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Old 01-07-2009, 05:40 PM   #1
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curlylox13 HB User
symptoms but no idea what way to turn

Just wondering whether anyone can point me in a good direction or experienced similar as me and knows some possible reasons…

Basically when I was 11 ½ -12 I came down with a virus. Drs thought it was ross river or glandular fever but test results always came back clear. I had shocking pain in my stomach and ultra sounds found it was mesenteric adenitis (swollen gland saying body did have a virus). After that I started getting shocking migraines and did a elimination diet with a naturopath indicating possible dairy allergy (sinus congestion and stomach pains). I always ate limited, or even no dairy during teenage yrs.
Ive been to the dr so many times its not funny. Each time with a different complaint and always diagnosed with something new. So far I have been told it has/could be:
Lactose intolerance
Food intolerance
Food allergy
Hypoglycemia
mesenteric adinitis (did have ultra sound again at 23 and showed swollen gland once again)
virus
stress
migraines

I suffer the following symptoms. Not all at the same time but usually one then the next then another, its never ending.
- bloating
- rumbly stomach
- diarrhea (lately I get home after work and its like water - been doing this 3 weeks now)
- headaches
- sinus congestion
- stomach pains
- feeling I need to release gas
- fatigue - constant tiredness
- body aches and pains and sometimes weakness

Im taking beta blockers for migraine prevention. And started taking multivitamins to try give myself energy. I don’t feel like eating lately and have no energy. It goes through stages , ive done this for the past 4 or so yrs. My brain gets foggy and i feel lethargic and generally awful. but then there are times where i feel so much better without really changing anything. Ive had plenty of blood tests but all come back clear (except sometimes fasting test shows low sugar). Sorry this is long but if anyone has any opinion or who would be good to go see about such symptoms it would be great. I love my dr but sometimes he tries treating the main symptom and thinks otherwise im a young healthy girl (24 yrs old), as I come across free spirited and happy (always been that) but sometimes just feel so crap!

Thanks guys

 
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Old 01-08-2009, 05:24 AM   #2
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Re: symptoms but no idea what way to turn

You mention food intolerance, have you been formally tested for Celiac Disease? Celiac blood tests (called a Celiac Panel) measure your immune system’s response to gluten in the food you eat.

tTG-IgA or tissue transglutaminase-IgA
AGA-IgG or Antigliadin IgG
AGA-IgA or Antigliadin IGA
Total IGA

The first one tTG-IgA, if positive, is highly suggestive of Celiac. The AGAs can be elevated in wheat allergy as well.

Total IGA can rule out the possibility of a primary immune problem, like Selective IGA deficiency. People with this disorder may have no symptoms, or may have recurrent problems with infections of the sinus, lung, stomach, or urinary tract.

Mesenteric adenitis usually goes away on it's own - both Celiac and/or Selective IGA Def can cause these glands to remain inflamed, even after the viral illness is gone.

Last edited by AuntieLeela; 01-08-2009 at 05:26 AM. Reason: clarify

 
Old 01-13-2009, 04:04 AM   #3
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curlylox13 HB User
Re: symptoms but no idea what way to turn

hi,
thanks very much for your response. I decided to see my dr who got me to have a blood test for coeliac disease, will soon see if its that. i wasnt aware there was an actual blood test for this as no one ever told me so thanks for informing me of this! at least i know if it comes back clear it may be more lactose intolerance or IBS so can focus more on controlling that. its been so awful lately i cant even eat as i know afterwards i normally react and feel poor for the rest of the day.
thanks again!

 
Old 01-13-2009, 04:53 AM   #4
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Re: symptoms but no idea what way to turn

I agree - my first thought is to get yourself on to a gluten free diet. It is not too difficult these days; it is a healthy diet, so you don't really need to be under any supervision for it, and could be just the thing. Look up the celiac and gluten-free sites on the web, there is heaps written out there. Good luck, Sera.

 
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