i hope this is ok to post here.
I am almost at the end of my treatmentfor lyme. I have a picc line in and I IV antibiotics once a day. Recently when i inject anything i get a electrical tingling on one side of the back of my neck also a slight cognative wierdness but i could be imagining that. it doesn't hurt and no one knows what it is and they are not taking the picc line out. I would love it if someone knew.
the only thing i can think of that could be a possible cause is perhaps there was a shift of some sort in the actual picc itself?where they actually placed it under the skin?the needle may have shifted in some way?it really does sound rather odd tho.so the ONLY time you feel this 'feeling' is when you are actively injecting?is it there at any other time?just where exactly did they place the picc?i know my sons was in his upper arm but they can place them in the chest or further down the arm too.just wondering.just make sure to tell the people who are your healthcare providers right now about this.hopefully since you are at the end of your ongoing treatments,it will go away once they remove the line.i wish i could give you better answers. FB
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.
It's only when i am injecting and only in the beginning of the shot but comes back the next shot(i get 4 at a time). The picc is in my upper left arm to my heart, the same side as the feeling in my neck strangely enough.
How are you doing with treatment? What med and dose are you infusing and how long is it prescribed for?
How long have you been on the meds? Are you aware of the Jarisch-Herxheimer Reaction (herx)? Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel sicker. It can be very scary when it happens, but it is a good sign the antibiotics are working. Although it can vary individually, many people experience this at the beginning of treatment and every three to four weeks. This may be what you are experiencing. Lyme disease itself can cause the symptoms you describe.
It is a good idea to document your symptoms daily. One way to do this is to list the three main symptoms you have each day and a numerical rating of their severity, from 1-10. Over time when you review this, you can see when your herxes occur and how you are responding to the meds.
Are you being treated by a Lyme knowlegeable doctor? This is very important. Many doctors do not understand Lyme and treat with outdated protocols. Lyme needs continuous, aggressive treatment.
Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. It is estimated that 60% of people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these?
It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses. He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know About Lyme Disease (2nd edition)" by Karen Vanderhoof-Forschner.
Check out the Lyme board at this site. The people who post there are great.
Snibe, I am very familiar with PICC lines as I have not only have one but also work closely with them (sorry prevents me from saying anymore). Have you had an xray since this started?? It is possible for picc lines to travel up then neck as opposed to down towards the heart. If it is in good position then I would recommend you not push the medication (or the flush) so fast. Often saline, which i am sure you flush with, can give you a bit of a wierd feeling as well as a metallic taste in your mouth. I experienced both. If you just developed this one day and didnt have it in the beginning when you had it placed, and an xray shows its in proper place you need to ask them to inject the line under xray to make sure also that there is not a hole in it, which is a possibility as well. Try flushing slower and if that doesnt work then proceed with the others. Hope that helps