It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Foot & Ankle Problems Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 03-29-2013, 03:43 PM   #1
Newbie
(female)
 
Join Date: Feb 2013
Location: Northern Colorado
Posts: 2
Jwspoon12 HB User
Complex regional pain syndrome (CRPS) from surgery?

I had surgery to repair a lateral tear in my peroneal brevis tendon and had a ligament shortened at the same time. I can't recall the name of the ligament. Surgery was in late December 2012, I was recovering nicely till I slipped on the ice at work and slammed my surgical foot to the ground to catch my balance. Ugh! I have had pain, swelling and discoloration of my foot ever since. Had yet another MRI and it shows some bone loss that my dr says could be from NWB & PWB for so long. MRI also showed signs of Chronic Regional Pain Syndrome (CRPS) formally know as RDS. Has anyone else experienced this before? Could it be caused from surgery or is it most likely from the "fall"? How do you cope with the pain? Does it ever go away/get better?
Today I had a Triple Phase Bone Scan....I know nothing about what the images should look like, however there are obvious differences in my feet. What does this mean? Does this mean I have CRPS?

Last edited by Jwspoon12; 03-29-2013 at 04:48 PM. Reason: Spelling

 
Reply With Quote
Old 03-29-2013, 07:03 PM   #2
Senior Member
(female)
 
jewlz67's Avatar
 
Join Date: Jul 2012
Location: Griffith, In US
Posts: 280
jewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB User
Re: Complex regional pain syndrome (CRPS) from surgery?

Most likely, the CRPS is from the fall. Surgery can cause it but if you were recovering fine before the fall, then I would say its the fall. I had a Triple Phase Bone Scan as well. Like you, I'm not sure what it was supposed to look like but I saw differences in it as well. What it showed on mine was there were definite changes in blood flow. That is just another sign of CRPS, however, you can have a negative scan and still have CRPS. I have CRPS and I have the discoloration, swelling, PAIN, my leg feels like it's on fire and I get deep aching. I know what ligament you are talking about because that's what I tore! I have had this stinking disease now for ten months. If they treat you aggressively, you have a greater chance that yours will go into remission. Treating it quickly is key to this stupid disease!!!! Hopefully yours will go into remission and you wont have to worry about it!!! Do you have any sensitivity to touch...besides where your incision is.

 
Reply With Quote
Sponsors Lightbulb
   
Old 03-29-2013, 07:53 PM   #3
Newbie
(female)
 
Join Date: Feb 2013
Location: Northern Colorado
Posts: 2
Jwspoon12 HB User
Re: Complex regional pain syndrome (CRPS) from surgery?

[QUOTE=jewlz67;5154616]Most likely, the CRPS is from the fall. Surgery can cause it but if you were recovering fine before the fall, then I would say its the fall. I had a Triple Phase Bone Scan as well. Like you, I'm not sure what it was supposed to look like but I saw differences in it as well. What it showed on mine was there were definite changes in blood flow. That is just another sign of CRPS, however, you can have a negative scan and still have CRPS. I have CRPS and I have the discoloration, swelling, PAIN, my leg feels like it's on fire and I get deep aching. I know what ligament you are talking about because that's what I tore! I have had this stinking disease now for ten months. If they treat you aggressively, you have a greater chance that yours will go into remission. Treating it quickly is key to this stupid disease!!!! Hopefully yours will go into remission and you wont have to worry about it!!! Do you have any sensitivity to touch...besides where your incision is.[/QUOTE]

I am very new to this so I hope I get this right and can reply correctly...

Thank you for your response jewlz. How are you currently being treated? Medications, therapy, injections? My dr said depending on the results of the bone scan they may do an injection in my back!?!? Heck no!!
I do have sensitivity, but its more sensitive to temperature. Like if the shower water is a smidge to hot, wow that is really painful. My shin is also VERY sensitive when I shave my legs, feels like I am taking off ALL of the skin.

 
Reply With Quote
Old 03-30-2013, 07:53 AM   #4
Senior Member
(female)
 
jewlz67's Avatar
 
Join Date: Jul 2012
Location: Griffith, In US
Posts: 280
jewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB User
Re: Complex regional pain syndrome (CRPS) from surgery?

