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Old 11-06-2011, 01:17 PM   #1
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Doctors can't even seem to help with this...

I'm posting for my mother. She had kidney failure a few weeks back in October, and they managed to get her system back up and working again. A couple weeks later, she was suffering from a lot of pain and was sweating a lot, and despite drinking lots of water, felt really sick and unable to move around without feeling dizzy. She went back to the ER and they said she was suffering from dehydration.

She went back home and has not been able to sleep since. She is suffering from insomnia and can't even sit up without feeling dizzy. Whenever she tries to walk, she is overcome by dizziness and almost blacks out. She has a strange taste in her mouth and no food tastes right to her, her body rejects everything she tries to eat.

Her touch/feeling is altered, all fabrics feel moist to her and she thinks that her blankets and clothes have not been dried properly after washing, but they're very much dry. She has trouble speaking now because she hasn't slept in so long, her eyes are dark and she can't get out of bed.

She can't eat, can't sleep, and is very dizzy if she tries to sit up. She feels pain everywhere, is nauseous all the time, has a bit of a cough.

What could be the cause of this?

No doctor seems to be able to help her or even has much to say. She's had doctor's appointments recently but can't get out of bed to make them without falling over or the fear of passing out. She still drinks a lot of water and is able to urinate, so we don't think it's kidneys again. A nurse mentioned endocrine problems, but I don't see how.

Last edited by Allie Bee; 11-06-2011 at 01:21 PM.

 
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Old 11-07-2011, 09:35 AM   #2
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Re: Doctors can't even seem to help with this...

just what exactly caused her kidneys to fail(the very specific reason)? knowing this would help alot. have they done recent labwork just to fully know about ALL of her ongoing organ functions and metabolics? what meds is she taking right now and for what specific conditions? she is also running a rather higher risk of developing pneumonia if she is having to be that sedentary from symptoms she is suffering too. something to watch for.

if she cannot actually even get to her doc appts(esp when it is being prevented due to strong symptoms), they seriously need to get her back into that hospital just to try and figure out her underlying problem(s) with more specific types of testing they can just "do" in that hosp. there just IS NO other way to be able to see how she is actually doing if she cannot even manage to get out of her bed to just 'get there" at all to what i am assuming were/are follow up appts, ya know what i mean? they simply NEED to know how she is doing NOW, not back in oct.

and depending upon the real underlying reason she actually suffered ANY level of actual kidney failure, it usually is not 'over" completely, as far as the overall kidney "impact' goes anyways. it all depends upon how her overall kidney function just is now and what may also have become damaged during the initial failure and what her body went thru on its WAY TO full failure too. and any other potential contributing factors/medical issues.

the fact that she is having ANY real problems speaking and combined with her more "altered' sensory issues really DOES need some scans of her brain along with the other blood lab testing too at this point. 'something' is simply not at all right with her and the cause/reasons simply need to be found out. when the kidneys are not working up to par, which i am assuming is her case, despite the fact they are 'working' it does not at all mean they are working as they should when it comes to also filtering out ALL toxins. this would also include certain meds as well. they DO need to figure out just how much good kidney function she has at this point. the creatinine and the GFR(glomular filtration rate which should be above>60 at LEAST) are the main kidney labs to look at for as far as how 'much' function is going on in her. if there just are alot of toxins built up since you realistically do not have a real clue right now as to where that is with no labs having been done becasue she has not been able to GET them done, it CAN alter alot more than you might think in a person. how has her liver functions been?

i would seriously call her primary since he knows too that she has not been able to make her follow up appts, which after what she suffered with her kidneys really ARE critical to make. because it is her actual symptoms just being what they are that are preventing her from even getting to him, he NEEDS to at the very least, get her readmitted for some really in depth testing. something is just way 'off' in her that NEEDS a good diagnosis. and EVERYTHING just needs checking into, even that possible endo angle. when it comes to the human body, quite honestly, anything just IS possible. at least that has been my overall experience personally and just reading thru sooo many different posts here over the many years i have been here.

but she DOES need some testing and an admit, and very soon. i would speak to her doc and except nothing less than getting her admitted for tests, seriously. good luck with this. FB
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Old 11-07-2011, 09:57 AM   #3
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Re: Doctors can't even seem to help with this...

We were thinking of changing hospitals, since the one she has been going to, her last visit they treated her like a drug addict and did very little with her. Because of her lack of sleep, she slurs her words, and whenever she tried to explain things, they seemed to ignore her. They ran urine and blood tests and simply told her dehydration was an issue and to drink more water, and discharged her.

