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Old 02-17-2009, 07:58 AM   #1
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sivad HB User
After Gallbladder Removal, Nausea, 2 Years

Hi, I hope this is not too long, but I am desperate to hear if anyone has had and been cured from this.
Two years ago, just before Christmas, my 30's healthy strong daughter, had a case of stomach flu, she thought. After suffering for 5 months, before any doctor would do an ultrasound, she had her gallbladder removed. Huge number of stones and the surgeon said widespread inflamation as well. Within two weeks of the surgery, she started having nausea. It would start mainly at night, waking her and there was mild pain sometimes in the area of the gb surgery. Doctor number 1, gave her GERD med, #2 gave her antibotic, # 3 gave her anxiety meds # 4 gave her blood tests and Gerd meds. She gave up trying to feel better. Went to work everyday, usually without much sleep, feeling like it must be all in her head. Finally, I got her to change clinics and go see a new GP. He was very upset about her care and said you can't make yourself have nausea day after day, gave her meds for nausea (duh) and sent her to the GE specialist. Now after having 2 Endoscopies, and finding a dilated duct in the pancreas, they did an ERCP, which is very invasive. The manometry showed her pancreas had pressure built up 2 1/2 times normal. They put in a stent and did a Sphinctectomy. The Specialist told us he was sure that she would see "remarkable improvement, if not be cured". Because it was so bad, he was sure he had it. The whole family was so happy, after two years of her suffering. It lasted 5 days. On day 6, the nausea came back at night. That was 10 days ago, and she has had 5 attacks since then.
We will work with this GE specialist and see him next week. But then what?

I know from reading on the internet, a lot of people go through this after GB surgery, especially women in their 30's. If you have had a similar situation, please share with us and let us know what they did to make you whole again.
God Bless the folks here for their help. Louise.

 
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Old 02-17-2009, 08:28 AM   #2
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Re: After Gallbladder Removal, Nausea, 2 Years

I am sorry your daughter has had so much trouble. Too bad they didn't do an ultrasound before her surgery so you would have some idea of what all was going on. They don't jsut do the gb, they do the whole area - so something else might have shown up.

That being said, what sort of diet did she follow after the orginal surgery and what is she eating now? Any fat? Alcohol? Greasy, fried or spicey foods?

 
Old 02-19-2009, 10:24 AM   #3
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Re: After Gallbladder Removal, Nausea, 2 Years

Hi, Thanks for your reply. My daughter has her GB out 18 months ago. She has never been able to resume eating normally. In fact, with the nausea, she barely eats at all. Tea, toast, etc. She has lost over 20 lbs and looks like a skeleton all most. We just don't understand why the Sphinctomeny did not correct the problem if the pancreas was that bad.
We are so discouraged now..

 
Old 02-23-2009, 08:15 AM   #4
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Re: After Gallbladder Removal, Nausea, 2 Years

I had my gallbladder removed 11 months ago and have had nausea and pain ever since the surgery. I have had every test possible from MRCP to capsule endoscopy at the Mayo clinic and they can find nothing wrong. I had my gallbladder removed because of chest pain that was persistent, the gallbladder was normal and not the problem. I am ten times sicker now than I ever was and have been on every kind of medicine you can think of from antidepressants (made nausea worse) to ibs meds. The only med that has helped with the nausea is motilium not available in US but your GE can sign you up on a special plan to get it. It has helped a lot. I have been told I will probably be like this my whole life but I wont except that and I keep on trying. My prayers are with your daughter and your family because this is very difficult to deal with.
Quote:
Originally Posted by sivad View Post
Hi, I hope this is not too long, but I am desperate to hear if anyone has had and been cured from this.
Two years ago, just before Christmas, my 30's healthy strong daughter, had a case of stomach flu, she thought. After suffering for 5 months, before any doctor would do an ultrasound, she had her gallbladder removed. Huge number of stones and the surgeon said widespread inflamation as well. Within two weeks of the surgery, she started having nausea. It would start mainly at night, waking her and there was mild pain sometimes in the area of the gb surgery. Doctor number 1, gave her GERD med, #2 gave her antibotic, # 3 gave her anxiety meds # 4 gave her blood tests and Gerd meds. She gave up trying to feel better. Went to work everyday, usually without much sleep, feeling like it must be all in her head. Finally, I got her to change clinics and go see a new GP. He was very upset about her care and said you can't make yourself have nausea day after day, gave her meds for nausea (duh) and sent her to the GE specialist. Now after having 2 Endoscopies, and finding a dilated duct in the pancreas, they did an ERCP, which is very invasive. The manometry showed her pancreas had pressure built up 2 1/2 times normal. They put in a stent and did a Sphinctectomy. The Specialist told us he was sure that she would see "remarkable improvement, if not be cured". Because it was so bad, he was sure he had it. The whole family was so happy, after two years of her suffering. It lasted 5 days. On day 6, the nausea came back at night. That was 10 days ago, and she has had 5 attacks since then.
We will work with this GE specialist and see him next week. But then what?

