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Old 05-22-2009, 10:22 AM   #1
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Red face GERD Fundoplication & Gall Bladder Surgery Do you know your DeMeester Score

Hi, I am just wondering does anyone else know their DeMeester score from having the bravo capsule? I just had the capsule and recorder on my waist for one day and 17 hours. I could not stand it any longer as I was married to the thing with the paper, marking down all my reflux times. Finally I decided to just take it in, after all the reflux I had I figured they had enough to decide if I had gerd or not. Turns out that I had 241 relux times and my DeMeester score is 54. Just wondered if that is normal or high or does any one know their score? I am confirmed to have acid reflux disease with a very high DeMeester score. I am seeing the surgeon Wed 27th and he will tell me the date of my gall bladder removal or Cholecystectomy and fundoplication. Can anyone tell me if they have had both these at the same time as I am going to. Just wondered what the side effects will be from both. I was advised to get some baby food and lots of liquids and a blender for the first few weeks. I hope to lose some weight from it, like 15 pounds hopefully. Not looking forward to any pain or discomfort tho. Just had my thyroid removed March 26/09 and that was a piece of cake so hope this goes as smooth.

 
Old 05-22-2009, 02:34 PM   #2
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Re: GERD Fundoplication & Gall Bladder Surgery Do you know your DeMeester Score

I didn't have the Bravo capsule, but I did have the 24 hr pH probe. It recorded 82 reflux episodes, and my DeMeester score was 15.2. Depending on where you research DeMeester, normal is 14.4 or under. However, my GI doctor's notes to my GP said a normal DeMeester score is 22 or less. So I'm either slightly abnormal or normal regarding DeMeester. My other reading showed that there was acid in my esophagus 5.1% of the time, and normal is 4.2% or less, using pH 4 as a reference value. So the long and short of it is, I do have acid reflux and I do have symptoms and need to stay on my Nexium. (The test was done off any meds).
Kassie

 
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Old 05-22-2009, 03:33 PM   #3
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Re: GERD Fundoplication & Gall Bladder Surgery Do you know your DeMeester Score

Yes I had to stop my meds for 7 days before and two days of the test. The longest reflux was 55 minutes. I looked it up, the DeMeester score and found normal is 14.72. Day one was 48 for me and day two was 54.8 so I guess I do need the fundoplication. When I look up post recovery for both I am in for a rough time I think. I am pretty good about healing up etc from surgery so I guess I can handle it okay. Have to find out what I can take for pain after and bring it with me. Not waiting for them to get an okay from the Dr for this or that. My last surgery March 26th this year I woke up with stinging eyes and asked for eye drops. 7 hours later they got them so taking them with me too this time.

 
Old 05-22-2009, 08:53 PM   #4
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Re: GERD Fundoplication & Gall Bladder Surgery Do you know your DeMeester Score

I can't speak on the Gall Bladder surgery, although I've wondered what they would find if they tested it. I've had some intermittent issues over the last several years that lead me to believe they might find something there.

I can speak on the Nissen Fundoplication. I had mine last October 2. I had the 24 hr pH probe and manometry. I can't remember my exact DeMeeter score,(around 64 I think) but my GI doc said it was about as high as he had seen it and that I had extremely severe reflux that was almost constant in incidents. It was my second pH test in the last few years and came back a lot worse this time. (I was int he 40's the first time.) The ironic thing was that I actually felt really good and symptom free on the day of the test and I ate well that day. Makes me wonder what it would have shown on a "bad" day. The Manometry showed my LES wasn't functioning properly. I also had a Modified Barium Swallow and Esophagram that showed I was refluxing food and acid and the acid was aggrevating my lungs.

I spent last summer trying every PPI on the market to get things under control. Through most of last year, I coughed non-stop from my "silent" reflux. I also had severe asthma attacks for about 8 months due to the lung irritation. Had some scary moments with my breathing because of this. Nothing worked. None of the meds, diet or homeopathic things I tried really worked.

