It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



General Health Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 02-23-2005, 02:22 PM   #46
Senior Member
(female)
 
Join Date: Sep 2004
Location: Palm Desert
Posts: 119
antoinettev3 HB User
Re: Help! What is wrong with me?

You haven't gotten anywhere approaching this problem from the ED and hand color angle so I would definitely come at it from the fluid intake issue. Personally, I would hold off on the vascular surgeon until your fluid problem is resolved.

I think if you were to explain to the urologist and / or the kidney specialist how you feel better when you drink less and how you feel significantly worse when you up your fluid intake they would explore the issue of overhydration with you. I don't know what tests they might conduct that they haven't already but since your doctors, so far, have not been made aware of these symptoms they may have misinterpreted some results or not ordered certain tests because they were deemed unnecessary.

If you're NOT dealing with an HMO, getting a referral to the kidney guy should be pretty easy. Ask your urologist or your GP. Chances are good that the urologist will refer you out since he can't really find anything wrong with you to treat. If there are any pre-requisites to see him or her that will depend a lot on the doctor. I don't think there are any hard and fast rules. They're all very happy to take your money. i don't think you'll have any problems given your symptoms.

Let your doctor know why you didn't mention these symptoms earlier if he seems skeptical in the least.

Hypothetically, there is always a chance that something is wrong with a body part despite negative test results. A lot depends on how good a particular test is at detecting a particular problem and if it was administered correctly.

Sometimes when tests don't confirm a diagnosis a physician will use common sense and go by the symptoms his patient is experiencing. It's like the old saying if it walks like a duck, sounds like a duck and looks like a duck, chances are it's a duck.

My girlfriend can be quite formidable and she definitely isn't shy about letting anyone know exactly what she thinks. Lately she's had a lot of problems with doctors so she would be more then happy to put in her two cents worth.

As far as the bloodshot eyes I would mention it to the docs just so they have all the information. It could be yet another clue for them to confirm a diagnosis.

I'm not 100% clear on the posting rules here either when it comes to starting a new thread when you have a big long one going already. You might want to start one with Overhydration. If there are others suffering from the condition that would definitely get their attention. Probably be best to post it in the kidney forum.

Take care and as always keep us posted. I'm very optimistic that you will get to the bottom of all of this.

Sincerely,
Antoinette

 
Sponsors Lightbulb
   
Old 02-25-2005, 01:19 PM   #47
Inactive
(male)
 
Join Date: Feb 2005
Posts: 422
ScruffyGuy HB User
Re: Help! What is wrong with me?

I haven't forgotten about you, dude... it's just that there doesn't seem to be much more that we can discuss on message boards that will help you.

I DO believe it is a GREAT idea for you write down your history for the next doctor. I also think you should have a list of questions for him with you on your next visit.

I feel the only way you are going to start finding answers is to take a more aggressive approach. If a doc tells you that nothing is wrong or that he can't figure out what is going on, ask him for a referral to a specialist. If a doc won't give you a referral because he doesn't know which specialty you should next explore, KEEP TRYING and go to a different doc who WILL.

DO NOT keep any bits of information from your doc. You mentioned that you saw a urologist and didn't discuss the ED with him. Why not? If you want to find a solution, you have to present ALL THE FACTS.

I am aware that most doctor's visits last just a few minutes and that this is a huge complaint from many patients. Knowing that going in, however, gives you an edge. When you make an appointment tell the receptionist that your situation is complicated and that you will be bringing with you a list of questions and a written history for the doctor. Suggest that she schedule your appointment for a time when the doctor has some availability to have a more in-depth conversation with you. This way, it is known before you even arrive that you will need more time. If they tell you this is not possible, tell them you feel that you would prefer in that case to give your business to a physician who is willing to devote more time to you!

YOU have to follow up on these things. Docs see dozens of patients each day. You are not special to them, unfortunately. But docs sometimes enjoy a patient who is prepared and who is helpful. Your written history and list of chief complaints, along with a list of questions, just might impress a doc enough for him to take more than a cursory interest in your case.

Best of luck to you.

 
Old 02-25-2005, 11:39 PM   #48
Inactive
 
Join Date: Nov 2004
Posts: 1,113
kerry1 HB User
Re: Help! What is wrong with me?

Good advice from Scruff. Write all this stuff down and read it, point by point, to the doctor. Don't let him shoo you out the door until all points have been discussed. These days you have to be almost as educated as the doctor to successfully get results from one. Alas. But fortunately you seem very intelligent - you spell everything right - although I know it's probably very hard to think clearly when you are feeling so sick and tired. That's what lists are for!!
All of your fans here will want to know what the diagnosis is, good or bad. We're here to support you.

 
Old 02-26-2005, 04:29 AM   #49
Junior Member
(male)
 
Join Date: Feb 2005
Posts: 24
exist21 HB User
Re: Help! What is wrong with me?

