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Old 06-24-2008, 03:54 PM   #1
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Do I have any reason to feel betrayed?

I have been having regular mammograms for years and have always received a report back from my doctor that they were normal and to repeat in a year. I had another one done on 04-24-2008. They called me back for a coned down compression view. This was done on 05-14-2008. Then I was called back for an ultrasound exam. This was done on 05-29-2008. This time the phone call was to inform me that a biopsy was recommended. An appointment was set up to see the surgeon and I was told to pick up copies of all reports and xrays to take with me.
This brings me to my question. I was shocked when I started reading the reports. The report states: A bilateral mammogram was preformed on04-28-2008. There is dense tissue bilaterally. There is one density in the retroareolar region within the left breast. This is probably benign and is unchanged since March of 2007 and even November 2005. However, I recommend a coned down compression view of this area at this time. Did my doctor know about this spot in November of 2005 and withhold the information from me? Or was she kept in the dark just as I was? Does the radiologist not always report what they see and just monitor it for 3 years before reporting it? There is alot of cancer in my immediate family and I feel betrayed but I am not sure by whom. Any ideas????

Last edited by grandma_bev; 06-24-2008 at 03:57 PM.

 
Old 06-24-2008, 05:48 PM   #2
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Re: Do I have any reason to feel betrayed?

It sounds like at very least you deserve to know who did not inform you of your situation.

If I were you I would come out and directly ask my doctor if he knew about this and if so why weren't you told. If he did not know I would find out if the radiologist definetly sent him the results. I think if you keep asking questions you will get the answers you are looking for.

Hope this helps!

 
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Old 06-24-2008, 06:17 PM   #3
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Re: Do I have any reason to feel betrayed?

Maybe it wasn't noticed the first time. It's unfortunate, but sometimes films are just read wrong. And the second time? When a radiologist looks at a mammogram, and sees a suspicious spot, the first thing he does is pull up the last one, see if it's new. If it's unchanged in a year, it's nothing to worry about.

Why the stress now? Maybe it's a different radiologist, who takes a slightly more aggressive view.

However, do ask, just to set your mind at rest.

 
Old 06-24-2008, 06:32 PM   #4
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Re: Do I have any reason to feel betrayed?

I am scheduled for surgery July 1st to remove the tumor. I had pre-admission testing done a couple days ago. I think when I ask for the lab results I will also ask for copies of the mammogram reports for March of 2007 and November 2005. I am the type of person that believes everything happens for a reason but if this biopsy shows cancer, I'm not sure if I can believe this was God's plan and not man's. I have so many emotions washing over me at once that I am not even sure how I feel, but I feel as if I have good prospects because I am having an angel do my surgery! I found out when I went to see the surgeon that his first name is Gabriel.

 
Old 06-24-2008, 06:39 PM   #5
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Re: Do I have any reason to feel betrayed?

I will pray for a good outcome from the biopsy. The fact that it looks similar to 2-3 years ago is a good sign, however.

 
Old 06-24-2008, 06:51 PM   #6
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Re: Do I have any reason to feel betrayed?

Jane,

Thanks. Your answer would sure explain alot. More than likely that is exactly what has happened. I love and trust my doctor. She is the type that would rather err on the side of caution. I don't know why I am so stressed now. I am trying to think positively but my mother and baby sister are walking around in tears and I find myself trying to comfort them. I told them that I have not been told anything bad yet but you know how it is when you have lost so many to cancer and now someone else is facing the possibility. We have lost our dad, one sister and a brother all to cancer, and two other sisters had cancer but beat it.

 
Old 06-25-2008, 02:59 PM   #7
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Re: Do I have any reason to feel betrayed?

Grandma Bev, I just wanted you to know that you will be in my thoughts and prayers. Please keep us all up-to-date concerning your surgery and after. I have had numerous scares but none led to a biopsy. I did, however, have one mammogram center tell me that they wanted to do the additional compression to take a closer look at a place that had been on a previous film. It was nothing BUT nothing was mentioned to me at the previous mammogram concerning a problem. I was shocked. I think that many times they must just watch areas. Regardless, I believe I would have wanted to be told ESPECIALLY if there was cancer in my family. In my case, I'm adopted so I have no idea.

Prayers to you.

 
Old 06-26-2008, 12:40 AM   #8
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Re: Do I have any reason to feel betrayed?

I want to thank everyone for their prayers and support. I picked up my reports today and asked for copies of the two earlier mammograms that I had not seen. They both were negative showing nothing abnormal. I felt relief. I can except human error. Lord knows I am anything but perfect. Later I went to work and received a phone call from my (angel's) surgeon's office. She said that they would be unable to do my biopsy without a clearance from a cardiologist. She said my EKG appears to show that I have had a heart attack. What a blow that was! Needless to say I am about to loose my mind. Many times in my life I have been sick to death with worry about someone else, but never this scared for myself. I feel so helpless. Just waiting for the next bombshell to fall.

 
Old 06-27-2008, 05:16 AM   #9
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Re: Do I have any reason to feel betrayed?

Doctor's office agreed to let me take another EKG at a different hospital to possibly rule out problems with machine giving a false reading in first one. They called back and told me the surgeon said he would go ahead as previously scheduled Tuesday, but that the second EKG came back borderline. She said the only thing that would stop us now was possibly the anesthesiologist after he was the EKG, but we would hope not.
Saw a church sign on the way to second hospital that said " Our Lives Are in God's Hands Not Ours". You will never know what a stress reliever that was for me. I thank God for the mysterious working in my life.
Bless all who read this board and are there to support each other. Whether it be advice or a quiet prayer, knowing others care and have been though whatever we are going through now means the world. Thank you.

 
Old 07-01-2008, 02:58 PM   #10
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Re: Do I have any reason to feel betrayed?

My biopsy was this morning. Everything went well. The doctor told my husband that he tested and it was benign. I only have mild discomfort in my breast. Actually what hurts the most is my sore throat from the breathing tube. I go back in two weeks for full report and until then I am off work. Thanks for all the prayers. There is no greater power.

 
Old 07-01-2008, 03:31 PM   #11
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Re: Do I have any reason to feel betrayed?

Three cheers for a good biopsy result!!

 
Old 07-01-2008, 08:52 PM   #12
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Re: Do I have any reason to feel betrayed?

Congrats Grandma Bev! I am so thrilled that you got back a great report! That is awesome news!!!

 
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