My Pulmonologist recommended the Nissen Fundoplication first, then my GI doc tried things for months with me that didn't work before referring me to a surgeon for the NF. The surgeon basically said I had classic symptoms and test results for the surgery. He had discussions with me to make sure I had tried other options first since the surgery is a serious step. He also discussed all of the risks with me. He recommends taking small bites and chewing very well before swallowing. This is a lifelong thing to keep food from getting stuck above the wrap. It is very painful if you get food stuck, but it isn't really dangerous. Eventually the food goes down. Also, you probably won't be able to vomit. While the wrap keeps the acid from coming up, it also keeps food, vomit and gas from coming up. I never had nausea problems before so I wasn't worried about this. I've had some intermittent nausea since the surgery and it is kind of unpleasant. My stomach and esophagus make the muscle movements for vomiting, but it just bounces around in my stomach since it can't come up. I also get Gas Bloat Syndrome sometimes. It is a syndrome specific to this procedure because the gas can sometimes just sit in the gut since it can't come back up as normal. It can be very uncomfortable, but it does eventually go away. It is more frequent in the beginning than it is as time passes. Also, you will be cautioned against gaining weight past what you are when you have the surgery because it can put strain on your stitches and possible cause the procedure to come undone.

Make sure you talk to your surgeon about how many times he or she has done this procedure. The more they have done this, the higher the chance of it being successful.

Post-surgery, different docs give you different directions. Here are some of the things I did. I was on a liquid only diet for the first two weeks. This means NOTHING with any lumps or bumps. Even no to strawberry seeds. (Sorry no strawberry smoothies.) I stayed on mostly clear liquids the first week, then added in some other liquids the second week. For me, the pure liquid diet was the hardest part of the recovery at first because I was craving something to chew by the end of the second week. I was cleared to eat smooth, soft food after week 2. Ironically, that is when the nausea started hitting me and I lost my appetite for a couple weeks. After that, I started eating most foods with the exception of bread and meat. I stayed off bread and meat pretty much for the first 3 months. When you chew bread and meat, they don't break down like other foods do. Therefore, when you swallow, you are still swallowing fairly solid objects. My surgeon and GI doc said it takes in excess of 3 months for the swelling in the stomach to really go down. My GI doc told me my tummy was "angry at me" for messing with it. Many people who have had this procedure start eating solids much sooner. I also read about many people who had many more problems healing than I did so I feel good about the course I followed. You will also be on a lifting restriction for the first 3-6 weeks after the surgery.

Post-surgery pain wasn't all that horrible for me. I spend 23 hours in the hospital and the first afternoon and night they gave me some pain meds in my IV. I also had some anti-nausea meds. I knew I got nauseaus from the anesthesia so they gave me some before the anesthesia wore off. I also needed some a few hours post surgery. (That is a whole other story for some time.) Probably the worst pain post-surgery was getting up and down out of bed. I had a lot of left side core pain where they moved things around and moved the stomach from. Using those stomach muscles to get up and down was really hard for about a week post surgery and caused some pain. If you are lying down, sitting or standing it isn't as bad as when you get up or down from a prone position. Heating pads and pillows against my stomach helped some. I had some pain meds, but I didn't use them as often as I should have. Moving around is good, but I was slow for the first couple weeks. First few days I moved around at more of a shuffle. One good things was that they let me shower beginning the next morning. They didn't mind if I got my steri-strips wet. Just said to dry afterwards. By the way, I had 6 incisions for my procedure. I was grateful for that.

If you are on other meds, you might want to talk to your doc or pharmacist. I was worried about taking my meds when I was under instructions to swallow nothing solid. My pharmacist was able to make all of my prescriptions, including my pain meds, into a liquid suspension. Not all pharmacists will do this. My pharmacist said that more of the local centers do this than many of the big chain centers. They didn't take the best, but worked very well for me during this time. I flew about 48 hours after my surgery to stay with family for the first week. (One hour flight.) I had all these huge bottles of liquid meds because I was on so many prescriptions. I was worried about getting through security, but they were great about getting me through. Picked me up at the car with the wheelchair, took me all the way to my seat on the plane and did the reverse on the other end.

By the way, I lost about 17 lbs in the months after the surgery. Been holding there since. Despite the problems I've had since, I consider this surgery a major success in my case. My asthma has been under control since the moment I woke after the surgery. I have some cold weather asthma problems too, but since the reflux triggered asthma was controlled, I was able to better control the other asthma triggers through regular treatment.

