Re: My doctor doesn't know what this is...
i would just suggest seeing a rhuematologist type of doc.the one my ortho sent me to becasue of the extreme pain ,inflammation and huge amounts of heat my knee was generating really could have been from an inflammatory type response.he did the most comprehensive set of labs on me that i ever had in my life.i was tested for anything and everything that was possible to cause some level of inflammatory type response.these tests had to be sent to labs all over the US just because the couldn't do them here in a regular city with all the big hospitals?these were really in depth labs.four pages of solid labs.these tested for about 50 seperate types of conditions.i really do think,mostly considering the 'heat" this is generating,your best bet would be to look for something inflammatory.inflammation just generates heat in us.some conditions can create a huge amount of heat while others,nothing you can actually really feel on the outside ya know?your symptoms are just so obscure that i think seeing a rheumy doc would really benefit you in seeing what are and are not real symptoms.and getting all those labs done would really help at least to rule in or out some possibilities.i was eventually Dxed with RSD in my knee.probably not at all what you have,butthose tests ruled out alot of other options,so they were worth my time and trouble.just a thought for you.good luck with this and please keep us posted,K? FB
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.