination even at night(I usually get up two to three times a night to go to the bathroom even if I don't drink fluids two hours before bed)
Trouble concentrating, speaking, remembering things, "brain fog"
Ovarian cysts and frequent abdominal pain

Family history of health problems:
My mother's thyroid stopped working when she was a teen and she's been on medication for it ever since.
Both my mother and older sister have a ton of allergies.
My younger sister has IBS.

 
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Old 02-15-2013, 08:10 AM   #2
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Re: Undiagnosed, help?

A rheumatologist may be the Dr you need to see if you aren't getting anyplace with your GP. Not getting ansers is so frustrating and it took me almost 10 years to get a diagnosis and the right set of drs.

 
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Old 02-15-2013, 08:17 AM   #3
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Re: Undiagnosed, help?

I agree that a rheumatologist would be your best bet to rule out autoimmune disorders which could explain many of your symptoms. Also with a family history of thyroid disease, be sure to get checked for both hypothyroidism and Hashimoto's autoimmune disease (both hormone levels and antibodies to thyroid tissue must be checked on blood test).

 
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Old 02-15-2013, 04:21 PM   #4
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Re: Undiagnosed, help?

I feel like my doctor doesn't listen to me anymore either because I've brought up so many problems to him to then get tested and have it be "nothing."
I'm going to see him again and hopefully this time he will listen and at least get me tested for things.

 
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Old 02-15-2013, 06:04 PM   #5
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Re: Undiagnosed, help?

It is important to find out exactly what the Dr is testing for. There are 1000's of different blood tests, all for different things, so having "blood tests" without knowing what those tests are looking for is meaningless. If nothing shows up on a test, it may be that the test wasn't looking for the right thing. Some Drs do a blood count and chemistry only, and then tell patients nothing is wrong. Well, what if the problem is thyroid but no thyroid tests were run? It isn't going to show up on a CBC and chemistry.So ask what specific tests are being run each time.

 
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Old 02-15-2013, 07:46 PM   #6
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Re: Undiagnosed, help?

I'm just worried about asking for testing done because I'm not sure how he will react. I don't know how to bring it up lightly.

 
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Old 02-16-2013, 08:52 AM   #7
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Re: Undiagnosed, help?

Just be direct and tell your dr what you want and follow it up with reasons why. Not only will this get you the testing you want it could start some useful dialog between you while searching for answers.

 
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chronic pain, fibromyalgia, undiagnosed, vertigo



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