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Old 01-18-2011, 01:37 AM   #1
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philrobinson1 HB User
very worried, please reply

hello,

i have really unusual symptoms which are making me increasingly worried. i have very strong and weird pressure like feelings in the left side of my head, especially behind my eye and also in the back of the head going down my neck. I also get these weird nerve/pressure sensations in my left wrist, hand and also fingers on my left hand. i'm also getting the same sensations down my left leg to my foot. they all range throughout the day in severity, but are almost always there.

I was suffering from the same thing just before christmas and was so scared that i had something seriously wrong with me i spent loads of money on a private neurologist and an MRI scan of my brain and spine. the doctor emailed me saying that my scans were fine.

I used to smoke cigarettes and pot quite extensively from around the age of 17-24 (stupid, i know) and in the last couple of years have pretty much stopped but still sometimes smoke cigarettes (especially with alcohol).

Over christmas these sensations stopped, and have only come back after one smoking cigarettes again. I'm never going to smoke again!

I'm just really concerned that something serious is wrong with me...any thoughts? I don't wanna keep going back to the doctor.

Thanks,

Phil Robinson

 
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Old 01-18-2011, 05:25 PM   #2
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littlehutton HB Userlittlehutton HB Userlittlehutton HB User
Re: very worried, please reply

Hi Phil

I'm in the UK too, about 1 year ago I was experiencing very similar symptoms to what you are describing, unfortunately for me after many visits to my GP and numerous specialists, I remained undiagnosed, and all my test results were always negative.

Your post struck me because I used to smoke, and when I did it would exacerbate my symptoms which puzzled all of the doctors and me.

I eventually gave up on the NHS after 10 months of nothing more than a diagnosis of depression, and started to do my own research, when I stubbled upon Lyme Disease. I had actually been tested for this previously 3 times on the NHS, but I soon learnt that testing for this disease was very disputed and unreliable.

Eventually I managed to find an LLMD in the UK (lyme literate medical doctor) and was retested and evaluated and was diagnosed with Lyme in November 10. I have now been on treatment for 2 months.

There are many things that could be contributing to your symptoms, I am obviously not a doctor, and am not suggesting that you have Lyme Disease either. But I just wanted to relate my story, and perhaps suggest that you could visit the Lyme board, and make some enquiries there too. I do hope you find some answers soon.

Best of luck

 
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Old 01-23-2011, 05:02 AM   #3
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philrobinson1 HB User
Re: very worried, please reply

Hi, thanks so much for your suggestion. I've also recently developed a terribly sore throat and tongue, still just on my left side...would you say this is an extra symptom of lyme disease?

and if it lyme disease...is it life threatening?

thanks so much for your reply!

 
Old 01-23-2011, 12:45 PM   #4
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littlehutton HB Userlittlehutton HB Userlittlehutton HB User
Re: very worried, please reply

Hi Phil

Im afraid to say that sore throats are a very common symptom in Lyme, I have had one for 18 months!!!!

Lyme can be life threatening in very severe cases without treatment, however please do not panic, as this is extremely rare.

Did you manage to see the list of symptoms on the Lyme Board? You could also look at the Burasscano guidelines which also contains an in depth symptom list.

Best of luck

 
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