Chantel, Antoinette, ScruffyGuy, and Kerry1

Everyone's been great and I appreciate all the advice. I'm still going to post the results from all my bloodwork once I get it from my doctor. Other than that, I'll probably wait to post again until I've seen another doctor and can update all of you on how things are going. But if anyone else reads this and has any more ideas or suggestions, let me know because I'll still be checking back. Thanks again everyone.

 
Old 02-26-2005, 05:28 AM   #50
Junior Member
(male)
 
Join Date: Feb 2005
Posts: 11
jack hawkins HB User
Re: Help! What is wrong with me?

I don't know what blood work you've had but with a multi-system causing what seems to be Raynaud's a vasculitis or collagen vascular disease seems a possibility

 
Old 05-29-2005, 04:24 AM   #51
Newbie
(male)
 
Join Date: May 2005
Posts: 5
tonee85 HB User
Re: Help! What is wrong with me?

omg bro, I think I have the exact same problem as you.... I started noticing problems when I was 16 that my libido was never existent. Unfortunately, it got worse and worse. Now, I am 20 and have no libido- I'm impotent actually!


I'm to the point where viagra doesn't work.... Like you, I had some frequent urinary problems so I asked my doctor to prescribe me some detrol... I was still 16 at the time and after that, my potency seems to have went nothing but downhill ever since.....


It's hard for me to tell if the detrol actually did this to me or the problem would've occured naturally anyways....


I'm in the world of no answers and doctors aren't helping.... Having ed at 20 is unheard of.....

Last edited by tonee85; 05-29-2005 at 04:28 AM.

 
Old 05-30-2005, 11:59 PM   #52
Newbie
(female)
 
Join Date: May 2005
Posts: 5
julielynnb HB User
Re: Help! What is wrong with me?

I feel like the Scruffy Guy. I think you have a lot more going on than a bunch of "Physical Problems". Maybe you should seek counciling. I always heard that if you wake up in the morning with an erection, then your erectile disfunction has something more to do with whats going on in your mind as apposed to down there.

 
Old 09-16-2005, 02:03 PM   #53
Junior Member
(male)
 
Join Date: Feb 2005
Posts: 24
exist21 HB User
Re: Help! What is wrong with me?

Hello everyone, in case you're still interested, I was just diagnosed with hemochromatosis.

 
Old 09-17-2005, 10:03 AM   #54
Senior Member
(female)
 
Join Date: Feb 2005
Posts: 289
sorrel2 HB User
Re: Help! What is wrong with me?

Quote:
Originally Posted by exist21
Hello everyone, in case you're still interested, I was just diagnosed with hemochromatosis.
Thanks for the update. ...Another conformation that we should trust our instincts and keep pushing for answers, when we know there's something really wrong. How was the cause of all this eventually found?

 
Old 09-17-2005, 12:47 PM   #55
Junior Member
(male)
 
Join Date: Feb 2005
Posts: 24
exist21 HB User
Re: Help! What is wrong with me?

I switched doctors and she ran some blood tests on me and nothing showed up. She sent me around to some other doctors and I had some other tests performed but to no avail. At my last appointment, after she had sort of given up, she decided to test my iron levels. The results weren't normal. She had me wait a little while to be tested again and this time I was tested for hemochromatosis as well. She called the other day and said that I tested positive for hemochromatosis. I haven't seen her since I've been diagnosed, but I will soon. Yesterday I had an mri performed on my abdomen.

 
Old 09-19-2005, 05:45 AM   #56
Senior Veteran
(female)
 
Join Date: Dec 2003
Posts: 10,133
feelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB User
Re: Help! What is wrong with me?

So glad that you finally have at least a clue here as to what may be causing your symptoms.what do they plan to do as far as treatment,or haven't you found that out yet.i do believe that my great uncle had this and it required him to donate blood quite frequently to get rid of the excess iron.Other than that,i don't know what other things they would actually be able to do for you.Please keep me posted.FB

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
CONFUSED with THYROID readings?? I need help? meds do nto seem to be working? bluetou Thyroid Disorders 17 05-12-2011 07:18 PM
Help...child with recurrent abdominal pain. caltripp Children's Health 10 04-04-2011 09:51 PM
Help I am at the end of my rope... tinabean34 Pain Management 4 07-01-2010 11:55 AM
Help/Advice neededASAP -Fentanyl detox, pain pat. abused meds will need meds in futre Confused089 Abuse Support 34 07-06-2008 05:33 PM
Help please....desperate father mgneer65 Parenting Issues 22 11-25-2007 09:49 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



ladybud (79), sjb (77), SnowBunny2020 (76), Titchou (70), JJ (53), janewhite1 (51), lenvegas (31), midwest1 (26), solofelix (20), quincy (20)

Site Wide Totals

teteri66 (1180), MSJayhawk (1013), Apollo123 (909), Titchou (856), janewhite1 (823), Gabriel (763), ladybud (755), midwest1 (670), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 09:01 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!