Sierraaxle

Hi, i've been reading ur messages for a week or so and i am blown away how many people many can not get proper treatment in 2012!! So heres my story: since Nov of 2011 i've been going to dr's ranging from rheum, neur, gastro, gen surgery, u name it, i've been there! I've been told i have gluten issues, lactose intoler., livedo reticularis, IBS, anemia, vit D def, in 2008 dx w/ raynauds phen, in 2003 dx w/ CMV, arthralgias, and i am sure there is more! But the strange thing is the dr's do not listen to things i tell them, here are some of my symptoms: sores on my head, hair loss, net-like rash on abdomen, legs & arms, skin hurts to touch (horrific pain), abdomen bloating, IBS, raynauds on & off, muscle spasms, extreme fatigue (showering is terrible for me too), my migraines are 10x worse than normal, eyes hurt & real dry all the time, i get overheated & a rash when in the sun - have for yrs, and those are just a few things! After nothing has been making me feel better i started researching on my own, typed in my symptoms and lupus came up, but rheum dr's say no! However, other dr's say yes..... I do not know who to turn too anymore and meanwhile i am just getting worse.... Way worse!
Any Advice? I am typing this from my phone so i am sorry if errors appear, just fyi! I am at my wits end and my husband is too! Its affecting my home life more than ever, pls help! Thank you for your time!