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-   -   The Accessory Navicular strikes back. (http://www.healthboards.com/boards/foot-ankle-problems/921560-accessory-navicular-strikes-back.html)

Hachee 10-04-2012 10:57 AM

The Accessory Navicular strikes back.
 
Ugh.
I have been walking around in pain for nearly 20 years- since I was 10 years old and I rolled my ankle in gym class. I hobbled home, and my parents told me to walk it off. So I did. I danced through the pain, I cheered through the pain...it was much easier to tolerate as a younger person. I changed how I walked putting all of my weight onto the outside of my foot, because if I didn't, it felt (and still feels) like my arch will just snap and fall.
10 years ago, I went to a podiatrist, they took x-rays, told me I have an accessory navicular which is also cracked. His treatment: hand me a pair of orthotics and sent me on my way- left me feeling that my pain wasn't a big deal and that I should, just like my parents said "walk it off." Okay....
So now here I am 10 years later, still in pain, and even worse pain from walking differently. Not only have I quit doing all of the activities I love because of the pain, I still feel like that if I go to a doctor, they are going to tell me its not a big deal. I've read all the threads on here regarding accessory navicular surgery and treatment, and all the symptoms sound very familiar to what experience daily...
Am I crazy? I suppose I need someone to justify my pain as real. Because no one seems to believe me. This accessory navicular crap is really painful, and I suppose I just need to know that I'm not alone in this. And that I want to have it taken care of so I don't deal with it for the next 20 years whilst sitting around getting fat because it hurts to do much else!!!!!!!!!!!!!!

Thanks for listening to me rant, I am extremely frustrated and depressed about this. I'm seeing a new podiatrist on Monday and I hope he can help!!!!

twohands 10-04-2012 02:44 PM

Re: The Accessory Navicular strikes back.
 
Hachee,

A big cyber **hug** for you!

Welcome to the boards, and so sorry you're dealing with so much pain and frustration caused by your doctors.

The pain you're experiencing is very real, and I think every one of us on this board will agree with that. It's very unfortunate that those around us as well as medical professionals can be so dismissive of the real pain we are feeling and being so limited by.

Something I've learned along the road of dealing with a number of medical issues is that you often have to be assertive in getting the help you need. Also, not every doctor out there will be a good fit for you, so sometimes you need to try two or three on for size before you find the right one. Don't feel bad about visiting more than one with the same complaint as this will just help you find the right person to help you the best way possible.

I really hope the podiatrist you're seeing on Monday will be a good fit for you, and if not, I encourage you to keep searching - you've been in pain for far too long and it's time to get some relief.

LadyKanner 10-04-2012 06:13 PM

Re: The Accessory Navicular strikes back.
 
I totally agree with Twohands! I can't believe you've dealt with it for so long. I don't have the same issue with my ankle but I can see where it would be unbearable. I have read a lot about the accessory navicular and it seems as though there are a lot of options out there to treat it. I cringe at some of the stories I read.

Hang in there and I hope you get some good news!!!

Missyluke 10-05-2012 04:47 AM

Re: The Accessory Navicular strikes back.
 
i am so sorry you have been dealing with this for so long. I also have the accessory navicular bone. Have you seen an orthopedic surgeon - one who specializes in foot and ankle? If you have not, you really need to. If, ten years ago, the pod said it was cracked, there may be more damage done. Did he ever do an MRI? Most times you have the accessory your ptt is attached to this bone instead of the navicular bone. At this point, you have no idea it that tendon is ok or if, in fact, you have pttd. Please, see a foot and ankle specialist. They will know how to treat the problem. Sometimes if you wait to long, the options become limited.

Hachee 10-05-2012 10:12 AM

Re: The Accessory Navicular strikes back.
 
MissyLuke,
Did you end up having yours removed? What was your experience?

I am seeing podiatrist on monday, with hopes to start getting this taken care of. I feel like I'm being ridiculous though- I've dealt with it for 20 years- why bother to take care of it now? Why shouldn't I just continue to deal with it? From all of the threads I've read regarding it, it sounds like there is much relief to be had with surgery....! And I honestly want to be active again- that's enough to justify having it taken care of, right?
Thanks everyone for your help! You have no idea how much it means to me!

Missyluke 10-05-2012 02:01 PM

Re: The Accessory Navicular strikes back.
 
