I have no one to talk with about this. I was hoping to find someone here

My son has been in and out of hospitals since the day he was born he is now 12 yrs old. And finally a few months ago he was diagnosed with having a deletion of the 15q 13.2 and so subsequently I was tested and now as of yesterday I was notified I too have this. Although I don't have as many symptoms as my son. It is still very frusterating, I feel as if im to blame for all his problems because I didn't know. I don't know hardly anything about this. And noone I talk to seems to care.Anyone out there with any info or a place where I can find information or anything would be greatly appreaciated. Thank you in advanced.
Rhonda