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Achy legs and hips fibromyalgia


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Old 09-18-2013, 09:21 PM   #1
Deedi
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Achy legs and hips fibromyalgia

I haven't seen much posted about sore hips and legs, especially in the soft tissue behind the knees. The backs of my thighs hurt as well. I've also read some about upset stomach. I'm having a bad flare up now and my stomach is gurgling constantly and I get waves of nausea. Anyone else experience this with their Fibromyalgia?

 
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Old 09-19-2013, 07:01 AM   #2
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Re: Achy legs and hips fibromyalgia

Hi Deedi, you aren't alone with your pains. I don't get it behind my knees but others do. I get it in the shins and calves. The stomach issue goes along with flu like symptoms i think, and yes I get it. used to think it was the cymbalta causing it but the nausea has continued even after it's been stopped for months.

 
Old 09-19-2013, 05:42 PM   #3
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Re: Achy legs and hips fibromyalgia

Hi Deedi, thankfully I do not get the nausea but I can totally relate to the hip pain and achy legs. I have always thought the achy legs was restless leg syndrome bit I am not certain.

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Old 09-24-2013, 03:54 PM   #4
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Re: Achy legs and hips fibromyalgia

Yes, I have both. My rheumy says almost all his fibro patients have some type of stomach distress. When I am hurting, it is almost always my hips & legs. Again, my rheumy says because the fascia is what is affected the most in fibro, the most painful places will be the large muscle groups, eg hips, thighs, etc.

 
Old 09-24-2013, 08:11 PM   #5
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Re: Achy legs and hips fibromyalgia

Deedi,
Yes, I have been experiencing waves of nausea and my Pain Management Doctor gave me some Phenegran to take for it. Also, My hips and legs do hurt as well as my lower pack but, now, my arms, neck, shoulders, upper back and chest have been consistently hurting me. So, as of this afternoon, I got a call from Pain Management telling me to come in the morning for a series of Lidoderm/Cortisone shots in my trigger points of my upper body. Then, I have had several family members as well as a very close friend tell me that these shots work but, the shots are VERY painful. Can anyone tell me their opinion of these shots as I am suppose to get them in the early morning?
Thank so much!! As usual, I gain so much insight from reading the posts on this site and appreciate the constant support and encouragement from everyone. Have a great night-

 
Old 09-25-2013, 12:42 PM   #6
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Re: Achy legs and hips fibromyalgia

Benadam,

I have had these shots in my shoulders and hips and found then very effective while they lasted. I would not consider them very painful, more stinging than pain and over very quickly. Well worth it.

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Old 09-29-2013, 09:35 PM   #7
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Re: Achy legs and hips fibromyalgia

Hi, I have not been able to get a diagnosis for the constant pain but by my reading it sounds like fibro.. I am on all the meds that are prescribed and I have good and bad days. To your question my hip, legs, knees and feet all hurt. Yea the soft tissue behind the knee hurts and all seem to be effected by walking when they are flaring. Since my restless legs are under better control the legs seem some better.

 
Old 09-29-2013, 09:59 PM   #8
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Re: Achy legs and hips fibromyalgia

Deedi, My hips hurt all the time. It really doesn't matter what I do, however, I think I feel it the most at night. I can't rest my hands on my hips at all because it hurts just to touch them. Sometimes I want to ask someone to touch/press them so I can figure out if its real or all in my head! Its a very sad thing to not even be sure of ones own pain. Seriously, it can make me cry sometimes. Um, I haven't noticed pain behind my knees, but my lower back, legs, left knee, right ankle (lol! WOW!) always hurt too. Recently, maybe 3-4 months now, the backs of my heels have been painful. When I lay down on my back, which is the only way I seem to be able to sleep, they are tender. What is crazy, and this is the first time I mention this to anyone, is that the back of my left knee itches! Deep inside the muscle! Its been like this for YEARS! It can drive me insane at times because I can't scratch it in the normal way. I have to like, move that muscle to "scratch" it. I've also had for years and years, a spot on my upper back, closer to my left shoulder blade, that itches. To the point that I used to carry a paint stick (I worked at a large hardware store) around with me to scratch it with!! Now I just look for the nearest "scratching post"! No bug bites, no red marks, no signs of anything at all, just a constant itch. What the heck is up with that???
Lets get back to YOU, shall we?! As far as the upset stomach goes, that comes and goes for me. I find that when the pain is bad, I start to feel sick. Its so hard, really, to have this illness. People ask me to describe to them what it feels like. What do you say? It aches, burns, throbs, feels like pins & needles, oh! and sometimes like I have an elephant leg! Maybe right at the time they're asking my elbow is burning and it hurts to just lift a coffee cup to my mouth. Or all the little bones in my hands and/or feet hurt right thru to the other side. :'( We all feel the same and different at the same time. YUCK. Good luck to you Ps. Forgive me if I wasn't very helpful or uplifting..I think my mood has taken a nose dive lately!! Take care!