When I was first diagnosed with pttd I was put in a cast for 4 weeks. The MRI report did not indicate any problem the bone or any tendons but the the symptoms I had were consistent with pttd. After no relief, another doctor looked at the images and saw the tear in the ptt and also saw a fracture in the accessory navicular bone. I am happy that I had surgery. I needed to have reconstruction surgery on my foot. I really think you should see either a pod or ortho who is board certified in foot and ankle. I know you have gone a long time dealing with the pain, but more damage can done and it is a problem which can be fixed and you will feel so much better and will be able to be active. For me, the surgeries have not ended. I got hurt at work 11 mths post op and have needed two more surgeries and will need more in the next year. If not for getting injured at work, I would have been back to being active and running again.

Grumpstress 10-06-2012 11:53 AM

Re: The Accessory Navicular strikes back.
 
Go see a foot and ankle ortho doctor. If nothing else you can find out exactly what is going on with your ankle. I can't believe a doctor told you that you have a cracked bone and just sent you on your way. You've dealt with this for 20 years. No reason to deal with it anymore. Go see someone that you can trust and find out what is going on with your ankle/foot. Best of luck to you and let us know what they say.

Hachee 10-07-2012 02:43 PM

Re: The Accessory Navicular strikes back.
 
ok. 9:30 tomorrow morning. Hopefully it's not too bad, as I have too much to do coming up! Wish me luck, and thanks for all of your concerns and wisdom! I'll keep ya posted as to what the verdict is....

LadyKanner 10-07-2012 03:24 PM

Re: The Accessory Navicular strikes back.
 
Good luck!

Troly59 10-07-2012 11:24 PM

Re: The Accessory Navicular strikes back.
 
Hello Hachee, troly59 here, new to the messed up foot boards AND post-op 10/19/12.
FDL tendon transfer FULL Kidner procedure, due to Type 1 fractured accessory navicular, spring ligament repair and peroneal brevis tendon repair( lateral side).
First good luck with your appt. tomorrow. I first felt symptoms of plantar fasciitis 1 1/2 yrs ago. After 3 cortisone shots over 9 weeks it was feeling numb to the pain, we. Took a trip to MX. Fully enjoyed jumping, dancing walking,hiking. When I got back within a week my Rt foot was KILLING me. Then the morphing of pain began up my medial leg,sharp arch,and dull calf pain, foot and leg fatigue. From that point i have gone into a nose dive with pain,foot/ lower leg problems.POD. Insisted I needed PF release I said to him the pain I was then feeling was totally different than the PF.
LONG story short. 3 podiatrists and 3 orthopedic surgeons (foot spec). 3 MRI's 2emg 's, and every type of conservative tx. I just couldn't take the pain any longer. I no longer enjoyed anything that involved standing or walking for more than 20 minutes. I bearly could make it through 8 hrs of work. 100% on my feet.Up to that point I had been an active hiker, cycler long distance walker. Then BOOM, reduced to someone I couldn't stand.
My fractured AN was dismissed by all the DR's. 1 of them advised me NOT to have it out. 2 Podiatrists said it was Tarsal tunnel. The MRI's did not show much. The 2nd one was read as normal by a Radiologist that specialized in orthopedic issues. The pain continued the OS I felt most comfortable said, she would have to open it up to see what was going on.
So Knowing this pain wasn't going to stop, it has been 1 1/2 yrs, I said go ahead.
So in the recovery room I was told by the OS, it was the WORST scarred down lump of bone and tissue, in the posterior tibial tendon she had ever seen and that I should have done it SOONER???? Help me- what ??? I was lead to believe it couldn't be that bad.
So now with a 1 inch section missing from my PTT bridged/ patched with the FDL which is 1/3 the diameter of the PTT. I am frightened about my outcome.
So what I want to say is .....you know your pain, find a good DR OS with foot /ankle specialty. Read everything you can on accessory navicular surgery, there are 3 TYPES.
I was told at my age, 53 a modified Kidner would not produce a good outcome. In the end too large of a piece of PTT had to be removed anyway. The peroneal brevis also was questionable on the MRI but my later ankle was painful swollen and the dull ache went up the lateral side of my leg. It was torn and repaired. The spring ligament I read , would give a painful, fatigued sole. I also felt my heel shifted separately from my forefoot like my foot was loose. It was found to be overly stretched and torn,it was also repaired.
So, am now down for 6 weeks nwb. Waiting for the healing, and wondering if I'll be able to return to my job. I'm also feeling the same PTTD/AN pain in my Left foot. hoping the rest will cure it,
but............it may end up being a repeat of The Right.
It hasn't been too painful for me, but all the sitting ,lying around is getting to me.
Good Luck... Repost, interested in your story.