My surgeon told me I could go off of the PPI's after the surgery. My GI doc said no though because I had developed some other digestive issues (IBS) prior to my surgery and he worries that going off of the PPI's would make them worse so I still take PPI's twice a day though.

I know this was long, but I hope some of my experience might help you.

Good Luck,
Mountain Reader

Last edited by MountainReader; 05-22-2009 at 08:54 PM.

 
Old 05-27-2009, 03:17 PM   #5
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Re: GERD Fundoplication & Gall Bladder Surgery Do you know your DeMeester Score

To the OP, please let us know how you progress after your surgeries.

To Mountain Reader, you were told not to gain any weight after you had the NF done, but would this also apply to gaining weight in the form of bodybuilding?

 
Old 05-27-2009, 05:49 PM   #6
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Re: GERD Fundoplication & Gall Bladder Surgery Do you know your DeMeester Score

With regards to the weight gain after a Nissen, the caution against gaining weight was to limit the additional stress on the stomach stitches.

I didn't ask about bodybuilding. I would assume that being more in-shape would be beneficial more than harmful. Might depend on how much weight you are talking.

 
Old 06-30-2009, 12:11 AM   #7
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Re: GERD Fundoplication & Gall Bladder Surgery Do you know your DeMeester Score

My surgery was going to be June 25th, then changed to July 7th and now changed again to July 23rd. This date is terrible since my daughter is getting married in Tahoe July 22nd which is 3 hours away at 3pm so my husband and I have to race home for the surgeries the next day. I have to be at hospital at 5 am. Yuck, not looking forward to this at all. I hear about dumping syndrome, diarreah, vomiting, retching, gagging, lots of pain. I am totally freaked out by all of this. I hope my heart rate is not so high they cancel me when I go in that morning. Thanks to all who responded.

 
Old 06-30-2009, 08:41 PM   #8
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Re: GERD Fundoplication & Gall Bladder Surgery Do you know your DeMeester Score

Enjoy your daughter's wedding and try not to worry about the surgery. Even with some of the side effects after the surgery, I'd do it over again in a heartbeat. The results have had a major impact on my quality of life, and maybe my life in general since the reflux was causing really severe asthma attacks.

If you have nausea after surgery, make sure you ask them to give you something in your IV. My left side core was very sore after. The pain was OK when lying there, but it really hurt to get up and down out of bed. It takes a lot of muscle use to get up from lying down. That was what hurt most. It was temporary though since once I was up, I was up. I was pretty mobile, but slow right from the start. I flew to stay with relatives the day after I was released. Had no problems there. Do not try eating solids and too much too soon. I think I healed better because I stayed on the liquids longer. (It was tougher for me because I have to stay away from dairy.)

Good luck.

 
Old 12-21-2009, 06:45 PM   #9
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Re: GERD Fundoplication & Gall Bladder Surgery Do you know your DeMeester Score

Okay, new here. I had the bravo capsule thing done in November. My DeMeester scroe was 112.2 Yes, that is right, 112.2 when normal is less than 14.72. I have no symptoms of GERD with the exception of when I drink a latte or hot chocolate or clam chowder soup that I get the feeling that my throat is closing up. I also get that feeling if I eat a big meal and by big I mean an average size meal. I also feel that way when I am stressed. At first I thought it was milk allergies or something but that wasn't the case after having allergy testing done. I am 5'1" and weigh about 125. I've lost about 5 pounds since November and am trying to loose another 10, hopefully 15 more to help. So I'm not grossly over weight, pretty much symptom free when it comes to GERD. I'm taking Kapidex. Does anyone else have a DeMeester score as high as mine?

 
Old 12-21-2009, 10:28 PM   #10
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Re: GERD Fundoplication & Gall Bladder Surgery Do you know your DeMeester Score

Was that your total combined score or was it the number of reflux incidents you had during the test. The number sounds more typical for the latter. If that really is your total score, you should be having a serious conversation with your doctor.

My score was in the 60's and my GI specialist who has done many thousands of these tests said that it was really really severe and he doesn't see many scores that high. Based upon this score and other factors, I ended up having surgery for my reflux.

Last edited by MountainReader; 12-21-2009 at 10:28 PM.

 
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