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Old 08-05-2008, 10:07 AM   #1
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littleopihi HB User
help with hairloss

i am a 32 year old female and have been losing my hair for 2 years now. they have done EVERY test in the book from two scalp biopsies to double stranded DNA tests... everything came back normal. but still it falls =( so finally my doctor decided to take me off the birth control... i've been on the bill for 9 years now and not the same one. i'm hoping that that may help something since it was the only medication i'm on at all... she said that sometimes BCP's can sync all the hair follicles and thus causing mass amounts of hairloss. i don't know what to do! my hormones are all in normal ranges and yet they decided to try spironolactone just incase it was female pattern alopecia. but i don't want to take that if i don't have to. my scalp biopsy the first time said telogen effluvium and the second said it could not differentiate between telogen effluvium and hereditary hairloss. i don't know what to do!! does anyone have any ideas? thank you so much!

 
Old 08-05-2008, 01:49 PM   #2
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Re: help with hairloss

This is just a thought-even if all your hormonal tests are "within range", you might want to be retested-find the best endocrinologist that you can. It's possible you have too much testosterone, which can lead to hairloss. Don't assume that even though you're young, your hormones won't act up now. Good luck to you.

 
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Old 08-19-2008, 02:55 AM   #3
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Re: help with hairloss

How did they test your hormones and what time of day?

I used to get a blood test done and they never told me when to get it done. My results always came back normal. Only when i did a saliva panel test which spanned from 6am to 10pm did i get a true result which showed my hormones were messed up.

A lot of doctors are also good at saying test results are "normal" or "within range". Be careful there. Unless you know where you ought to be when it comes to ranges for various things you will end up in trouble if you have a doctor who simply thinks "within range" is normal. I kept having that told to me for a number of things and had hair shedding for 7 years. Finally i found a doctor who took me seriously and knew what he was on about and it was a thyroid problem all along.

With you being on the pill for a while then coming off it and experiencing hair loss, i've heard and read of that happening to other females too. With hormone imbalances it takes time for things to settle and hair to begin growing again.

Lastly, what is your ferretin level (iron storage) at? A lot of people have low ferretin and their doctors thinks it's normal.

 
Old 08-21-2008, 05:13 PM   #4
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Re: help with hairloss

thank you guys so much for your response! i did actually INSIST on seeing another endocrinologist finally... we are in the process of ordering more hormone, thyroid, vitamin D and iron tests... hopefully this sheds some light on something. at this point i'll take any answer as long as it sheds some light on why... it's been very hard, lately i've been depressed and not wanting to go out of the house other than to work of course. Audrey, you'll have to tell me since you've been shedding for 7 years, did you have any bald patches? did you get really thin all over? i'm really thin now... although my pony is the a bit bigger than a sharpie pen most people probably don't notice unless i point it out i think i may still get a lace front hair piece so i can feel better about myself until we figure out some answers. the endo does not think it's female pattern baldness with no baldness in my family at all, no high testosterone, no acne, no oily skin, no excessive hair anywhere at all, no high DHEA... nothing. infact i was taking an anti-androgen for almost a year now (just incase it was due to testosterone) and using rogaine and still it was falling out... i'm sure tho, it could totally be exacerbated by stress, infact i'm positive it is because this whole thing is stressing me the heck out! i'm trying not to, but i can't help it. a year ago my ferritin was 40 and dropping cuz i wasn't eating much protein for years... in march i finally got it back to 71 and i started to see many new hairs growing but still not enough to keep up with the shedding. i was wondering also was yours a steady fall or did you have periods where it was TONS? i seem to have a few months where it is just handfulls and then it'll go back down to 50 a day or so... frick this sucks =( thanks for listening!

 
Old 08-25-2008, 05:24 PM   #5
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Re: help with hairloss

Good to hear you are getting more testing done and seeing a new Endo. With the iron test, make certain they include FERRETIN. Often they do iron testing, but exclude the ferretin if it's not specifically mentioned. Lucky you were able to boost your ferretin to 71. It takes 3 - 6 months, or for some 12mths, to notice proper hair growth phase if it's due to low iron.

My hair was shedding all over informly, but i did notice right at the front centre area that it was definitely thinning. Why wouldn't it after 7 years worth of shedding at the moment of have loads of baby hairs everywhere, even in the front, but i know it will take ages to truly see major results, but at least there is sign of hair growth as i was so worried about folicles dying and no more hair growing out ever.

All my hormones testing was done first thing in the morning and was done via a saliva test. I also was tested throughout the day, but that was more so for my cortisol levels to check for adrenal fatigue, which you can develop after long term stress among other things.