As for her kidneys, she was originally diagnosed with a bladder infection and so she was on antibiotics and drinking a lot of water. Suddenly she started having symptoms, she was very tired, thirsty a lot, had a strange taste in her mouth, and one day she drank so much water and was not able to urinate at all. The entire day she could not go, even when she tried. She started swelling and her back hurt a lot, so we took her to emergency and they said it was kidney failure. No one ever said why or could understand what happened. She was in the hospital for three days at that time, staying in a room, and was on an IV drip and catheter.

She was returned home after being able to drink water and go on her own without the catheter. However, my mom says that the only time she has been able to have a good night's sleep is when she was hooked up to the IV drip. Ever since being discharged, she has not been able to sleep properly. Now she can't even eat, as everything tastes bad.

As for medications, in the past she took Tramadol for pain, she worked a very laboring job on her feet all the time and had back problems. She stopped taking the Tramadol after her kidneys went out. She has thyroid issues so she takes Synthroid once every morning. That's the only medication she takes, and the doctor prescribed her 5mg Ambien for sleep, so she's been taking one a night, but it's not really helping.

She doesn't have any other medical issues I'm aware of, but our family has a history of diabetes.

Also, when her kidneys went out, they ran a few tests and she even had a follow up with different doctors and had a CT scan, blood tests, urine tests. She says no MRI or x-rays, that's all I really know. Nothing really came back either.

Thank you so much for your response, it's good to hear some concern. We're planning on going to another hospital tomorrow, on my day off. I'm going to our family doctor later for myself, but I'm going to mention my mother and why she's missed her appointments too.

 
Old 11-08-2011, 10:01 AM   #4
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Lightbulb Re: Doctors can't even seem to help with this...

Hi Allie Bee,

Sorry to hear about the persistant issues with your mothers health!

As important as it is to consult with your family doctor, if their recommendations do not seam to be working I would suggest adding some alternate therapies like chiropractic adjustments and a change in diet.

It seams like her immune system is compromised from past illness. If she is having difficulty sleeping it will make it more difficult to boost her immune system so that should be addressed. Search online for a list of things you can do to make her more comfortable at night, sometimes it can be as simple as a dehumidifier in the room.

Tramadol is an opiate, so depending on how much and for how long it was taken she may be experiencing long term withdrawal effects. A diet rich in vitamin D, vitamin C and taking a supplement of fish oil may help boost her immune system to overcome this.

Good luck and good health to you!

Last edited by petersmit; 11-08-2011 at 10:57 AM. Reason: spelling mistake "withdraw" = "withdrawal"

 
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Old 11-11-2011, 11:47 AM   #5
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Re: Doctors can't even seem to help with this...

Well it's been resolved. After taking her to the ER at another hospital, they treated her seriously and admitted her for a few nights. It took a while but they've diagnosed her with Addison's Disease, explains the adrenal issues and her sudden illness. They're working out how to treat her now, still admitted for the next couple days.

Thank you so much for your help! The last hospital had nothing to say and it could have been much worse if no one paid attention.

 
Old 11-12-2011, 05:31 AM   #6
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Re: Doctors can't even seem to help with this...

I'm glad she's getting treated, and I'm glad she has you to look after her.

 
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Old 11-12-2011, 07:16 AM   #7
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Re: Doctors can't even seem to help with this...

a big ditto on that. i am soo glad you took her to another hosp allie. there can be a HUGE difference in overall treatment depending what particular hosps you go to, esp when having to go thru any ERs. alot about how any individual gets "treated' also depends upon the overall knowledge and experience of the ER doc in charge there too(and of course just how really busy they are at that particular time). sorry it took me so long to get back to you, been dealing with my own medical crap and catching up here too.

i am happy to hear that at least they DO have a good solid dx for what has been pretty much torturing her. they are also working out a good care plan ansd STILL have her under their care til they feel she is stable enough to go back home, and NOT just kicking her out of the dang hosp like the other did? that is how any given patient just 'should be' treated. always remember when anyone gets admitted to any hosp, they DO or are supposed to get a lil brouchure that also lists any and all patient rights too(sometimes there is a copy of this sitting in the very top drawer of the nightstand in any given hosp room too). most hosps also have what are called patient advocates now as well that are there strictly for the patient and the family of the patient in just assuring the best possible care, and help with any questions also getting answered. do NOT be afraid to use these people if needed in the future. unfortuently i have had and my son has had to be in wayyy too many hospitals over the just the past 12 years or so, and you kind of HAVE to learn alot, sometimes very quickly.

