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Old 08-09-2011, 04:07 AM   #1
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PTTD... Is There A Light At The End of the Tunnel?

Hello, Everyone! This is my first post and I'm hoping to see a light at the end of the tunnel.

I was diagnosed with PTTD back in late March and have been dealing with Post. Tib. Tendonitis in my left ankle since then. I have PTTD in both feet but thankfully the only problem is with my left ankle right now. I realize I am very lucky that it's not in both feet.

I have been in an Arizona Brace for about 4 weeks now and while the pain is definitly less than it was pre-brace, it has stayed the same for about 3 weeks now. When I first used the brace, I felt an immediate change in the first week and now it's the same. Although when I woke up this morning, I was in more pain than usual, which is frustrating.

I just want to know from others who've had this if there is a light at the end of the tunnel. As of right now, I'm just not seeing one and it's getting to me. I'm 34 and don't like the thought of not being able to walk/do much for the rest of my life.

I start physical therapy tomorrow and maybe he/she will have some answers for me but I'm looking for some from those who have been in my shoes.

Thank you.

 
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Old 08-09-2011, 06:50 AM   #2
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Re: PTTD...Is There A Light At The End of the Tunnel?

Your story sounds so familiar. My symptoms progressed and I was also given an arizona brace. It did help me get around and make it through a day at work for about two months. Then by last June, even wearing the brace, I was experiencing increasing pain. By the middle of June I would get sharp pains along the tendon and into the arch which would make it difficult to walk more than 20 steps or so when wearing the brace. I noticed that my foot had pancaked and when I stood, my ankle was caving in toward the floor. Luckily the increase in pain coincided with my summer break from work. I went for a total of three different opinions and ended up having flat foot reconstruction at HSS in NYC. The surgery was the end of July 2010 and I was out from work until the beginning of December. Recovery was long and frustrating but now I am doing so well. My husband and I are able to go on
1- 1 1/2 mile walks on even terrain with NO problem at all. My foot does not prevent me from walking and going about my day. It doesn't feel like my pre pttd foot but I am able to go about my day to day activities with no problem. I could definitely live with that result.

If you end up needing surgery it is SO important to choose your doctor wisely. Only consider using a doctor who has done numerous flat foot surgeries, not just a few a year. Overall success rate for this surgery is not real high but some doctors really specialize in this proceedure and their success rate is considerably higher than the average. There are at least three other people who post on this site who are thrilled with their new foot.

 
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Old 08-09-2011, 07:04 AM   #3
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Re: PTTD...Is There A Light At The End of the Tunnel?

Thank you, Roxy! Your reply helped me. My doctor did say that surgery was an option if all else failed. I'm hoping I don't have to have surgery but I'll get it if everything else fails.

One question, though. You said you had surgery in June and couldn't go back to work until December. Does your job require you to walk a lot and do labor? I ask because I cannot afford to be out of work that long. I have a desk job that doesn't require lots of walking (only to get up to use the bathroom, really). If I did end up getting that surgery, do you think I would be able to continue working after some brief time off?

Thank you

 
Old 08-09-2011, 07:24 AM   #4
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Re: PTTD...Is There A Light At The End of the Tunnel?

I am a school based Speech Language Specialist. I work with preschool disabled students as well as autistic students. I don't walk constantly but have to be very mobile. If I had a sedentary job, I would have returned to work sooner. You should expect to be out for at least a month. Each doctor has different protocols. I was in the hospital for three nights (no complications) I was NWB for 8 weeks and then in a boot for about 6 weeks. When I went to the boot, I slowly increased the amount of weight on the foot until I was FWB. It took about three weeks to put full weight on my foot. At about 14 weeks, I went to a sneaker with an aso brace. When I went to a sneaker, initially, I was only able to walk for short periods of time. It probably took a few weeks for me to be able to walk for any period of time wearing a sneaker with the brace. Now, I am able to walk without really thinking about my foot. I do wear supportive shoes with orthotics...more to protect my other foot which is not perfect. The goal is to prevent the other foot from going south on me. My doctor was definitely on the conservative side but considering the outcome, that is fine with me. The doctor I chose has a special interest in flat foot surgery and is well known in the field. He does three + flat foot surgeries a week, is widely published and actively involved in clinical studies. When I met with him for the inital consultation, I felt confident in his knowledge and ability. He told me about the four proceedures he would defintely do and about two others that he might do. He ended up doing 5 proceedures; ptt and spring ligament repairs, calcaneal and cotton osteotomy, tendon transfer and gastroc recession. I just followed his post op directions to the letter and am beyond thrilled with the results of the surgery. It took 1-1/2 hours to get into NYC to see the doctor but it was well worth the 2-3 hour round trip.

Last edited by roxygirl1; 08-09-2011 at 07:29 AM.

 
Old 08-10-2011, 02:19 AM   #5
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Re: PTTD...Is There A Light At The End of the Tunnel?

Msparkles: I also suffered from pttd. After all non-surgical methods failed, I had surgery last August. All I can say is that what a difference a year makes. I has out for 4 months post surgery. My job does require me to be on my feet all day. I know there have been some on this board that have desk jobs and have returned much earlier. The recovery is long and difficult but it really is worth it. The most important thing is to listen and follow all directions given by your doctor.

 
Old 08-10-2011, 04:08 AM   #6
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Re: PTTD...Is There A Light At The End of the Tunnel?

Thank you, to both of you! When I woke up this morning, it didn't hurt as much as yesterday morning so that made me feel good. And I'm glad I'll be starting Physical Therapy this morning. Fingers crossed that this will work!

Missy, what kind of surgery did you have? The same as Roxy (flat food reconstruction)? If not, what exactly did they do?

Thanks again!

 
Old 08-10-2011, 08:52 PM   #7
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Re: PTTD...Is There A Light At The End of the Tunnel?

I also had flat foot reconstruction surgery - ptt repair, calcaneal osteotomy, fdl tendon repair, achielles tendon lengthening, kidner procedure and removal of fractured bone and they had to shave another bone down. Unfortunately for me all of the non-surgical methods did not work. After my MRI and I guess during the non-surgical treatments, a bone fractured off. Not knowing there was a fractured bone, I worked on it and i was extremely painful. For the most part the pain I had after surgery was no where near as bad as the pain prior to surgery. But, hopefully you will be one of the fortunate ones and pt will work and you will avoid surgery.

 
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