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Old 06-10-2014, 11:32 PM   #1
Busymomto3
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Join Date: Jun 2014
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No diagnosis yet

I am new to this board, but hoping someone can shed some light on my health issues. I suffered optic Neuritis March 2013. A brain scan was done and found 4 brain lesions. I spent last summer going through so many tests trying to rule things out. A lot of possibilities were ruled out, but MS was neither ruled out or confirmed. My neurologist only says that he is leaning towards that possibility, I had a second bout of optic neuritis this past December. He felt that we should repeat an MRI in 6 months. If there are new lesions, he wants to start medication for MS. If there are no new lesions, he will continue to monitor every 6 months.

My followup appointment is next week. I have so many symptoms that I suffer with, but am not sure if any is relevant to this. I don't want to go to his office like a crazy person with a long list of complaints. My newest symptom is tingling between my shoulder blades. I feel like I have had this before, but I have been suffering with this a few weeks now. I started jotting it down, its almost daily.....some days it acts up for 10 or 15 minutes a couple of times a day. There have been some days where it lasts longer. I don't think I have ever had leg weakness, but my legs go to sleep a lot. I did tell him this symptom, but it doesn't seem to concern him. I often have a strange sensation in my legs when I sit that makes me have to move them around, it is so aggravating when it starts. Have any of you experienced any of these symptoms?

I cancelled my MRI because my insurance is TERRIBLE and all the testing ended up costing a lot out of pocket. The thought of incurring more debt to not get a diagnosis is unappealing. However, now I am wondering if I should not have cancelled the MRI. Can it really change in just 6 months? Would you follow through in repeating the MRI in just 6 months? It's discouraging, it's been a year and a half and I still have no answers. Did any of you feel as frustrated as I do? Thanks for Listening!

 
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