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Old 09-18-2007, 12:48 PM   #1
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davio2000 HB User
High Liver Enzyme and Stomach Pains

Hello all. I think I have posted in the correct place!

Hopefully you can help me with my problem as I feel that my doctor is not getting anywhere.

I went to the doctors with stomach problems a few months ago now and nothing has been resolved. He has done a few blood tests and I have a high liver enzyme. He also did a blood sugar test and that came back also a little high but said nothing too bad. Billi rubin was high and I have known about this for years but never been diagnosed with Gilberts Syndrome or anything like that. When I go to the toilet it is always loose no matter what I have been eating or drinking but never helps with my stomach. Alot of the time I am fine but then for maybe a few days at a time my stomach hurts and its difficult to do anything. I am worrying about this because I have been taking time off work alot (again a few days at a time) and my manager is looking at taking disiplinary action against me (demotion from assistant manager, which I worked so hard for and have really wanted it for a long time).

I really dont know what else to say and have explained as best I can my problem hopefully for someone to help me or at least point me in the right direction.

Thanks in advance


edit: Oh I forgot to mention, I am a drinker and a smoker. Once maybe twice a week for the drinking, sometimes alot in one night. I smoke about 10-15 in a day.

Last edited by davio2000; 09-18-2007 at 12:50 PM. Reason: More info

 
Old 09-18-2007, 05:53 PM   #2
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janeth62 HB User
Re: High Liver Enzyme and Stomach Pains

Have you checked the symptoms of porphyria to see if they match yours?

[url]http://www.porphyriafoundation.com/about_por/types/types01.html[/url]

I wish you all the luck in the world with finding a diagnosis. Sometimes I think doctors are too busy to spend days and days doing research, so we just have to do it ourselves, but it gets so discouraging.

 
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Old 09-18-2007, 06:55 PM   #3
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td9997 HB User
Post Re: High Liver Enzyme and Stomach Pains

sorry about liver pain! I go for the enzyme test in 2 weeks,

honey ya need to give up the cigs, I gave em up last year, )))
glad I did, cigs get cha no where! ((

take care ! rest! call in!!



 
Old 09-19-2007, 08:13 AM   #4
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Re: High Liver Enzyme and Stomach Pains

if you are having ANY liver issues at all,the alcohol needs to definitely go bye bye.its not helping with your liver problems only exascerbating them,trust me it IS making a difference in how you are feeling.i am suprised that your doc has just let this go for so long.what types of specialists have you actually seen?a good GI doc would be a really great place to start.your billi is being affected,thats not a good thing,what other labs are being affected at this point?have they also checked your kidney labs too?sometimes with certain liver diseases kidney involvement also comes along for the ride,such is the case with me and also my son except my sons was much much worse and required an actual liver transplant back in 2000 when he was only 12.

what types of tests have they done on your liver?at least an ultrasound i hope?this would also check blood flow thru the vessels like the portal vein.if that portal vein becomes obstructed with scarring or some other problem,you will be looking at a whole different story here.trust me,you do not want to go there.when you have actual liver problems,having loose stools is actually kind of a good thing and something they actually try and promote to decrease the overall amount of time the bowels are up againt the intestinal walls and absorbing ammonia which can be toxic to the brain.this of course really depends on the overall condition of your liver and how it is just doing its normal jobs.

you just really do need to be under the care of a GI doc who knows what they are dealing with who can help you to avoid more problems,and prolong the liver life.but honestly,the alcohol just has to go at this point,its too destructive when you have a vulnerable liver,which you do have right now.you just need to find out what your exact condition is and how affected your body systems overall are doing,and of course treatment options.i do hope things get better for you soon.please keep us posted. FB
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 09-19-2007, 02:04 PM   #5
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davio2000 HB User
Re: High Liver Enzyme and Stomach Pains

Thanks for replying I feel like I am actually getting somewhere, people asking me questions that I have never been asked by the doctor before.

I have looked at the Porphyria thing and I called my mum about it but said nobody in family has had it. I have a few of the symtoms, nausea and palpitation (something I have never really thought twice about) but nothing else.

In 2001 I had a liver biopsy and its the worst thing I have experienced in life and would like to stay clear of one of them again if possible. The results where fine.
Oh and ultra sound back in 2001 as well that was also fine.

As for the cigs and drink then yes I know I should give up but honestly I am trying to cut it down, thats a start right?

I would also like to ask another thing as you all have been great and sorry if this sounds a little silly. I have no problem communicating with people like I am doing now but when I go into the doctors I come out later and think what an idiot I should have said this, told him this and metioned that. I think because I dont know what way to tell him as I have no idea what I am on about. What way should I go about it? Maybe write a list and like memorise it? A bit daft I know but I am getting desprate to solve this now as my job is on the line and I cant express how worried I am getting about it.

Oh forgot to say I am at the doctors for results to blood tests on Friday, the same ones he did previously that showed the liver enzyme and billi rubin levels to be high.

