I have a 14 month old who has been having unexplained seizures since she was about nine months old. She has had about 8 or so now, and 2 of them lasted for one hour, the rest lasting anywhere from 3 min to 25 min. She is on anti-seizure medicine but obviously it is not helping.
Eachtime she has had an episode (mostly Tonic/Clonic) she has had a chest/head cold, and although she has had a fever during most seizures she did not have a fever for the first two. So I don't beleive the diagnosis of febrile seizures, since a fever was absent during two of them.
She has had two EEG, MRI, Spinal puncture, CAT scan, blood test, stool test and urine test and everything has come back normal???? The are not diagnosing her with Epilepsy because she has had a sickness during all of the seizures and consequencly they are prevoked.
Does anyone have any similar experiences or suggestions as to where to go from here????
I was so happy and sad at the same time to read your post. I'm so sorry you have a baby who's suffering but at the same time, I'm going through the same thing with myself. I'm 24 years old and for the first time in my life I had what they think was a seizure yesterday at work. Apparently I passed out and was completely non-responsive for 10 minutes. My limbs were shaking and my eyes were rolling behind the lids. I'm also currently on antibiotics and an inhaler for bronchitis (I saw you mentioned your child had a cold when the seizures happened) and I had strep throat 3 weeks ago which I've never had. Also, all of my tests (there were MANY) came back normal. With the exception of the sore muscles from all of the tension and the many bruises and sticky spots from the probe things they put on me, I have nothing to show for my day long visit to the hospital. No answers and no guarantee that it won't happen again. I'm going to a neurologist but I'm sure he won't be able to help me either. Please keep me posted as to how your baby is doing. I'd really like to know if you find out what's wrong and maybe I can get some help!
I strongly suggest you both visit the Epilepsy board on this site. Everyone there is very helpful.
There are many people who have Epilepsy but who have a "normal" EEG or MRI. It just happens that way sometimes. It could be because the brain isn't having seizure activity all the time, so the EEG was taken at a time when there was no seizure activity.
I find that my seizures often increase when I'm sick, even if I don't have a fever. Also, for people who already have a tendency toward seizures, seizures could be caused by different cold medications like sinus meds or antihistamines.