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Old 04-21-2008, 10:34 AM   #1
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wednesday76 HB User
very sick for 3 months, cant figure out what is wrong, please help!

Hi everyone,

I don't know what to do anymore. I have been sick for three months, and it seems it isn't going to end. I am very scared at this point. Maybe someone will recognize the symptoms and help me figure it out?

I have been to the doctors endlessly and have an appt with a rheum, an id doc, and a gastro coming up. No one thus far has helped me.

Here are my symptoms:

It started at the end of Jan. when I was feeling very dizzy and went to bed early one night. I woke up with a super high heart rate. Then, flu like symptoms. It never ended.

My head is so dizzy and feels very strange. I can't even think as well anymore for some reason. It's like being "on something" non-stop. Never ends.

I have had a change in bowel habits, was going 4-7 times a day, sometimes just mucus. Still having this problem but not as many times a day.

Feel sick to my stomach, generally flu-like. Just feel like I am really sick.

Muscle weakness.

Heartrate still runs high, esp in the morning. It is 100 resting on avg and goes up to around 120 sometimes.

Chills and goosebumps. I have these awful sick feeling chills most of the time.

I was so weak and sick I was stuck on the couch for about a month during all of this. Felt like I should be in hospital.

Lost 9 lbs during all of this. Loss of appetite.

My head feels awful in a way that is so hard to describe. It's so bad. I as having headaches daily but not as much anymore. Now, just feels bad and out of it. And I swear I just can't think as well as I used to....so strange. This is the worst symptom of all. My regular gp has given up on me. All regular bloodwork has been normal.

They tried to blame it on mono, but the results just showed that it was a past infection (I had mono years ago) and other docs said, no not mono. It def. doesn't feel like that, it's not.

I have had an mri of the head, ct scan of head, chest, abdomen, holter monitor and echo.

Been tested for lyme, and my thyroid (including antibodies), ana, all within normal levels.

I don't know what to do anymore. I am hoping one of these doctors will help me, it is so scary being sick for so long and not knowing what it is.

I was fine before all of this, just fine. Barely ever sick. Then all of a sudden, I fell apart it seems.

I have two kids, a great husband and my life was happy before all of this started. Now I am so sick I can barely enjoy anything. It's awful.

Can anyone help me figure this out?

Thanks for reading if you have gotten this far.

Last edited by wednesday76; 04-21-2008 at 10:38 AM.

 
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Old 04-21-2008, 11:12 AM   #2
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SHARON1952 HB UserSHARON1952 HB User
Re: very sick for 3 months, cant figure out what is wrong, please help!

could you be suffering depresion or low blood sugar did the doc check for low blood sugar i get that if i dont eat properly just a thought

 
Old 04-21-2008, 11:14 AM   #3
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knittygirl14 HB User
Re: very sick for 3 months, cant figure out what is wrong, please help!

I am with you! I had "the flu" in December, followed by weeks of respiratory problems and a strange rash in January. The respiratory problems persist... Now I have to deal with extreme fatigue, dizziness, nausea, thirst, chills, shaking, insomnia, shortness of breath, feet tingling and pain, joint and muscle pain... I am definitely not making this up. I had to miss work, I could not get out of bed for several days. I am having cognitive problems, my vision is all weird. I am on the second batch of lab tests that has come back completely normal. Lyme, ANA, antibodies, like you. I am getting very frustrated.
Especially because my boyfriend, who I live with, and my mother (who I thankfully don't live with), keep saying, "Are you sure this isn't just depression? You're acting just like you did when you were depressed." Never mind that that was a long time ago and has been well managed on medication for over a year.
My doctor had mentioned before that when you rule out all the other diseases, the diagnosis is often Chronic Fatigue Syndrome/ME. So that's probably what I'll end up with, I don't know. I have been reading about it, since she mentioned it. I found a great Canadian site that puts together information from the US, Australia, and the UK to get a comprehensive picture of the clinical case definition for it.
I understand your frustration. I know that may not be what you have, but keep bugging your doctor to look for another explanation. You deserve it.
I found recently a news story about "empowered patients" and one lady says she takes 3 index cards with her to her doctor to help her get organized, where she lists her current symptoms, any questions she has, and I don't remember... maybe something about her medication. I think sometimes coming in with a complete organized list of symptoms might help you and your doctor catch something that she didn't hear or realize before and she might go "aha!" and think of something.
Anyway... there are a lot of great boards here and we are here for you.

