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Old 02-10-2013, 05:14 PM   #21
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Thumbs up Re: Overview of ankle OCD treatment options

Quote:
Originally Posted by LivesNearStore View Post
That is hard to say. Some return to serious running while others find that doing too much makes it hurt. Still others need a 2nd surgery later. Probably depends on how big your OCD lesion is, where it is, how well new cartilage fills in the defect, and what kinds of sports you do. In my case I returned to a fairly active life with swimming, surfing, and some skating, but avoid running or jumping simply because I don't know how durable the new cartilage is. Plus I was never a big fan of running.
hi, livesnearstore,
I am new to the thread and read your threads ...Iam alos debating microfracture vs OATS for ankle ocd 12x10mm,,what was your lesion size and are you satisfied with microfracture..please reply.
Thanks in advance.
ocdpt13

 
Old 02-10-2013, 07:46 PM   #22
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Re: Overview of ankle OCD treatment options

My lesion was about 6x9mm and maybe 8mm deep (affected the underlying bone). The surgery was 18 months ago and so far I am happy with the results.

In your case I think there are doctors who say try MF first and if it doesn't work do OATS (or DeNovo) while others would say just do the OATS (or similar graft) to reduce risk of needing two surgeries. I don't know which approach is better. For some doctors the decision might depend on the depth of your lesion.

Quote:
Originally Posted by ocdpt13 View Post
hi, livesnearstore,
I am new to the thread and read your threads ...Iam alos debating microfracture vs OATS for ankle ocd 12x10mm,,what was your lesion size and are you satisfied with microfracture..please reply.
Thanks in advance.
ocdpt13

 
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Old 02-11-2013, 04:22 AM   #23
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Thumbs up Re: Overview of ankle OCD treatment options

Quote:
Originally Posted by LivesNearStore View Post
My lesion was about 6x9mm and maybe 8mm deep (affected the underlying bone). The surgery was 18 months ago and so far I am happy with the results.

In your case I think there are doctors who say try MF first and if it doesn't work do OATS (or DeNovo) while others would say just do the OATS (or similar graft) to reduce risk of needing two surgeries. I don't know which approach is better. For some doctors the decision might depend on the depth of your lesion.
LivesNearStore,
Thanks its great to hear you are doing very well.I'll keep you posted..thanks again

 
Old 02-11-2013, 05:11 AM   #24
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Re: Overview of ankle OCD treatment options

Quote:
Originally Posted by LivesNearStore View Post
My lesion was about 6x9mm and maybe 8mm deep (affected the underlying bone). The surgery was 18 months ago and so far I am happy with the results.

In your case I think there are doctors who say try MF first and if it doesn't work do OATS (or DeNovo) while others would say just do the OATS (or similar graft) to reduce risk of needing two surgeries. I don't know which approach is better. For some doctors the decision might depend on the depth of your lesion.
Hi all, as you've seen from my posts, I had 3 failed MF's before DeNovo.. Of course I had a major lesion.. It started about 10mm round and 5mm deep, but after each MF, it grew to finally being 20X25mm (YES, about an inch around) and underlying bone issues.. I had DeNovo, and for the first time in 7 years, I am basically pain free.. (Other than normal aches and pains all over for a 43 year old) I play sports again.. Volleyball, Racquetball, skiing, all things I haven't been able to do in some time. I had DeNovo, my Dr. and I as well believe its a better approach, and a much newer technology than Oats. With DeNovo, there is no invasive procedure to the knee, and also, they can use as much cartilage as they deem necessary as opposed to what they can harvest from the knee without major consequences.. I personally find MF useless, and if you look at the 5 year out stats, you'll see the success rate is low compared to the others. I had 3 MF's before I had DeNovo because both my insurance wouldn't pay for it, and I didn't know any better. When I had DeNovo 14 months ago, it was still VERY new, and Mass General worked out a deal with my health insurance so I didn't pay out of pocket anything, and MA General didn't get fully paid for it. But, both they and I wanted to move forward a the time.. I was something like the 3rd person to get it at MA General, and 30th worldwide since FDA approval of the procedure for ankles. Its been around a bit longer for rotator cuffs and knees, but I can't say I could be any happier with the results. Its becoming more wide-spread, but Dec of 2011 when I had it, there were only a handful of hospitals and Dr's capable of performing it.