Well, I take Gabapentin 3 times a day, I take Robaxin for muscle spasms, and I take Percocet for pain. I have had a total amount of physical therapy for six months and now I do home exercises. That is going to be the best thing for you....you HAVE to keep moving because you don't want your joints to freeze up or lose range of motion...or worse, lose muscle! I have had a sympathetic nerve block...which is the injection in the back. That was my first reaction too! When I had the first one done, all I could think of was...why did I wait so long to do this! My burning was gone, the deep aching was gone, the only pain I had left was from the injury itself. It lasted for three months for me. It was the second and third one that didn't help me. One thing you have to remember....we all react differently!!!! Never take it as one person says it didn't work for them so its not going to work for you. I have heard people say the Gabapentin didn't work...it works great for me. What may work for one may not work for another. PLEASE...never judge what does or doesn't work for somebody to be truth for yourself. Its going to be trial and error now for you. Unfortunately, there is no definitive treatment plan...and that's what stinks with this disease!!!!

 
Reply With Quote
Old 04-05-2013, 12:22 AM   #5
Junior Member
(male)
 
Join Date: Mar 2013
Location: Colorado
Posts: 16
Slave2Gravity HB UserSlave2Gravity HB User
Re: Complex regional pain syndrome (CRPS) from surgery?

I was just diagnosed with CRPS from my calcaneal ORIF in late January. Thanks for the insight, Jewlz. I have been considering the sympathetic nerve block but am very hypodermic-lly challenged (I hate needles)! The fact that you had such noted improvement from your 1st block is reassuring. I start PT tomorrow and am very excited about it. Thanks again for sharing your experiences.
__________________
Calcaneus ORIF -- January 13

 
Reply With Quote
Old 04-05-2013, 05:24 PM   #6
Senior Member
(female)
 
jewlz67's Avatar
 
Join Date: Jul 2012
Location: Griffith, In US
Posts: 280
jewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB User
Re: Complex regional pain syndrome (CRPS) from surgery?

[QUOTE=Slave2Gravity;5157381]I was just diagnosed with CRPS from my calcaneal ORIF in late January. Thanks for the insight, Jewlz. I have been considering the sympathetic nerve block but am very hypodermic-lly challenged (I hate needles)! The fact that you had such noted improvement from your 1st block is reassuring. I start PT tomorrow and am very excited about it. Thanks again for sharing your experiences.[/QUOTE]

I think our sharing of experience here is what keeps some of us going! It does for me anyways. It reassures me that I am not TOTALLY crazy! lol. I hate needles too, that's why when I get the blocks, they knock me out!!! The only needle I ever see is the one they use to put the IV in!!! How did physical therapy go for you? I know it can hurt like heck but believe it or not, it does help!!! Again, we gotta keep moving!!! I have already lost some muscle and strength in the back of my left leg from not starting therapy soon enough! Even if it is just small things, do it! Start by moving your limbs to spell the alphabet. It's a small thing but its a start!

 
Reply With Quote
Old 04-05-2013, 05:33 PM   #7
Senior Member
(female)
 
jewlz67's Avatar
 
Join Date: Jul 2012
Location: Griffith, In US
Posts: 280
jewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB Userjewlz67 HB User
Re: Complex regional pain syndrome (CRPS) from surgery?

Jwspoon, did you get your test results back yet for your Triple Phase Bone Scan? Was just wondering how you were doing. Hope all is well with you!!!

 
Reply With Quote
Old 06-12-2013, 07:31 PM   #8
Junior Member
(female)
 
Join Date: Nov 2011
Location: Claremont, CA, USA
Posts: 39
califmom1 HB Usercalifmom1 HB Usercalifmom1 HB User
Re: Complex regional pain syndrome (CRPS) from surgey?

I got CRPS from my calcaneus ORIF surgery. I have had 8 nerve blocks. This is a wicked disease and it just gets worse with time. It started out with discoloration and discomfort but went to intense burning and pins and needles. I was in agony. If I had had any problems with needles, they would quickly have gone away with the desperation I was feeling.

I took Gabapentin and was already on Topamax for my migraines. They didn't work. The side effects of Gapapentin were horrible. Topamax is a wicked drug also. The nerve blocks have worked for me. They have a cumulative effect and my pain mgmt specialist thinks we are in pretty good shape. Good luck and God bless you in your journey to whip this monster.

 
Reply With Quote
Reply Reply

Tags
crps



Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is Off
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



roxygirl1 (187), Zerk (136), Titchou (122), Missyluke (121), Hollywood48 (117), ginger62 (98), LadyKanner (97), LisaBdot (83), AdkLizard46 (55), janewhite1 (52)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (855), janewhite1 (823), Titchou (769), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (654), BlueSkies14 (610)



All times are GMT -7. The time now is 04:05 PM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!