I'm new here, but I am sure you get a lot of threads like this, so terribly sorry.
Here's my story. I'm 18, female, 5'7, 180 pounds, and I have asthma, PCOS and migraines - and I am allergic to penicillin. I have a family history of type II diabetes, high blood pressure, mental illness, irritable bowel syndrome, and rheumatoid arthritis.
Ever since I can remember I have been spraining my right ankle because it gives out on me all of the time, and now there is quite a lot of scar tissue there. In 2004 I developed a ganglion cyst on my right wrist, and although the cyst left in 2006, I have always since had an aching pain in the wrist. In october of 2008 I developed transient joint pain and mild swelling in my both of my wrists, my thumbs, and the first two rows of knuckles on all of my fingers. By january I also had pain in both hips, my right knee and both ankles. at the thing is the pain, swelling and redness jump around in all of the joints I mentioned. some days I have relatively little pain and swelling, others I have pain and swelling in just a few joints, and yet other I have pain in all of the above mentioned joints. If the joint is re and swollen, typically the joints throbs and burns inside, and feels like there is jello molded around it and that it is really hard to move the joint through the viscus jello. If there is no swelling, then the pain is a dull, annoying, but bearable ache.
So my sent me for blood work, and X Rays of my ankles and wrists. She checked my iron, vitamin d and b12, sed rates, c-reactive protein, rheumatoid factor, and ANA - all of which were normal. The X-Rays were also normal, but she re3ffered me to a rheumatologist anyways. The rheumatologist checked all of the above things again, which all came back normal, plus she checked for HLA-B27, which came back positive. She also did a bone density scan, which looked normal, and an MRI of my SI joints, which also looked normal. She then diagnosed me with fibromyalgia, told me to loose weight and do stretches, because she couldn't help me. I went back to my GP who disagreed, and now we are waiting on another rheumatologist. We disagree because I do not have widespread pain, I do not have muscle pain, and because I DO have swelling.
I am taking diclofenac, 50mg, 3 times daily which helps some.
I was just wondering if anyone had/has or knows someone who does, the same symptoms as me, if you received a diagnosis, found a treatment that helps, etc.?
I am just so frustrated of not knowing what this is. I am in so much pain!
Thanks for your help, and thanks for reading all of this if you made it through,
I started out liek this and got the same diagnosis. After years of fighting and researching, I found I also have a mild (yeah right) case of Hashimotos Thyroiditis. My joints never got red, however, but the pain I had was like a flu type ache you get when you're sick. It usually started in my shoulder and seemed to slowly travel down to each joint, then it would spread across to the other side of my body. I had it for about two years and I do ALL the fibro treatments everyone recommended, the medications, etc. Losing weight didnt seem to matter but after the two years of being in so much pain, I gained back what little I lost and have been gaining pretty much ever since.
What is your diet like? I know I did a lot better (no where NEAR normal though) after I cut out ALL soda, even diet. Since you have a fam history of diabetes, there's a good chance you are already not metabolizing insulin properly, which I personally believe is somehow related to PCOS. Lots of women (not all) reverse pcos when they lose weight, which in turn also can reverse insulin-resistance (pre diabetes). So, I'm just going to stretch and say they are most likely related. Also, do you smoke? At the time I had this pain, I had been smoking for years, BUT I had also increased my smoking by a whole pack (went up to two a day) due to very high stress. Smoking and soda both lower lots of nutrients, including B12 and potassium.
Personally, I would LOVE to get down to your weight, and if you are comfortable with your body and fitness level, I wouldn't pin all the problems on the weight. However, if the food you eat is very unhealthy, change it for the right reasons. I would recommend having yourself checked for Lyme's Disease, get a pcr urine test. I would run a b12 and potassium, if your doctor will do that. Some dr dont think it is necessary and some insurances wont pay for those things to even be tested. If that's the case, take sublingual b12 tablets if you smoke or are a vegan or vegetarian. I hope I help you some.