starfire5

One Doctor has diagnosed me with Burning Mouth Syndrome. I do have all the classic symptoms. I am concerned there is more to it. One symptom I have not of burning mouth is a cronic sore throat, “numb/coated” tongue,

After exploring the internet I now believe i may have one or all three of the following:

yeast infection in the mouth (thrush, or candisis)
Lichen planus (oral and skin)
Burning Mouth syndrome

MY SYMPTOMS:

tremendous STRESS
tongue sores-splits (now gone away)
burning tongue, roof of mouth and gums
chornic sore throat
dry mouth
rash (one occured on inner thighs, now on upper back)


MY HISTORY:

Tongue Sores
In mid September, I came down with sores on my tongue. This may have been sexually transmitted. My doctor said they were canker sores and nothing could be done. He referred to canker sores as Herpes 1. Upon investigation, all information tells me that herpes one symptoms are COLD sores, which occur outside of the mouth. So cross that one out, hopefully. They didn’t look like the pictures I saw of canker sores. These sores were splits on the tongue. On my next visit he felt it wasn’t herpes. The mouth specialist said the same thing. They both said there is no test for herpes one.

BURNING MOUTH APPEARS:
For the next THREE months these sores would go away for a day or two and then return. After the first few weeks, another symptom appeared: a strong burning sensation on the top of my tongue, roof of my mouth, and inner gum lines. Also DRY MOUTH. Also a very sore throat.
These symptoms would sometimes appear singlely or all together.

On Februay 5, I was referred to an ears/nose/throat specialist. By this time the tongues sores had gone. i complained of swollen tongue and sore throat. He said he come back when the sores appeared again.

Only one mouth sore occurred since that time. Only for three days. But the burning mouth has taken over.
When I returned to him in early March, he diagnosed me with Burning Mouth Syndrome. He gave me SALVE to treat symptoms. It works, but yogurt (much much cheaper) works better.

WHY IT OCCURS:

I read a posting which was enlightening: A doctor has found out the reason why people get this disorder. It has to do with the nerve that runs from the tip of you tongue. It is believed that due to a viral infection, damage to the nerve happens,

This could be me. I had some viral infection (tongue sores) that turned into burning mouth due to nerve damage.

MY QUESTIONS:

Could a reoccurring viral infection on my tongue have lasted from mid September through mid January? Why reoccuring?

Could my throat problem (and burning tongue) be a result of a yeast infection? And how can this be treated? Could a throat Doctor examining my mouth have missed this? Could a yeast infestation be “invisible”?

How can I find out if this is either Burning Tongue Syndrome or Lichen planus (oral and skin)?

MEDICINE AND MONEY
I have already spent a fortune for very few answers. I have no money and am in great debt. I am still in the dark. I realize the complexity of all this.....but the Doctor seems to be guessing, such as the throat being due to reflux, which doesn’t even occur anymore. And because this is puzzling and he has no answer, I seem to be a “pain in the rump.”

HOW CAN I GET HELP FROM THE MEDICAL COMMUNITY WITHOUT SPENDING ANOTHER FORTUNE. I HAVE HEATH INSURANCE, BUT EACH TIME MAKE CO PAYMENTS AND PURCHASE DRUGS THAT ARE NOT HELPING ....MEANS I’M SPENDING MONEY I DON’T HAVE FOR NOTHING!!????