Not sure whether you are on birth control pills? If you are, maybe the hormone testing can get a bit skewed as a result of the pill, but i'd think your doctor would have taken that into account?

My hair was shedding big time all year around, except for the coldest 2 months of winter for some odd reason. As soon as the warmer weather began i noticed it shedding more and more as we got closer to summer. Then during the summer months it broke my heart to see how much hair i was losing.

I read on the thyroid board that if your TSH goes up and down and doesnt stay constant that that will also contribute to hair shedding.

I have a book at home called A - Z of Nutrients and i was looking up something and came across Protein and how lack of protein or inability to digest protein leads to anemia and hair loss among other things. That is part of my problem, i eat lots of protein but wasnt digesting it due to lack of enzymes.

It's difficult and you need a lot of patience. At the end of the day it has to either be either iron, thyroid, hormone, birth control pill or digestive related. I haven't come across other things, but i'm sure there likely are other things, but those would be the most common ones.

Let us know how you got with your new doctor and new test results. all the best

 
Old 08-26-2008, 12:13 AM   #6
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Re: help with hairloss

hey! thank you so much for your response... so i had blood tests on saturday and i have to admit i'm a little down =( my ferritin is now 43... in the beginning of june it was 80 (up from march at 71) the only difference is the doctor took me off birth control and i switched from regular vitamins to the floridex iron from the whole foods store... so no more whole foods iron for me! and interestingly enough i eat a lot of meat... so honestly i can't understand why it took me a year to raise my ferritin and two months (in which my diet is much better in iron) why it's dropped so quickly... AND... i also notice that the WORST sheds i'm having seem to be when the ferretin is low... so frustrating. i posted my results in the anemia board also for more ideas...

and yes i got the cortisol tested and it was 14... so that seems to be okay... my TSH goes between 1.2 and the lastest at 2.7... i'm willing to bet the newest shed is due to stopping the birth control nightmare and the ferritin... i'm so peeved right now i wanna just cry! i just wish i could know how and why the ferritin went down so quickly =(

Last edited by littleopihi; 08-26-2008 at 12:19 AM.

 
Old 08-27-2008, 04:47 PM   #7
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Re: help with hairloss

There has to be a reason why your ferretin drops that way. As you are aware, there are a lot of reasons for ferretin dropping, but pin pointing what is causing your ferretin to drop can be difficult.

Are you low in other things besides ferretin or do you have difficulty raising other things?
As you know, for me my ferretin, Vit D and iodine will not stay up unless i take supplements.

How is your B12? a lot of people with low B12 find they cant get their ferretin to stay up.

Have you been tested for gluten intolerance. People with full blown celiacs or even gluten intolerance with no symptoms find it difficult to absorb nutrients from even a healthy diet. I came out as being slightly on the gluten intolerant side. My doctor has advised me to either cut out all gluten or only have minimal gluten products.

I was speaking to someone in a similar situation to yours, only her ferretin is in the 50's and she doesn't take supplements. She also came off the pill to find massive hair shedding. She ended up in hospital to remove endometriosis andi think she said she had some cysts too. Her doctor believes her hair loss could be due to the endometriosis. She has also changed the type of pill that she is on and she is learning not to stress as the additional stress she feels over the hair loss wont be helping matters.

Personally, if it were me, i'd be going off the pill and waiting till the pill was fully out of my system. I would then have full hormone testing again. Do you need the pill for birthcontrol or other menstrual issues? are there other options you could use for the time being?

I know your lowered ferretin wouldn't help matters, but if your hair wasn't falling out as much with a higher ferretin then try to get your ferretin up again. See i thought just b/c i ate enough red meat and a healthy diet that my ferretin should be fine. Finding out i wasn't digesting protein adequately is one reason why my ferretin was so difficult to raise. Has your doctor looked into your digestion and whether you need digestive enzymes? If you check out 'malabsorption' on the net you will find loads of information relating to poor digestion of key things like protein, fats and carbohydrates.

For your thyroid, did they test for thyroid antibodies, T3 and T4? or was it just TSH? My figures were out, but not drastically out and nothing to get worried over, yet when they finally tested for antibodies they were sky high and pin pointed where my problem lay.

Well keep persevering, but at the same time you need to mentally distance yourself from what is happening with your hair. I know that is super difficult, but additional stress is what you don't need. You also need to know that even if things get corrected it will take months to see results with your hair. So it's not worth stressing over something which could be in the process of fixing itself. Your stress might actually be hindering progress.

 
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