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Old 11-17-2004, 08:52 PM   #1
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Possible Eyelid Dysfunctions!? Please Help me...

Heres my condition:

- Mid 2002 I started out with fatigue and my eyes felt 'cold' then it settled into a condition where I would always perceive 'the 2 sides of my nose as being transparent and separate' *Can someone please understand/relate to that?!*.

- Since mid 2002 I've felt that under my left eye lid it's very congested, sticky and cluggy. When i shut my right eye and just leave the left eye open it struggles to keep open all the way properly as it feels there is something under the eye lid keeping it from doing so.

Doctors are baffled and I've tried a wide range of medications from liviston, tissue salts, doxycycline tablets, Horseraddish Tablets, Nasonex, Decongestants, Claratyne, Tobrex eye ointment, Antibiotic drops as well as seeing an optometrist, nose specialist *to check if turbinates were at fault*, eye specialist *nothing wrong with my eyes* as well as even trying eastern medicine in the form of Acupuncture.

I was hoping that maybe my problem was a 'meibomian cyst' as perhaps a cyst has been weighing down on my left eye causing the sensation under the left eye lid and the weird perception of my nose....but I don't have a lump under my eye lid *perhaps the cyst is embedded too deep to be felt conventionally???*.

I'm really frustrated and withdrawn and would really like to know what 'eyelid dysfunctions' or possible 'meibomian problems' any of you may think I have so I can speedily correct this and be happy and healthy.

Thankyou.

 
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Old 11-19-2004, 04:40 AM   #2
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Re: Possible Eyelid Dysfunctions!? Please Help me...

I would maybe have an MRI done on your c spine and upper thoracic area to detect possible nerve problems(compression of?)one thing that pops into my head regarding the weird sensations and perceptions that you are having is possible sympathetic nervous system damage possibly caused by a herniation of a disc or bone spurs that may be compromising the SNS.the sympathetic chain actually runs along side the outside of the spinal column(not the actual cord)The reason I bring this up is that I have had similar eye weirdness that IS caused by damage to my SNS during a spinal cord surgery last year,and wow, I have had some really strange and bizarre occurances happening throughout my body because of it.i kind of know what you are referring to when you describe the eye nose thing.i think this bears some looking into.I would talk to a good neurosurgeon regarding this possibility.I don't think a plain neurologist would have as good of an understanding of this type of damage as a NS would.Good luck and please keep me posted as to what you find out.K?marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 11-19-2004, 04:38 PM   #3
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Re: Possible Eyelid Dysfunctions!? Please Help me...

Thats pretty interesting but I can't recall ever having any kind of back injury or any other notable injuries that could have affected the sympathic nervous system.

I hate having something that is so weird and that can't be cured.

I honestly feel like if an incision were made in my upper left eye lid and some sort of 'suction device' were implemented then this problem would go away as it feels like a build up of gunk up there and no one seems to understand this and know how to help me.

I'm seeing a doctor that specialises in eyelid problems next month. Hopefully he'll be able to help me as I've become very exhausted of being so depressed over this.

 
Old 07-29-2005, 04:28 PM   #4
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Re: Possible Eyelid Dysfunctions!? Please Help me...

hi i have meibomian cysts and in my opinion it does not sound like you have them.i do not know though as i am obviously not a doctor. good luck with it though x

 
Old 04-18-2006, 04:44 AM   #5
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Re: Possible Eyelid Dysfunctions!? Please Help me...

Hi all, its me again.

I saw another eye specialist at the beginning of the 2005 and they agreed that my eyes are fine and in mid 2005 I had a MRI Scan done at a main hospital in the city yet its results were normal.

I no longer think my problem is a result of a 'build up of material' or some sort of congestion under my left eye lid which has been causing my perception of my nose as, "seeing both sides as being separate and transparent, which is especially more pronounced when observing the right side of my nose (which, to me, appears on the left side of my face.....)" because I've realised that along the left side of my face, especially around my left eye *mainly above, i guess*, feels somewhat 'strained' and not as free and easy as the other side of my face. When I just open my right eye and keep my left eye shut the effort and result of that is fine and normal yet when I shut my right eye and try to just keep my left open it often feels like a bit of a strain and doesn't feel as if it opens all the way or as easily as my other eye can by itself. When I just have my left eye open I can feel the skin just about my left eye *a little to the left as well maybe* feeling strained and perhaps even slightly sticky.

As I've said before on this board I've seen all sorts of specialists and doctors and tried all sorts of drops, sprays and tablets as I've thought that this has been all sorts of things ranging from hayfever to neurological...

This all began in mid 2002 and as 2003 began with this thats when I became stubborn and depressed and as much as I've been trying to snap myself out of this withdrawn and depressed state that I've lulled myself into I feel too bogged down in this state to be able to. Over the last few months I've been trying to get back into reading *which I pretty much stopped myself from doing soon after this started as I was being stubborn even though I can read fine despite my 2 shadowy transparent nose halves* as since I did that I've felt myself get increasingly unmotivated and often 'feel stupid'.

