Okay, here is my story...
26 yr old female-
My mother has Lupus, sister Crohns, and several uncles have intestinal problems. Yesterday I went in for a colonoscopy and upper endoscopy because I have been having strange symptoms for over 2 years- severe diarrhea, stomach cramps, nausea, and vomiting, extreme hair loss (about 50%), body aches, headaches, fatigue, dizzy spells, and tooth decay. My blood tests have shown that I am severely low in calcium and iron and this is why the doctor assumed I may have Crohns or a malabsorbtion problem. Well, after the colonoscopy yesterday he said that my colon, stomach, and all looked normal and that I would now have to wait to see the results of the biopsies. I am very confused as to what else could be going on with me and really want to get my symptoms taken care of as soon as possible. He did say that I may need to have another exam where he gives me a pill/camera thing to swallow (don't remember the name) that can take pictures of my small intestine to make sure that there is not a problem there. Does anyone have any advice, ideas, or suggestions? Some of my symptoms are strange and I would like to know if anyone else is suffering the same thing. I am currently living in France and want to be sure that I am having the best treatment possible, though I do feel that the doctor I am seeing is very thorough. Another thing I should add is that I was diagnosed with PCOS- Polycystic Ovarian Syndrome, about 4 years ago and take multiple meds for this- Glucophage, Spironolactone, Mircette, and then Paxil and Xanax. Would any of these meds be causing such symptoms. Thanks bunches for any info...
I got my blood results back today, but still have to wait for the biopsies from the colonoscopy. Trying to get an appointment with the doctor to get these interpreted, but thought I would post them to see if anyone understands-
eosinophiles- high at 14%
total iron binding capacity- high
coefficient of stauration of iron- low
globulin alpha 1- high
globulin alpha 2- high
globulin beta- high
globuline gamma- normal
globulin A\G ratio - low
Hi, I'm 32 yr old/female diagnosed w/ Crohn's 2 years ago. Misdiagnosed for probably 3 years. The fatigue and hair loss are both signs of an auto-immune disorder, but, it could be from the one you already have, although from what you've written it sounds an aweful lot like Crohn's. The dizziness can be from low iron levels or from your anti-depressant. So can the fatigue. Paxil can sometimes do that. I'm not familiar w/ your other meds, only xanax and paxil. Bought a GREAT book that lists all the psychiatric drugs and there side effects. You might want to ask your "shrink" about Effexor. It's a new anti-depressant or Lexipro. They make you feel more awake, but could worsen the anxiety. I found that the Effexor helped w/ diarhea too. I have heard much about the new pill that takes pictures, but, they definitely need to look at your small bowel, cause that's where most Crohn's patients have their promblem. You might want to suggest a CT-scan too. That's how they found my Crohn's, and I find it to be less of a hassle than other tests. If you have any ??'s, feel free to contact me.
Hi Frenchie! I recognize the drug spironolactone.
It is a diuretic and side affects can be nausea, vomiting, and gastrointestinal disturbances.
I have no actual experience with it because I was told I could not take it while using another medication I needed more. The other med. was a diuretic too. I experienced dry mouth, dry skin, weight loss, & some gastro. problems.
Thanks so much for the replies! I am still so confused as to what is wrong with me. The doctor has not been able to see any abnormalities in my intestines with the colonoscopy, endoscopy, and then the pill camera. All appears normal, but my blood work and stool samples are not. So far I have been diagnosed with malabsortion, and fat and mucous in stools. My blood results show inflammation. Still waiting to see what else. He says that it may just be the very beginning of Crohns disease. They told me that my medicines should not be causing the malabsortion, etc. Right now I am waiting for some more blood results to see what the next step will be. Anyways, I am still constantly tired and my hair loss is depressing. Just this morning I noticed a semi bald patch on the back of my head. Have been getting vitamin shots and using Minoxidil so hopefully I will start to regrow.
Luvinlexi, I am curious to know more about how you are being treated and if your Crohns is under control. Did you have malabsortion and hair loss and was the doctors able to help you?
Hi Frenchie: I have had Crohn's for 6 years now - two years undiagnosed. It is so hard to find and the only way they found mine was doing what they call in Canada an Upper GI Series where you drink this awful dye and then they take xrays and can then find any narrowing in the small bowel caused by imflammation. I had the dizziness, weakness, painful diareeha, weight loss and malabsorption problems. I have to have a B12 shot once a month cause they took out this part of the small bowel that absorbs this important vitamin. I never had hair loss but believe this could definately be from malabsorption. Keep going back to doctors to have more tests on the small intestine since this is where most Crohn's is found. Good luck