I know from reading on the internet, a lot of people go through this after GB surgery, especially women in their 30's. If you have had a similar situation, please share with us and let us know what they did to make you whole again.
God Bless the folks here for their help. Louise.

 
Old 02-23-2009, 12:52 PM   #5
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Re: After Gallbladder Removal, Nausea, 2 Years

I'm sorry to hear about your daughter but I'm also one of those 30 something women who had their gallbladder removed probably for the wrong reason. Mine was removed almost 2 years ago. I have always have problems with nausea (since I was a teen). My children had a stomach virus and I started feeling sick with them, however I never fully got the virus. But that started things. I was sick to my stomach, had stomaches and chest pains EVERY day for months. The first said it was stress and anxiety b/c I have 4 kids and I also had headaches, dizziness, shakiness, and was exhausted. I tried to de-stress but that didn't work. Then they said I have acid reflux and tried 3 different medicines with no luck. Next step was an ultrasound, which showed bothing wrong. Next was a HIDA scan which showed my gallbladder was only functioning at 16% so they removed it. I felt better for almost a year, although I did have flair ups, especially if I ate something fattening. Now for the past 9-10 months, my nausea and stomachaches returned. I started seeing another Gastroenterologist who first checked me for lactose intolerance. After 2 weeks of NO dairy, I was still sick. This doctor then suggested I had IBS and gave me some med for that along with an acid blocker. That just made me have diarrhea and blurred vision, so I stopped taking them after 2 weeks. I just had an upper endoscopy last month, which showed red irritated areas in my stomach and up into my esophagus. The biopsies showed high acid and/or bile levels (according to the dr). She insisted that I had acid reflux and put me on Nexium. It's been 2 weeks now and I'm not better. I've read that it can take from 1-3 months to start feeling the effects, so I'm trying to give it some time.

My tests for H Pylori and Celiac's Disease came back negative. Thanks to my hubby, we figured out that I have been anemic for quite some time, which was the cause of my headaches, tiredness, shakines, etc. They tested me for some things but never my iron levels (duh). I've been taking iron supplements for 3 weeks now and am starting to feel some more energy, however the iron can be very hard on your stomach.

I wish your daughter the best of luck with feeling better.

 
Old 06-11-2009, 04:24 AM   #6
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Re: After Gallbladder Removal, Nausea, 2 Years

I am going through the same thing right now - mine was removed Sept 2008. My doctor is having me keep a food diary, I had to eliminate my tricor cholesterol pills for awhile because the side affects are horrible - it aggitates people with gallbladder disease. He is putting me on Quantum powder which I take before I eat - I will see if that works. I had a hploryia test, pancretis test, and the list goes on.

 
Old 07-01-2010, 07:18 PM   #7
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Re: After Gallbladder Removal, Nausea, 2 Years

Hi! I am sorry about your daughter, I feel her pain. I too, have had severe nausea since my gallbladder was removed 4 months ago. I have had tons of testing (except ERCP) with no answers. The nausea is constant, from the time I wake until the time I go to bed. Did she ever feel better? I sure hope so! I hope to feel better too, I never knew all the side effects from this surgery. I don't think I would of ever gotten it, if I knew the outcome. I had a fun, healthy life and now I have nothing but nausea that stops me in my tracks! It's miserable I just want to be normal! Would love to know if she ever got relief.

 
Old 02-22-2012, 07:55 AM   #8
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Re: After Gallbladder Removal, Nausea, 2 Years

I had my gallbladder our 4 years ago and my stomach's never been the same. Nausea, pain in the upper left side of my stomach (just at/below ribs), fatigue, sore muscles in my legs almost daily (feels like I ran a marathon). Nausea is relieved if I take a ppi daily. If I miss one dose, it's back within hours. I could lay on the couch all day, every day.

Had upper GI, endoscope, ultra sounds. Showed nothing. Tested positive for h pylori, took antibiotic regimen. Still feel bad. Just had a physical the other day, waiting on bloodwork results. Tested for celiacs (lots of autoimmune in my family).

So frustrating when all the tests are negative and you KNOW something's wrong.

 
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