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Old 06-25-2012, 04:40 PM   #1
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tired of feeling like a hypochondriac lots of health problems

Hi, I am trying to get to the bottom of what is wrong with me and I am hoping someone can point me in the right direction/what questions to ask my doctor etc. I am 32 next month, a 2 time Ovarian Cancer survivor (been cancer free for 14 months.) I was diagnosed with Valley fever April 13th of this year. It was pretty bad, I had double pneumonia and a titer of 32 so to make a long story short I have been on antifungals since and my titer is 8.
But, for the last 3 weeks I have been having multiple symptoms and my insurance is taking it's own sweet time on the referrals, (so sick of specialists when my problem covers a lot of areas. It started with some mild neck pain which got worse and is about a 5 on the pain scale. a bad headache and tremors in my hands and fingers, drop things easily, pain behind eye and sometimes when I move my eyes,mild to moderate nausea but no vomiting, nausea, and some shortness of breath. I have lost about 5 pounds in the last month which isn't super alarming except my diet hasn't been the greatest and with all the fatigue I have been feeling we have eaten out/ordered in a lot. Today I had some slight chest pain like I had when I had pneumonia and slightly short of breath today I also just noticed what feels like a bulge (hard to tell because I am borderline morbidly obese and fat sometimes has a lumpy texture) so I scheduled an appointment with the gynocologist (he did my cancer and previous hernia surgeries) I have an appointment with the valley fever specialist this thursday and I see the oncologist for my six month checkup in a couple weeks, and I have a primary doc appt sometime this month ( have to check ) Now the valley fever doctor thinks even though it is presenting atypically it is possible I have fungal meningitis and I am waiting on a referral to get a spinal tap. I had a negative CT without contrast June 1st and have neck and lumbar MRIs Scheduled. I went to the E.R.June 1st when the symptoms were just starting out and they tried to make me believe my symptoms were a migraine and hyperventilating. I am calm, not freaking out just trying to get info and it is frustrating to not be taken seriously. My neck always hurts unless I take pain medication, the rest comes and goes but seems worse when I am sleep deprived and the symptoms are most of the time now. Sorry for writing a book (if you feel overwhelmed reading this, imagine how overwhelming it all is for me! lol) I really appreciate it if you got all the way through this. I just wanted mostly some emotional support and any ideas, things I should press the doctors for (not the best at challenging doctors, I figure they usually know best...) I have a family and responsibilities and it is so hard when you feel so bad. I need to know what is wrong with me. Thanks.

 
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Old 06-26-2012, 03:01 AM   #2
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Re: tired of feeling like a hypochondriac lots of health problems

It sounds like your Dr's are doing a good job of checking things out, and with your upcoming appt's, you should be getting some answers. The only suggestion I might have would be to get the MRI of brain and neck, since you are having significant headaches, tremors, dropping things. You didn't mention where this bulge is-are you thinking you have a hernia from ovarian surgery, or is the bulge elsewhere? It sounds like you have good Drs and will know more soon.

 
Old 06-26-2012, 08:38 AM   #3
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Re: tired of feeling like a hypochondriac lots of health problems

Oh, I forgot, I am thinking it is a hernia. It is at navel level to the right. I guess what I should really say is I am frustrated with E.R. docs, my specialists have always been helpful, just hard to be seen in a timely manner usually. I will have 1 doc tell me to go to the E.R. and the docs there have this overall attitude that I am wasting their time. Anyway thanks for reading my rant. I was going to mention the brain MRI to my primary care, already scheduled for the neck.

 
Old 07-01-2012, 11:29 PM   #4
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Re: tired of feeling like a hypochondriac lots of health problems

so far the spinal tap was negative so tomorrow is the MRI. I do feel some better (except this fatigue and still a bad headache.) Trying not to dwell on the pain and not let whatever is wrong run my life. I am more worried about not knowing for sure what is causing the symptoms rather than the symptoms themselves at this point as long as it doesn't get worse.

 
Old 07-02-2012, 01:53 AM   #5
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Re: tired of feeling like a hypochondriac lots of health problems

It sounds like your Dr's are doing a good job of checking things out, and with your upcoming appt's, you should be getting some answers.

 
Old 07-02-2012, 06:15 AM   #6
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Re: tired of feeling like a hypochondriac lots of health problems

Hi MissLissa, sometimes when I have come up with medical problems I have found it caused by certain medications I was taking. I have found so many times problems I was having, and never put two and two together until seeing others symptoms for the same medication. I was taking Prilosec OTC almost a year ago, and ended up having tingling in my hands and feet and found out I wasn't the only one. I have seen a lot of medicines that can cause bad headaches, neck and joint pains. It might be a long shot, but it might help to look them up. I really hope you get to feeling better. I know what it's like to feel so terrible and know something is wrong with you, but the doctors can't find it. Keep being persistant about your health, I was, and we finally found out what was wrong, and got it fixed.

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headache, neck pain, shortness of breath, valley fever



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