one thing that i would do here(and also continue to do at least once a year from any new docs and even her primary too) is get ALL of her test results and any doc notes(every document that is in whats called her 'central medical file"). it should contain everything done having to do with her hosp stay and any copies of tests and docs 'impressions' about what 'they feel" is her main underlying issues too.) get EVERYTHING contained in that file from esp that other hosp(you NEED to find out exactly why they Dxed her being in kidney failure and what her actual kidney labs were too. i CAN help you with the labs. i unfortuently have both a kidney and liver disease) and made from her visit to the "new and improved and actually helpful" hosp she is in now as well too once she is discharged. finding out what was actually stated by that first hosp and esp comparing that experience to this one will also show you how seriously they actually took her symptoms and complaints along with hopefully finding a true reason as to the Dx of kidney failure as well. that is NEEDED info for HER medical records that once in your/her or your moms possession can be brought to any future specialist appts that may be made for her down the road and esp if she should happen to have to go to the ER again. keeping all those particular records in their own folder really helps when you need to see other docs, and esp in an emergent situation as well. i would hope you would be going to the 'good' hosp, but sometimes its not convientient depending upon what may prompt a more sudden ER visit too? so you bring the 'comparritive' labs and any ongoing test results that you ALSO need to keep getting copies(you just have to ask or she needs to ask her doc for any copies of any test results to be copied for her at that visit or at least a copy sent in the mail once processed) of to place in HER personal medical file. i had to start doing this with my son first, then myself once all my crap hit the old fan as well. it seriously saves time and gives any docs working on anyone that really needed 'baseline' set of the very last labs or particular scan results as well. its just always a really good idea to gather, and then keep on gathering anyones own medical info, esp with some form of confirmed Dx. just some stuff i thought you should know about allie.

obtaining any hosp records can all be done by simple phone calls to the hosp medical records dept and the mail. but the actual patient is the only one who can sign the release of info form(unless someone else has actual legal rights as power of attorney over ALL that patients medical decisions, then THEY sign it), then send it back to GET the records sent. but VERY simple to obtain.

i do believe we now also have an "addisons' forum in the "A" section here too that may help you with particular questions you may have that can be asked of the people who also are dealing with this too. i DO hope that they finally have things figured out for her and will be able to send her back home with a good plan in place for treatment, and soon. i personally would love to know just how she ended up with the kidney failure Dx and just what her overall labs were then too. if she had an actual bladder infection(could have been much more indepth than they first thought too), 'something' could have first blocked utreters, then caused the urine to back up into the actual kidneys called hydronephrosis? there just can be many different reasons for kidney failure to occur in someone that has never actually had kidney issues before. and then there are people who DID/DO have some types of kidney disease processes that no one really ever knew about since only labs are usually done on most organ function that will NOT actually change in the overall numbers until a very specific level of real damage has been done TO that organs functions. thats just how most basic labs just are or work. good luck with everything allie and do let us know how things are going. FB
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Old 11-12-2011, 07:59 PM   #8
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Re: Doctors can't even seem to help with this...

Thank you so much for the feedback. My mother signed release forms so that the hospital she is in now has all of her medical records from the other hospitals. Keeping all of the paperwork together is a really good idea, especially since she will have follow-up appointments and anything else in the future hospital related, it's good to have everything on hand. I'll keep that in mind, thank you.

They think the kidney failure has to do with the Addison's Disease, being adrenal-related, it was like a precursor to the main issue. What shocked the doctors at this hospital is that despite the kidney failure, they only had her admitted for two days and as soon as liquids were being passed, they discharged her. They insisted something as serious should have been given more attention and further testing, as they did not come back with any known cause for the failure and yet they still discharged her within two days. After that, when she came home, her problems only increased.

This hospital has been really great and fortunately for us, they're closer to where we live and it's easier to get to. The room she is staying in is beautiful and she's having the best care. They're keeping her longer and monitoring her symptoms and putting together a treatment plan. I feel a lot more taken care of here and I kind of had a feeling since arriving to the ER a few days ago, how seriously they took everything and listened to my mother's explanation.

I visited her today and she's starting to look a lot healthier, moving around better and speaking clearer. She's sleeping better now too, and eating normally. I'm so glad that we took her to this hospital, because she really was in desperate need of medical attention.

For anyone who lives in Arizona, John C. Lincoln Hospital is where she is staying. Our family doctor is associated with them so we decided that it would be easier for the two to exchange information and to receive support by going there. They have a few hospitals in the state and are really great.

I'm sorry to hear about your son's consistent hospital trips and your own difficulties with kidney and liver disease. I hope all is well and you continue to receive the best of care and assistance. Thanks so much for the support!

 
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