Thanks again all

 
Old 09-20-2007, 07:22 AM   #6
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Re: High Liver Enzyme and Stomach Pains

you have the right idea there with the list.just do it,its the only way to be assured you are hitting on all the points you wanted to bring up.i have to do this with my son and myself at all visits.theres just too much to try and remember sometimes.i would very highly suggest that you go out and get some type of an expandable folder thing?then get all of your medical records including any and all test results like labs,ultrasounds that sort of thing and keep everything in that one folder,including the list of questions.then bring this to every single appt you have or any hospital stay or if you have to,ER visit.believe me,i did this first with my son when he was Dxed as being in liver failure then with me after my spinal cord surgery/damage.it saves a ton of time in alot of ways and if you do ever have to go to the ER for anything,you just grab that folder and go,then you have all the latest test results right there with you.this saves a ton of time for the docs and they will also have a lab sheet to give them a baseline to work from.that is really really key in determining how bad or good you are doing based on the comparrisons with the new ones,you know what i mean?anyone who has any sort of ongoing condition just really does need to do this for themselves.it has been soooo useful for me in so many ways just having all my stuff and my sons stuff all in one place.bringing these folders to ever single visit with any treating doc also helps alot when someone was supposed to fax or send over a particular document and they just never did it?i have,many times had to bring out 'my' copy of something so they could make a copy from it,never ever give up your own copies of anything,ever,they can always make one for themselves.you need everything to stay in that folder.doing this is just so incredibly helpful in so many different ways.it really was the best thing i ever did as far as trying to keep track of everything.there is just too much stuff now ya know?

just make a call or ask the receptionist at your next visits about getting all of your medical records copied for you.they have a service that comes in usually once a week just to make medical records copies for their patients.you can also do this all over the phone too.you just really do need EVERY scrap of paper that has been generated on you concerning this ongoing condition.it is also very helpful for you to just read thru all of your docs clinic notes to really see how he feels about your particular condition.you just really do need all this stuff in order to stay as fully informed as possible about your condition and ongoing care or treatment.i have never ever regretted taking the time to do this.i also update things like every six months,but always always get copies of all lab sheets as soon as possible,as well as any other testing results.those you just really need to have the most recent copies of,for alot of reasons.hope this helps.start making that list O questions then place it into the 'new" file you are going to start working on today,K?keep me posted, FB
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 09-20-2007, 05:34 PM   #7
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butrfligirl28 HB Userbutrfligirl28 HB User
Re: High Liver Enzyme and Stomach Pains

I agree with the above suggestions! Take the list in with you. Don't worry about memorizing it. This also gives you a chance to take notes. When the doc mentions long words, or names of meds, ask him to spell it so you can do your own research later. Good Luck!

 
Old 09-21-2007, 02:26 AM   #8
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davio2000 HB User
Re: High Liver Enzyme and Stomach Pains

Well I have just got back from the Docs (with my list ) and he has basically said all the blood tests are the same, hep A B C and all the other letters are negative. He said that its just one of them abnormalities and high liver enzyme will not cause me problems.

And he said as for the stomach it has to be irratable bowel, he said some people get it all the time, sometimes for a week and sometime a day or two. He suggested taking thing thing but I have already forgotten the name, I am sure he said something like buttercops. If anyone can advise me then I would be greatful!

What he also said is if my employer will write to him then he will tell them what it is and that the problem should be sorted thats so long as this buttercop thing works.

I will let you all know how it goes with that.

Thanks all you have all been great


EDIT: The name is Buscopan, have no idea where I got buttercops from

Last edited by davio2000; 09-21-2007 at 02:29 AM. Reason: correct name for that thingy

 
Old 10-03-2007, 03:01 PM   #9
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davio2000 HB User
Re: High Liver Enzyme and Stomach Pains

Well a few weeks down the line and I have stopped taking the buscopan because it seems to make things worse. I have come up with a really good thing and thats my diet, eating a little better than I used to but the main thing that i find works for me are peppermint polos!!! I was told this could work by someone at work and gave it ago, after about half a pack it was great!! I always have them now and seem like its a cure!!! Also I have noted what things I am eating and drinking and that seems to work as well! I used to drink silly amounts of coffee but now I have cut it out totally and that has made a major improvement as well!!

I wanted to let you know because its people on here that have really helped me for the last few weeks!!

Thanks again, a life changing situation for me. I just hope that it stays this way and so long as I keep an eye on this it wont return now!

 
Old 10-04-2007, 04:43 AM   #10
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Re: High Liver Enzyme and Stomach Pains

glad to hear things are getting better for you.just wondering exactly what the heck a 'peppermint polo" actually is??so your labs have been better now too?there is also something called milk thistle?it is an herbal suppliment that you can buy in most drug store/pharmacys or health type stores.this is supposed to work rather well for the liver,haven't tried it myself but have heard only good things about its use.just another thought for you.hope things stay stable for you.please let us know how things are going,K? FB

 
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