I am a 23 yr old female and for the past 2 1/2 years I've had a variety of symptoms. I've gone through multiple tests but still no diagnosis. I feel that perhaps the wrong tests are being done and my doctor is missing something. I am posting in hopes that someone might recognize my symptoms and be able to point me in the right direction.
-chest pain- its like a tightening feeling that lasts for a few hours a few times a week.
-Extreme fatigue- Normal everyday activities are very hard for me
-Muscle spasms/cramps- I pull muscles very easily, even a small turn of my body strains my muscles
-Numbness/tingling in extremeties- this is also accompanied with my feet turning purple and my hands get red.
-Swelling of wrists and hands
-Ear pain, tinnitus, fullness and drainage- I have also noticed that I never have any earwax in my ears.
-Runny nose- this happens sporatically, my nose will just leak clear fluid for a minute or so and then it dries up. This happens about 3-4 times a week.
-Upper G.I. pain- this is localized to my upper right side. After eating I get pain everywhere in my abdomen and this is followed by a migraine headache.
-Fainting- This happens about 2 times a day, sometimes more.
-Vision changes- I see a few spots which are present all the time, its like there is something dangling in my eye. My eyes swell a lot and overall i find it hard to focus my eyes on things.
-memory loss- I forget what day it is, where I put things, I even forgot where I lived a few times.
-skin problems- This is a new symptom, I've started getting ingrown hairs everywhere that are very itchy. I've extracted many and in one hair follicle there are 4-5, hard white hair- like things in there, after extraction, yellow goo comes out that has black things in it. It's pretty gross but its the only thing that relieves the itching. I also get red spots all over my body a couples times a month, it lasts for a day or so then clears up.
-Hair loss- I have no bald patches but my hair is thinning, clumps of hair fall out in the shower and after I brush my hair.
-I don't know exactly how to explain this next symptom, it just started happening about 2 weeks ago.. everday I get this feeling in my whole body like something is moving throughout my body and causing extreme fatigue, I can actually feel something moving inside of me starting from my head making its way down to my toes. As soon as this happens I need to lay down. It is very wierd but I've noticed that getting in the bath is the only thing that relieves it. I lay in the bathtub with my whole body submerged in the water, only my mouth and my nose out of water.. I'm in there for about an hour or more. As soon as I get out I feel better for a few hours and then the feeling returns.
- Sleep problems- With all these debilitating symptoms, it is very hard for me to sleep at night. I wake up covered in sweat every morning and I have very vivid, surreal dreams. I get about 6-7 hours of sleep everynight.
- Weight loss- I have lost a total of 20 pounds in the last 2 years. My weight has fluctuated throughout this time. I'll put on a few pounds in the times I'm feeling a little better and when I go through the more serioius bouts of my illness I tend to loose the gained weight plus more.
Here are a list of the tests and the results, also specialists I've seen:
Tilt table test- Positive for vasovagal syncope, I was givin instructions on how to lessen the syncope. However nothing helped.
Cardiologist- wore a heart monitor for 30 days, sinus tachacardyia and arrythmia were found. Still awaiting follow up appointment.
MRI of brain- I had this done in 2006..small lesions found in subcortical white matter. Nothing was done after this.
Blood tests- thyroid was normal, glucose tolerence test- normal; in other blood tests I had low potassium a few times, low blood sugar a few times and low liver enzymes. D-dimer test for blood clots came back positive however, nothing was ever done about this.
Endocrinologist- Cortisol test done, it came back normal.
Dermatology- I was givin antibiotics for skin problems, however they are still present.
G.I.- I've had a colonoscopy, a little bleeding was found in colon, a biopsy was taken and it came back normal. I was givin meds for IBS and that is all that was done.
Multiple sclerosis specialist- doctor wasn't suspicious of M.S. after routine tests, so he didn't even look at my MRI.
Nuerology- The doctor did the routine tests (standing with my eyes closed, hyperventilating, reflex tests) and had me do another EEG, all together I've had 4 EEg's done and all have come back normal. I saw 2 nuerologists and neither looked at my MRI or suggested that I have another one done. With both doctors I saw them both for a total of 5 minutes. Each doctor seemed uninterested in my symptoms.
ENT- did hearing test, came back normal. Doctor said nothing is wrong.
I have taken my own measures to trying to get healthy, such as a healthier diet, homeopathic remedies, etc. I feel like I take very good care of myself and I wish it were that easy to blame my problems on an unhealthy lifestyle. I'm trying to find a new primary care physician because it seems that she has givin up on trying to figure out what is wrong with me and she doesn't take me seriously.
I really don't know what to do anymore, I'm a pretty optimistic person but I am getting more and more frustrated everyday that I cant have a normal life. I hope that someone recognizes my symptoms and can help me out. Any insight or guidance would be greatly appreciated.