I'd appreciate any input from anyone here on the board as I feel like I havn't really been myself in years and as much as I try to intellectually snap myself out of this whole situation I seem to keep being dragged back into it.

Thankyou.

 
Old 04-18-2006, 05:50 AM   #6
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Re: Possible Eyelid Dysfunctions!? Please Help me...

Hi, has anyone checked for antibodies? There is a thing called thyroid eye disease. Look it up. These antibodies can be causing your problems. It is possible to have it and not an actual thyroid problem. However, depression is a symptom of thyroid.

 
Old 04-18-2006, 06:11 AM   #7
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Re: Possible Eyelid Dysfunctions!? Please Help me...

Geez sorry to see you are still having to deal with this issue.I do know just how frustrating and depressing this kind of crap can be.I do feel for ya there.you know,what you are describing now,seems almost like a possible muscle issue?there could possibly be some sort of either just a muscle problem or a nerve that runs to that muscle type of problem.when the nerves don't innervate the muscles properly it will cause all kinds of different problems.I have this going on in many areas of my body just due to the overwhelming loss of innervation to many seperate muscles.I actually lost eight of the smaller intrinsic muscles in just my L forearm on down thru my fingers.this is causing all kinds of problems,mostly atrophy from no innervation or movement of the muscles there anymore.

You might want to check into this just a bit further with the right type of doc.this would be,the best one,is called a physiatrist?it is NOT a mental health type of doc despite what the name may look like,people make this mistake allthe time.this is a doc that speacializes in muscles and nerves and how they work together.I found mine when he was just my rehab doc after I was transferred to a rehab hospital from the surgical hospital after my spinal cord surgery caused me to lose alot,mostly the actual use of my L leg and my L hand.he helped me to regain the use of my leg and what was possible with the fine motor skills in the L hand.they are very knowledgable on what you are needing to have evaluated.if nothing else,this would be ruled out or in as a possible problem with the muscle/nerve interaction at your eye levels.

I DO think that at this point,since no one can seem to offer you an actual Dx of anything this would be a good next step in hunting down the causes/reason for your eye problems.just one avenue that you probably have not gone down yet.good luck,and please keep me posted.FB
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 04-18-2006, 07:16 AM   #8
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Re: Possible Eyelid Dysfunctions!? Please Help me...

I am curious too, did you see an actual opthamologist??

 
Old 04-19-2006, 02:49 AM   #9
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Re: Possible Eyelid Dysfunctions!? Please Help me...

So my problem would more likely be muscle/nerve related and not a skin problem that a dermatologist may be able to assist?

So for this physiatrist should I just get a referral from my doctor? Are they common place in major hospitals?

Also, are there any good websites describing such muscle/nerve conditions and what these specialists are able to do?

Thanks again.

 
Old 04-19-2006, 06:20 AM   #10
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Re: Possible Eyelid Dysfunctions!? Please Help me...

I looked around the web and apparently the Orbicularis oculi muscle is located above the eyes and maybe theres some sort of dysfunction with that that is behind my problem?

Does anyone if this muscle can have problems and, if so, what causes it and what can help it?

Thanks.

 
Old 04-19-2006, 09:12 AM   #11
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Re: Possible Eyelid Dysfunctions!? Please Help me...

It definitely can have problems. It seems like if your problem was related to this, it would be weakness of the muscle, since the muscle seems to hold the eyelid up. I did a Google search with the terms "Orbicularis oculi weakness" (without the quotations) and got a ton of information, it was way too much for me to wade through, since it seemed a lot of different things could cause it and most of the links were very technical, but I would recommend you do the same search and I think you might find some possibilities for what you have.

 
Old 05-06-2006, 12:56 PM   #12
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Re: Possible Eyelid Dysfunctions!? Please Help me...

I have a very similar problem, however, it doesn't stretch beyond my eyelid. My eyelid has not been opening all the way on my left side. A couple weeks ago I noticed that it seems to be sticky above my eyelid. My eye itself is fine. Also, what I have noticed is that when I sleep (on my right side) my left eye seems to get tense and tight when I close my eye to block out any light. So I've began sleeping on my left side so the pillow helps close my left eye so it doesn't get so tense. So far, this hasn't helped it at all.

I found this thread while searching on google for "left eye not opening all the way" and I was amazed at how we had very similar problems.

I thought it could be my facial soaps so I've been trying a whole bunch but still, it hasn't helped so far.

I feel the eye even now, it's very annoying and I can't quite explain how it feels but it feels as if it were maybe swollen or something is inside my eyelid causing it to not be able to go in all the way. However, it seems to be way too long of a time passed for it to be a stye and I cannot feel any bump or anything on my eyelid.

I have no idea what this could be. I am going to see a doctor for it in a while but it won't be for weeks since it's not life-threatening so Kaiser is keeping me waiting.

This whole problem has been very frusterating for me and it would be greatly appreciated if someone could help.

The crease on the top eyelid even seems to have moved.

P.S. My eyes were the same shape before about a month ago before all this began happening.

Thank you very much,
Michael.

Last edited by mikeishi; 05-06-2006 at 12:58 PM.

 
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