Hi.. I'm new here. After a month of health problems and obsessive online research, my brother (who also suffers from severe anxiety) recommended I jump on a message board.
Here goes. First off, I'm a healthy 23 yr old female.
Exactly one month ago I noticed I had a headache that lasted all day. It was a dull ache that sort of started on the sides and radiated almost to the top of my head. The reason I noticed this was because I never get headaches unless I'm menstrual or extremely exhausted. A few days later I realized I still had the headache. I wouldn't wake up with it, it would just get worse throughout the day. After a week of the dull headache I noticed it change. It was concentrated on the left side of my head and it hurt when I moved my scalp or laid on that side when I went to bed. My anxiety was running high so I went to the doctor (not my normal gp) and he said it sounded like a tension headache. He prescribed Naproxen. He also said that I gave him no reason to believe I need an MRI. I left for Hawaii the next day and after a sequence of traveling disasters and worrying about leaving home with the headache, my anxiety was out the roof. The anxiety gave me new symptoms that scared me even more and I eventually had an attack in the bathroom of a restaurant. Everyone was telling me my headache sounded nerve related and that I should just see a chiropractor.
The day I returned from Hawaii I saw my normal gp and told him about the headache. He touched my head and my neck and said the muscles are tight so they are probably pinching a nerve. He prescribed some Ativan for the anxiety and Flexeril for the muscles. I decided to go to a massage therapist and she said I was extremely tight in the neck/back region. A few days after the massage the pain on in my head subsided a little but the back of my eyes felt extremely bruised.. I was outside a lot and started seeing floaters, too. Just another symptom to scare the crap out of me.
I saw the chiropractor twice and got another massage... Nothing has really worked. Head pain still there, but eye pain was gone.
By this point I had thought about brain tumors and aneurysms.
I started doing research about a week ago and scared myself into thinking I had Leukemia. I was a hysterical mess and demanded a blood test. I noticed my fingers hurting and swore it was joint pain from Leukemia. I was severely anxious and depressed to the point of missing work. The CBC came back perfect on Wednesday so I was relieved... Until yesterday. As the day went on my ENTIRE body started to hurt. Pain radiating from forearms to fingers, upper back, lower back, quads, knees, shins and toes. My calved are extremely tight and painful, too. Some people told tried to tell me it was from stress or it was in my head, but there is no way either are possible.
I went back to the dr to go over the CBC and I was hysterical in his office telling him how my entire body was in a lot of pain... It even felt like my organs were being affected. He pushed, prodded, asked questions and admitted he really didn't know what it could be. Encephalitis? Virus? Who knows... I thought maybe early stages of Firbomyalgia. I had more blood taken and went back today to get some Savella (for Fibromyalgia) and the nurse told me my CRP levels showed inflammation.
I go home and research high CRP levels and what do I find? Heart disease, autoimmune disease, cancer... I'm already terrified about cancer so this just added fuel to the fire. The nurse didn't seem overly concerned about the CRP levels, so should I not be overly concerned either?
The headache was already scaring me and now my entire body hurts. I feel like even my organs are hurting. I'm waiting on health insurance so I don't know what my next step should be.
Sorry for the novel, I hope someone has some experience with one or more of these symptoms....
I haven't been tested for that... My dr asked if I recall being bit by a mosquito or tick and I don't. Never had a rash or found a tick on me. From what I've read, though, almost half the people infected didn't even know they were bit.
Where can I go to get this tested? I can't take another day of this pain and crying.
You can just go to your primary doctor and ask for the test. I don't remember if you are on pain meds but you may want to consider something. I have fibro and it's makes such a difference for me. Keep us posted!
Talk about frustrating! I called my dr office and spoke to another nurse about getting testing done. She asked why I believed I had Lyme and I told her a number of symptoms plus the crp levels. She said my crp levels were just fine.
I asked her to read off the levels and everything appears to be normal.
I feel like I'm at square one again. Mr dr doesn't believe I have Lyme but ordered the labs for me. I won't be able to get in this week so I feel like saying screw it.
Also, last night I started to feel like the back of my throat is numb... and like there's a numbness in my chest. I was freaking out that not enough oxygen was getting to my brain and I was scared to fall asleep. Woke up this morning and have the same feeling.
It is taking EVERYTHING inside me not to go to a hospital and get everything figured out.
I wanted to give a little update and also say thank you for the reply!
I called my dr office and said i wanted the lyme test. The nurse asked why I thought I had it. I told her a few of my symptoms and that I was told my crp levels showed inflammation. She pulled up my labs and said that the blood work did not show any inflammation and she doesn't know why I was told this.
Basically I feel like I'm back at square one. I am convinced this is muscular as my headaches seem to by caused by extremely tight scm muscles and scalenes. However, every muscle in my body appears to be tight or painful.
I so desperately want to see a neurologist but without insurance that's never going to happen. I'm so scared about what's going inside my body
I feel like I've jumped from self-diagnosis to self-diagnosis... I've gone through at least 5.
I still haven't been tested for Lyme, but I have a plan for that down the road.
Over the weekend I pulled myself out of depression for a few hours and visited a friend I hadn't seen in a few weeks. While we were hanging out I suddenly got an intense radiating pain in my left pelvic area. I thought for a moment it was just another pain in my body, just another thing to add to the list... But when I stood up I got extremely dizzy and sweaty and nearly passed out. When I calmed down a bit, I drove home (down the street, thank god) and had my brother take my to the hospital (no insurance, can't wait to see that bill!)
