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Old 07-23-2006, 07:52 AM   #1
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bostongal HB User
Question Gallbladder/Diarrhea issues - please help if you can

I posted this orginally on the Irritable Bowel forum but I think maybe it should be here?

I would like to hear from anyone who is dealing with this and how they are coping since this is ruining my life - I can't work, can't leave the house and since it's been 9 months and no change I do not believe that this will resolve itself in a year (it would be a miracle I believe). Here's my story:

Hi. Last September/October I had three surgeries. The first removed my gallbladder, the second removed adhesions around my small intestine and abdominal wall and the third was for a small bowel resection because of bowel obstruction. I was in the hospital the third time for 17 days including 2 days in the ICU for blood pressure/heart rate problems. Since that surgery I have consistent persistent diarrhea - average is 10-25 times a day but I have had as many as 32 times in one day. I had vomiting for about 6 months but that has passed. I have lost over 80 lbs because of this and now am unable to eat most days. I have had numerous tests including a colonoscopy, barium upper and lower GI studies, blood work. I don't have anything apparent (Crohn's, diverticulitis, etc) and the GI doctor believes that I have the diarrhea because of the bile from the liver being passed into the intestines. I have had IBS for about 20 years but always tended towards constipation, not diarrhea. I am having a problem also with keeping potassium - I have been hospitalized for IV fluids and potassium because of this problem. Medications we have tried Lomotil (2x), Immodium, Colestid, Cholestrymine powder, pamine forte and opium tincture. Also have tried every fiber combination out there (benefiber, metamucil, etc) and all of them cause intense pain and worsening of diarrhea. I am either allergic to or have no results (diarrhea continues regardless) from them except the opium which worked but caused hives. My GI doctor called on Monday to tell me that he is out of treatment options for me.

My questions are - why is this happening (is it common for bile to do this)? Will this correct itself or am I dealing with a life long problem? How can I make sure that I am not dehydrating and doing damage to my body when I cannot keep anything in my system (water and food passes very quickly)?

thanks.
Meg

 
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Old 07-25-2006, 01:57 PM   #2
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Re: Gallbladder/Diarrhea issues - please help if you can

Hi Bostongal,

I don't have much advice to offer, as from my limited knowledge you have done everything that i would have first said - ie: bile salt binders (colestipol, cholestyramine), anti-diarrheals, and bulk formers (fibre, metamucil).

Have you tried anything like buscopan or bentylol? These are antispasmodics that may help.

Apparently bile can and often does become an issue after a gallbladder removal, and unfortunately can be a life long issue, but that said, it can be managed!

In regards to dehydration, I think you may want to just up your water intake, and try some things like gatorade and even pedialyte... even though they pass quickly, some of it still gets absorbed, just up the intake from the "normal" requirements.

And I just wanted to say, it sounds like your Gastro has given up, but maybe you should seek another. Sometimes a fresh set of eyes can do wonders. Second, Third and even Tenth opinions are sometimes what is needed! Keep advocating for yourself... as they say the squeaky wheel gets the grease lol

I hope maybe by bumping this up for you, someone who is more knowledgable than myself will reply.

I hope you feel better soon.

Cheers.
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Last edited by Angela22F; 07-25-2006 at 02:03 PM.

 
Old 07-25-2006, 06:57 PM   #3
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Talking Re: Gallbladder/Diarrhea issues - please help if you can

Thanks Angela. I will try to increase my fluids (I am afraid to eat or drink anything as it just makes it worse).

My primary is involved again along with my GI doc and we are still trying to find something that will help. I hope we find it soon!

Thanks for writing and offering support. It helps.

Meg

 
Old 07-29-2006, 03:43 PM   #4
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Re: Gallbladder/Diarrhea issues - please help if you can

Hi:

Thought I would update that I found out I have microscopic colitis. I started on Entocort 2 days ago (so far no change in symptoms) and I am working on removing dairy and gluten from my diet.

I'd love to talk to anyone living with this.

thanks

Meg

 
Old 07-31-2006, 05:31 AM   #5
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Re: Gallbladder/Diarrhea issues - please help if you can

Hi Bostongal...

May I ask how you were diagnosed? Biopsy?
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Old 07-31-2006, 08:49 AM   #6
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Talking Re: Gallbladder/Diarrhea issues - please help if you can

Yes biopsy taken during colonoscopy. I had the colonoscopy because a GI study showed inflammation in my colon. When I had the colonoscopy done the colon looked normal but I had some polyps and the GI doctor took alot of biopsies.

Today is day 4 on the Entocort and no change in symptoms but increased pain in my lower belly.

Meg

 
Old 05-27-2008, 10:45 PM   #7
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gahgah604 HB User
Re: Gallbladder/Diarrhea issues - please help if you can

any updates on this ? i hope he is doing better !

 
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