 
Old 04-21-2008, 02:19 PM   #4
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wednesday76 HB User
Re: very sick for 3 months, cant figure out what is wrong, please help!

Sharon,
Thanks for posting. I don't think it is depression or blood sugar. But thanks for the suggestions.

Knittygirl,

Thanks for your post. I hope you figure out what is going on with you too!!!


- I should add, that I am feeling much better than I was feeling..the physical symptoms have been letting up some. Not as much muscle weakness, less flu-like...this is why I believe I am sick in some way, some of it has improved.

But the head thing....it's so hard to describe. It's a physical feeling, almost like pressure or something, and waves of this strange feeling. And then feeling "out of it" ALL the time. That never lets up. It's like I'm lightheaded, or "on something" non-stop. It is so awful!!

I feel like I was sick with some awful virus or something and it's settled into my head.

My one eye also feels strange almost blurry like sometimes. And I have deveoped a floater in that eye. No idea if it has any connection.

I know this all sounds nuts, believe me. But something is going on with me. My head wouldn't feel this bad all the time if it wasn't something!

 
Old 04-21-2008, 07:46 PM   #5
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Re: very sick for 3 months, cant figure out what is wrong, please help!

i am going through the same thing. The day after i got back from japan i got really sick, was vomiting, had diarrhea, just not feeling well. I now get a low grade fever every night. This has been going on for almost 3 weeks now. i have had 3 blood tests (all normal), the only thing that was elevated was my sed rate. I have no appetite either and i'm freaking out. I went to a different doctor today and he ran more tests. I have major panic and anxiety so none of this is helping me at all. i hope you get some answers and start to feel better soon.

 
Old 04-21-2008, 07:46 PM   #6
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marnb77 HB User
Re: very sick for 3 months, cant figure out what is wrong, please help!

i am going through the same thing. The day after i got back from japan i got really sick, was vomiting, had diarrhea, just not feeling well. I now get a low grade fever every night. This has been going on for almost 3 weeks now. i have had 3 blood tests (all normal), the only thing that was elevated was my sed rate. I have no appetite either and i'm freaking out. I went to a different doctor today and he ran more tests. I have major panic and anxiety so none of this is helping me at all. i hope you get some answers and start to feel better soon.

 
Old 04-21-2008, 08:13 PM   #7
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tiasmom52 HB User
Re: very sick for 3 months, cant figure out what is wrong, please help!

Probably the last thing you want to hear is a suggestion to go to another doctor, but I'd be finding a really good endocronologist.

I've had some of the same symptoms and had to have a CT, ERCP, MRCP (which I had at the hospital I was in for acute pancreatitis - and I'm not even a drinker!) and specialized urine and blood tests done - they found a small adrenal gland tumor. You'd be amazed what screwed-up hormones will do to your systems.

Check out ***** online and go to their symptom checker. That may help lead you to the correct doctor . . . but don't get nervous about anything you read and don't assume anything. (I drive my GP nuts because I self-diagnose!)

Keep posting so we can keep up with what's going on, and take care of yourself.
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TiasMom

 
Old 04-23-2008, 01:40 PM   #8
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wednesday76 HB User
Re: very sick for 3 months, cant figure out what is wrong, please help!

marnb77 - thank you for posting, and I hope you are feeling better soon too.

 
Old 04-23-2008, 01:44 PM   #9
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wednesday76 HB User
Re: very sick for 3 months, cant figure out what is wrong, please help!