 
Old 09-30-2013, 01:33 AM   #9
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Wink Re: Achy legs and hips fibromyalgia

I agree it is difficult to spend time wondering if the pain is real or if it is just all in your head. Since I have been unable to get a diagnosis, although I am on all the meds, I wonder if the doctors are just placating me. On top of this, being male seems to add a layer of " really fibromyalgia ", that makes me me be extra careful when some inquires as to my health, I am tired of the looks. Hang in there I believe the pain is real and you deserve some relief.

 
Old 09-30-2013, 06:52 AM   #10
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Re: Achy legs and hips fibromyalgia

I want a shot, lol, no seriously though, y haven't I've been offered that kind of help from my primary Dr. or Rhuemy? Hip pain along with wrist hands knees n neck, does not allow me to sleep past the wee hours of the morning Because of my hips being so painful, I cannot sleep in any position but my back. U all no laying in 1 position for to long is just not gonna work! I miss having the option to change positions while I sleep

 
Old 10-12-2013, 07:19 AM   #11
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Re: Achy legs and hips fibromyalgia

Hips keep me from having a good nights sleep. Legs sometimes feel like I have 50 lb weights on them, but achey knees mostly. Do NOT feel alone because u r NOT alone here!

 
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Old 10-12-2013, 10:03 AM   #12
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Re: Achy legs and hips fibromyalgia

Just wondering if any of you have trouble going to sleep, sometimes it is 2 or 3in the morning before I fall asleep, and then I wake up at 7 or 7:30 and even if I want to sleep more I don't seem able. At other times I go to sleep fine but wake up at 3 or 4 in to much pain to sleep. Exhaustion seems to be the order of the day.

Last edited by Woodsman83709; 10-12-2013 at 10:04 AM.

 
Old 10-14-2013, 09:50 PM   #13
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Re: Achy legs and hips fibromyalgia

Hi Woodsman83709,
I don't seem to have trouble falling to sleep once I lay down. Its getting to the actual laying down part I seem to struggle with. Its almost as though I get a "second wind" if you will. Sometimes I think I start to feel almost energetic at night. I say almost because I don't become FULL of energy and its not like I'm feeling great, but I guess I feel less nauseous and a little more "clear". Oh, I don't know what I'm trying to say!! hahaaa!! I do know that I cannot go to bed any earlier than 10:30 or any later than midnight. Either one of those mistakes causes a lot of pain and/or little rest. If I go to bed too early, I can't sleep past 2 or 3am. I constantly wake up with pain and nightmares. If I go to bed too late, then I may sleep later, but I tend to OVER sleep which is AWFUL too because I am in full blown pain and it takes that much longer for my meds to work. It SUCKS. So in short, I can fall asleep ok, its the rest of the night I may have trouble with!!! And as of now, I think I'm having a flare because the pain I'm having in my legs and hips is very intense. More than usual. ***deep, deep sigh*** Good night and good luck to you!

 
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Old 10-15-2013, 11:15 PM   #14
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Re: Achy legs and hips fibromyalgia

Just wondering does anyone know of another male who is experiencing threes symptoms or who has been diagnosed. I have found the information I have found and that has been shared very helpful but would very much like to hear from a male.

 
Old 10-17-2013, 12:57 PM   #15
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Re: Achy legs and hips fibromyalgia

Quote:
Originally Posted by Deedi View Post
I haven't seen much posted about sore hips and legs, especially in the soft tissue behind the knees. The backs of my thighs hurt as well. I've also read some about upset stomach. I'm having a bad flare up now and my stomach is gurgling constantly and I get waves of nausea. Anyone else experience this with their Fibromyalgia?
Deedi
i just joined the forum and thought that I was the only one suffering from fybro and nausea bouts until I read your post

 
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