 
Old 02-13-2013, 04:45 PM   #25
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Re: Overview of ankle OCD treatment options

hockey injury four years ago (and wear and tear) caused my OCD. Im 38. My OCD was pretty big and on the edge of my talus. My first surgery was micro fracture. Did not work and made the OCD and resultant pain worse. In hindsight I wish I had not had the surgery. Found a great OS for surgery 2 which was Denovo NT. At the time, late 2010, he was relatively experienced using it in ankles meaning he had done it maybe a dozen times. He told me 70% chance it would work. Had the surgery and osteotomy because of the location of my OCD. Nine weeks non-weight bearing. Did not take long for the pain to return and worsen!! Operation 3 last week with same OS. The MRI and then CAT do not show the area well enough so this surgery was exploratory and to remove the hardware and a few big bone spurs that had developed. We shall see if this gives me some relief. Next surgery would be OATS. So, as far as Denovo NT is concerned, I believe it does work, it just didnt work in me because of the location of my OCD, on the edge. No support to hold the Denovo NT in place. Location, location, location. Very frustrated yet hopeful the 3rd surgery will relieve some pain!!

 
Old 02-13-2013, 07:10 PM   #26
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Thumbs up Re: Overview of ankle OCD treatment options

Quote:
Originally Posted by badpipe View Post
hockey injury four years ago (and wear and tear) caused my OCD. Im 38. My OCD was pretty big and on the edge of my talus. My first surgery was micro fracture. Did not work and made the OCD and resultant pain worse. In hindsight I wish I had not had the surgery. Found a great OS for surgery 2 which was Denovo NT. At the time, late 2010, he was relatively experienced using it in ankles meaning he had done it maybe a dozen times. He told me 70% chance it would work. Had the surgery and osteotomy because of the location of my OCD. Nine weeks non-weight bearing. Did not take long for the pain to return and worsen!! Operation 3 last week with same OS. The MRI and then CAT do not show the area well enough so this surgery was exploratory and to remove the hardware and a few big bone spurs that had developed. We shall see if this gives me some relief. Next surgery would be OATS. So, as far as Denovo NT is concerned, I believe it does work, it just didnt work in me because of the location of my OCD, on the edge. No support to hold the Denovo NT in place. Location, location, location. Very frustrated yet hopeful the 3rd surgery will relieve some pain!!
Sorry to hear about your OCD..and failure of Denovo...I also have OCD and in process of OS .just curious who was surgeon and where you had surgery,,,wish you all the best and hope your surgery has positive outcome. keep us posted,,
ocdpt13

 
Old 02-14-2013, 08:23 AM   #27
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Re: Overview of ankle OCD treatment options

the surgeon I use is Greg Guyton out of union memorial hospital in baltimore.

 
Old 02-17-2013, 08:29 PM   #28
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Re: Overview of ankle OCD treatment options

Hi everyone!!! First off, I'd like to say that by finding this forum/thread, I'm no longer feeling alone in this. I was first treated for what turned out to be Bilateral OCD of the Talus in 1991 at age 11. I had 2 scopes on my left ankle in high school, but my degeneration continued. The general consensus was that my OCD was caused by hyper mobility. I had the OATS procedure in March of 2004 at age 24. The graft took well, however, the Tibial osteotomy took almost 6 months to heal. I also had some knee issues due to the fact that the surgeon who did the plug harvest failed to note that I needed to be moving my knee after the surgery. I got so tired of "healing" that 6 moths after I was off crutches, I stopped going for follow ups. Overall, my procedure was a success. I was able to work on my feet, and even hiked half of the Appalachian Trail in 06-07. While on trail, I started having mild knee trouble, and occasional pain and catching in my post surgical ankle. (I'm a bilat, so issues with my right ankle are still expected)
In the years since my surgery, both me and my surgeon have left Philadelphia and moved out of state. It took me years of being sent from specialist to specialist before I found him, and I'm finding it hard to put my trust in another doc. OCD was hardly known when my treatment started so he was a Godsend!
Over the past year, it seems that I'm starting to have more "bad days". Last summer, I had indications that I may have had not only have degeneration again, but a "chip". I spent 2 weeks back on crutches. Over time, I got back to just good days and bad days. I'm also starting to experience catching and pain in both of my knees. I've decided that it is time to find an Ortho.Surg. in my area and start looking at radiology again. I'm in NO rush to jump on the OR table anytime soon, but I think it's time to start paying attention to things..
This is my first post on HB, and I haven't explored much, but I was wondering if there is anyone out there who"
1. is 5+ years out of an OATS with Tibial Osteotomy
2. bilateral with hyper mobility
3. diagnosed in multiple joints

Also, if there is anyone in the Triad, NC area with pros and cons on surgeons.

Sorry for the long post, but I'm still floored that after 20 years, I can finally connect with others who have dealt wit this!

 
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