Alright, here's a weird one
... Anyone who has had this or has advice, please let me know...
Anytime I touch my head, just to adjust my hair, brush it, etc. it's hurts very badly. Have you ever left your hair up in a really tight hair do for way to long and when you take it out your whole scalp/head hurts? That's exactly what it feels like. It gets more and then less intense.
This had happened before and about two weeks following I started losing quite a bit of hair. I went to a specialist who gave me rogain and so topicals but nothing that helped much.
I beleive, as do all my doctors, that this is caused by the betaseron. However, they have never heard of a case similar to this. To test (I know, bad idea) I skipped my shots for two weeks. Immediate improvement. No more painful scalp, no more hair loss. I went back on it because I know the medicine is more important than the hair (just wanted to test before making any decisions), and within a week the scalp pain is back and i'm sure it'll only be a few days before the hair starts falling out.
I was already considering switching to copaxone in the relative future, and this is helping to sway my decision. But I know the betaseron is supposed to be stronger, and my neuro doesnt think the copaxone will be strong enough for me. Hair lose and scalp pain isn't a reason to switch, I know.. but it's pretty darn persuasive!
Anyone have any ideas or advice?