It seems I had an ovarian cyst rupture, but there's no way to tell for sure. I was told to see my gp to do a follow-up and possibly schedule more tests to be done. I was able to see my gp on Monday and after going over what happened, he asked how I was doing otherwise. For pretty much the 20th day in a row, I broke down and told him I was worried about the random body pain I still have. It's not nearly as bad but it's still there. I asked him if he thought I should get a referral for a neurologist and he told me that he truly believes that I internalized an extreme amount of stress, anxiety and depression and it had manifested into my muscles, tendons and ligaments. He wants me to continue the Savella for the next 3 weeks and if I'm not feeling better by then, he will write the referral for me.
I mentally felt a bit better after that... For the first time in over a month I spent the day thinking about something OTHER than "OH MY GOD WHAT DOES THIS PAIN MEAN? AND THIS ONE? WHAT'S KILLING ME?!"
I also had my jaw lock up a couple days ago... So my next stop is to get TMJD checked out. It made me wonder though if everything truly is connected. TMJD can cause/be caused by tight neck muscles. And I've been grinding my teeth to no end with this anxiety. But from what I've read about TMJD is that it can affect so much. I wonder if the pain throughout my body is caused by my upper and lower back being tight and stressed. Since my jaw cracked, my headaches have been pretty bad. I had a small cry-fest a couple minutes ago because I'm sick of feeling like I've been hit by a truck every day.
Still waiting on insurance so I can get an MRI to make sure that there's nothing too serious going on with my brain and nerves.
Any thoughts on this? Is it possible for stress to really cause pain in random tendons and ligaments?? Muscles, I understand... But I don't know. And that's the worst part.
I just reread your original post. About 2 yrs ago I suffer from excruciating headaches and had spots on my scalp that were so sensitive that it hurt to wash or brush my hair. The headaches were usually one sided. No medication helped at all. I too convinced myself of the worst...as I always do. I saw a neurologist who said I suffered from occipital neuralgia (sp?) It is 2 nerves that run from the bottom of your neck up past your ears and behind your eyes. When inflamed it created terrible headaches and eye pain. I also had shooting pains up the sides of my head...it would stop me dead in my tracks. He wanted to put me on neurontin (a nerve medication) but I said no due to a possible weight gain issue. ( I am already 25 lbs overweight) I saw a chiro regularly for a month or so and it went away. When it comes back I know to go to the chiro. He explained that it can happen from having your head pushed forward from being propped up with pillows reading or watching TV. I too have a terribly tight neck and shoulder muscles and recently found that I clench my teeth during sleep and it has resulted in TMJ and terrible headaches. 2 visits to the chiro and I have been good for about 10 days. Gotta go back soon. I was diagnosed with fibro last fall. I again refused medication. My depression and anxiety has gotten so unbearable that I decided to try cymbalta. Cymbalta is very good at treating depression, anxiety, and nerve pain.It does not have the weight gain side or sexual side effects that the others do. I have been on it for almost a month and I can say that the depression "fog" has lifted and I have had less pain. My anxiety is not gone but has lessened.
I have spun myself into very dark places and have decided to to be a victim of this anymore and am going to do everything in my power not to live under a dark cloud.If I could offer you a piece of advice it would be that I think your first step in all of this is to get the anxiety and depression under control asap. This is not the only blip in the road of life and if there is an anxiety issue you owe it to yourself to live without it! You also need to be thinking clearly to be a good advocate for yourself. I too reached out on this board when I was first diagnosed and was mourning the loss of who I used to be. A woman on this board gave me a very interesting new perspective on my situation. She said that she did not view herself as a victim but as an adapter...interesting. We can not control what happens to us only how react. My heart goes out to you...please believe that this is not forever! You will come out on the other side of this a stronger person. Please keep me posted!
I appreciate your responses more than you know. I definitely think the depression and anxiety got the better of me. I'm definitely working on getting it under control. Sometimes I'm doing real well, then the next day I'm back to feeling helpless and hopeless. It's a bumpy road but I know I'll be okay.
I definitely need to get to a neurologist as soon as I can. I have crazy pain in both my arms. It literally is a pain in my triceps, elbow and forearm. I feel like I have arthritis in my fingers. Maybe a nerve issue in my neck/upper back? I'm trying to do the whole "mind over matter" thing and tell myself this is just stress related. But I'm sure there's more to it. Even parts of my legs hurt.
I'm a 23 year old male going thru the same symptoms for almost a year now. Primarily the headache in the back of my head that won't go away. I think you need to focus on the fact that the first symptom was your headache, which came out of no where and didn't leave you- exactly the same way it happened to me. Believe me anxiety can cause a whole lot of other pains in the body. I've had sinus surgery, wisdom teeth removed, MRI, CT scan, etc. Nothing helped. So what I'm saying is, don't waste your time with that, maybe an MRI would be reasonable.
I figured I had TMJ so I went to a specialist and he said no, but you have developed forward head posture. Which basically puts a constant strain on your neck and shoulders, and the occipital nerves. These nerves are right underneath the bony bump in the back of your head. Push on those and tell me they aren't sore. I've been focusing on keeping my posture perfect and my neck back, and doing chin tucks to try and stretch the neck muscles.
I've been doing physical therapy and massaging the muscles back there and have shown slight improvement so far. If all else fails I may try a nerve block. Do you sit at a desk for work, hows your eyesight, does it cause you to jut your neck forward to see better?
Anyway, you need to dedicate yourself to something to get your mind off it for a few hours of the day at least because I know you probably think about it all day long like me. I workout everyday now and eat perfectly, almost a sacrifice while I am in pain so that when i come out of it, I am going to feel and look like a million bucks ya know. It's miserable I know but chances are you are just another healthy 23 year old like me who is just unlucky to develop a chronic issue like this.