hair loss and RSD - Hair Loss / Alopecia Message Board

numbing hands · 11-20-2007, 06:59 PM

Hi All,
I have experienced excessive hair loss for the past few weeks. I mean a lot of hair in the shower and sink and floor. I am afraid of being bald very soon as i have thin hair to begin with. Is this resulted from RSD or something else? What can be done?
I appreciate some feedback!
Take care and happy thanksgiving!
Anita

Gaollan · 11-20-2007, 08:05 PM

Well, some good news for you! I have thin hair as well and my hair has been falling out since soon after RSD started and I'm not bald yet! LOL

It is because of RSD and sometimes certain meds have that as a side effect as well compounding the problem, and the really bad news is there's nothing you can do about it.

I am only taking a pain med and baclofen so I know it's not meds causing it for me. My hair loss began when I was not getting anything for pain or anything else. It's now been 4 1/2 years for me and the hair loss has gotten worse but I still have hair. I'm still hoping to get a lousy extra $20 one week to go get my hair cut really short like I used to have it to minimize the "mess" I deal with everyday and all the hair falling out. I have to brush my pillow because so much hair gets on it. I have to vaccum 2-3 times a week now because of all the hair that gets on the floor and I literally have handfuls of it when I wash and dry my hair. I only do that only once a week because my hair is still the only oily part on my body and my scalp starts to REALLY get painful when it gets a bit "dirty". That is another RSD thing cause it never happened to me before RSD.

So, it's not just you and it does suck. *Big Hugs*

Hugs,

Karen

skelly03 · 11-21-2007, 09:30 PM

Hi,

Don't have much info for you but I too am having hair loss and am afraid before long I will be bald!! It is very depressing washing my hair and seeing how much comes out or even just running my fingers throu it I will get more then I want to get back

My PC dr is running a Thyroid pannel to rule the thyroid (spelling?) I was also told that some of the meds can cause thinning of the hair, thinning I can handle bald hmmmm I have to think about that not that I'm getting a choice here

! Sorry I'm not more help but you aren't alone!!!

Hugs

Shannon

judiev331 · 11-21-2007, 10:29 PM

I started by loosing the hair on my arm (first site) As the RSd progressed so did the hair loss. I did not have a single hair from the neck down. Then the hair on my head started showing up all over my cloths & pillow! I'm thankfull I had a really thick head of hair! So, for the past ten years I've been waiting to wake up bald. Not yet. Amazing. No reasqson found.....yet.

Judie

rayefaye · 11-22-2007, 07:58 PM

I'm sorry to hear about everyone's hair loss but I know what all of you are going through. Before I was diagnoised with RSD, I suffer from severe hair loss, in fact it seem like one side had quit growing. I had little red bumps all over my scalp and it would itch and feel so tight, I couldn't even think straight. I use to have real long, thick red hair and then it was gone. I even had to cut it real short and there was a bald spot on the top of my scalp and there seem to be this flaky kind of white crust on my scalp. But luckily enough for me since I was diagnoised and started medication for it my hair has started growing again and my scalp is now better. In fact, my daughter was just saying the other day that hair is starting to get thicker and longer. I just so grateful to have hair again because all my life my hair has been long and thick.