Troly59 10-07-2012 11:30 PM

Re: The Accessory Navicular strikes back.
 
Hello Hachee, troly59 here, new to the messed up foot boards AND post-op 10/19/12.
FDL tendon transfer FULL Kidner procedure, due to Type 1 fractured accessory navicular, spring ligament repair and peroneal brevis tendon repair( lateral side).
First good luck with your appt. tomorrow. I first felt symptoms of plantar fasciitis 1 1/2 yrs ago. After 3 cortisone shots over 9 weeks it was feeling numb to the pain, we. Took a trip to MX. Fully enjoyed jumping, dancing walking,hiking. When I got back within a week my Rt foot was KILLING me. Then the morphing of pain began up my medial leg,sharp arch,and dull calf pain, foot and leg fatigue. From that point i have gone into a nose dive with pain,foot/ lower leg problems.POD. Insisted I needed PF release I said to him the pain I was then feeling was totally different than the PF.
LONG story short. 3 podiatrists and 3 orthopedic surgeons (foot spec). 3 MRI's 2emg 's, and every type of conservative tx. I just couldn't take the pain any longer. I no longer enjoyed anything that involved standing or walking for more than 20 minutes. I bearly could make it through 8 hrs of work. 100% on my feet.Up to that point I had been an active hiker, cycler long distance walker. Then BOOM, reduced to someone I couldn't stand.
My fractured AN was dismissed by all the DR's. 1 of them advised me NOT to have it out. 2 Podiatrists said it was Tarsal tunnel. The MRI's did not show much. The 2nd one was read as normal by a Radiologist that specialized in orthopedic issues. The pain continued the OS I felt most comfortable said, she would have to open it up to see what was going on.
So Knowing this pain wasn't going to stop, it has been 1 1/2 yrs, I said go ahead.
So in the recovery room I was told by the OS, it was the WORST scarred down lump of bone and tissue, in the posterior tibial tendon she had ever seen and that I should have done it SOONER???? Help me- what ??? I was lead to believe it couldn't be that bad.
So now with a 1 inch section missing from my PTT bridged/ patched with the FDL which is 1/3 the diameter of the PTT. I am frightened about my outcome.
So what I want to say is .....you know your pain, find a good DR OS with foot /ankle specialty. Read everything you can on accessory navicular surgery, there are 3 TYPES.
I was told at my age, 53 a modified Kidner would not produce a good outcome. In the end too large of a piece of PTT had to be removed anyway. The peroneal brevis also was questionable on the MRI but my later ankle was painful swollen and the dull ache went up the lateral side of my leg. It was torn and repaired. The spring ligament I read , would give a painful, fatigued sole. I also felt my heel shifted separately from my forefoot like my foot was loose. It was found to be overly stretched and torn,it was also repaired.
So, am now down for 6 weeks nwb. Waiting for the healing, and wondering if I'll be able to return to my job. I'm also feeling the same PTTD/AN pain in my Left foot. hoping the rest will cure it,
but............it may end up being a repeat of The Right.
It hasn't been too painful for me, but all the sitting ,lying around is getting to me.
Good Luck... Repost, interested in your story.

Hachee 10-08-2012 10:21 AM

Re: The Accessory Navicular strikes back.
 
Welly, welly, welly, well.... the verdict is in.
By the looks of it, my once "cracked" accessory navicular has become 2 accessory naviculars.... hmmm. Interesting. Dr. did recommend surgery to remove them... and he seems to think its the best bet and wouldn't be that crazy because my arch hasn't fallen completely, and my heel is still in good shape. So I guess I'm getting off easy? Now the debate begins... should I do the surgery or should I commit myself to a life of orthotics and hope for the best again? HA!!!!! yeah, I'll probably be scheduling surgery soon.... any thoughts?
Thanks again for all of you's advice. You's rock :)

Hachee 10-08-2012 10:22 AM

Re: The Accessory Navicular strikes back.
 
Le sigh.. what to do. let the research begin.

Hachee 10-10-2012 08:00 AM

Re: The Accessory Navicular strikes back.
 
researching orthopedic surgeons is kind of mind numbing...

LadyKanner 10-10-2012 08:51 AM

Re: The Accessory Navicular strikes back.
 
I highly suggest if you have any university hospitals in your area to look for orthopedic surgeons there. University hospitals are learning hospitals and up on all the newest techniques and typically have excellent doctors. What area are you from?


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