Quote:
Originally Posted by tiasmom52 View Post
Probably the last thing you want to hear is a suggestion to go to another doctor, but I'd be finding a really good endocronologist.

I've had some of the same symptoms and had to have a CT, ERCP, MRCP (which I had at the hospital I was in for acute pancreatitis - and I'm not even a drinker!) and specialized urine and blood tests done - they found a small adrenal gland tumor. You'd be amazed what screwed-up hormones will do to your systems.

Check out ***** online and go to their symptom checker. That may help lead you to the correct doctor . . . but don't get nervous about anything you read and don't assume anything. (I drive my GP nuts because I self-diagnose!)

Keep posting so we can keep up with what's going on, and take care of yourself.
Tiasmom52:

Thank you for posting

I did go to the endocrinologist, and they took blood for metanephrines. They called today and it came out a little higher than the range, so he wants to run the urine test for it. What a coincedence that you posted about that.

I don't think that is what I have, but at this point, I am trying everything!!

Can you please tell me what your symptoms were when you had that?

Did you have it removed and do you feel better? Of course I am curious.

Hope you are well and thank you again for posting.

 
Old 04-23-2008, 01:53 PM   #10
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wednesday76 HB User
Re: very sick for 3 months, cant figure out what is wrong, please help!

Just wanted to post a general update in case anyone wants to know.

Besides the testing the endo is doing (as I said in the post before this to tia's mom)

I went to a rheumatologist, who drew blood for antibodies. I am apparently a medical mystery. She wants me to go to the neuro, cardio again and gastro. Argh.

I have an appt. with an infectious disease doc tomorrow...we will see what he has to say.

Then, I also have a colonoscopy scheduled, (fun) - because not only do I have weird symptoms now, but the gastro didn't like the reports from last year, when I had an intestinal infection. Said it could be chron's or colitis....we shall see. That is in May.

Cardio appt next week. I think the rapid h/r is in response to something though, not a cause or anything. But maybe she can help.

I will schedule the neuro last. The head thing may be a reaction to whatever is going on in my system but I am just not sure. It feels awful. It's actually the worst symptom of all, but I need to rule everything else out first.

Why I have all these things at once, I have no idea. But they all hit me at the same time. It's been a nightmare. I went from never going to to doctor, to having to go all the time, and I hate it. But I need to know what the heck is going on!

Hopefully I will find my answer somehow!

 
Old 04-23-2008, 04:18 PM   #11
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marnb77 HB User
Re: very sick for 3 months, cant figure out what is wrong, please help!

Hi wednesday,
I'm so sorry to hear you still aren't feeling well!! Hopefully these doctors will be able to sort you out once and for all.
I went to a specialist on monday who ran a bunch of tests on me and concluded i have viral gastroenterisist (sp?) This whole mess started for me the day I got home from Japan so who knows. All I know is i want to feel better! This has been going on for three weeks!!
Keep me posted on your progress wednesday.. and feel good!

 
Old 04-23-2008, 07:16 PM   #12
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wednesday76 HB User
Re: very sick for 3 months, cant figure out what is wrong, please help!

Quote:
Originally Posted by marnb77 View Post
Hi wednesday,
I'm so sorry to hear you still aren't feeling well!! Hopefully these doctors will be able to sort you out once and for all.
I went to a specialist on monday who ran a bunch of tests on me and concluded i have viral gastroenterisist (sp?) This whole mess started for me the day I got home from Japan so who knows. All I know is i want to feel better! This has been going on for three weeks!!
Keep me posted on your progress wednesday.. and feel good!

Hi marnb77,

Thanks so much for posting again, I appreciate it.

So good to hear you got a diagnosis!! Maybe now you will start to feel better! Did they give you any meds or anything, or will it just go away?

Thanks again and take care

 
Old 08-11-2008, 04:42 AM   #13
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Nexis HB User
Re: very sick for 3 months, cant figure out what is wrong, please help!

Knitty,

Did you ever find out what the cause of your symptoms where/are?

 
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