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Old 08-07-2012, 11:13 AM   #1
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Telogen Effluvium Recovery

Hi Everyone,
When I first started obsessing with my massive hair loss I would spend hours researching it online and reading everyones stories trying to find one like my own. Since there is a lot of stories about people who are still struggling I found it hard to not see anyone who has had recovery and promised that once I had calmed down I would post something in order to give hope. I started shedding at the beginning of May massively. It really scared me so I went to the doctor. We had figured out it is because I has switched from Yasmin to a mini pill. I was on the mini pill for 2 month and just like clockwork after 2 months my hair started shedding. I would say I lost at least 1/3 of my hair. It has now been 4 months and I do think the shedding has decreased. I still have some days where I am not sure if I am just getting used to it or if its actually slowly stopping and I do notice that I am losing smaller hairs 0 I am not sure why. I went to go see 2 dermatologist as well who said it was TE and told me I should be on the tail end of it now. They said it would take a year or so for me to get back to my normal condition. I am a healthy 26 year old female. I eat well and work out regularly so this was frustrating to me as I have always tried to help my body. I am a vegetarian and am not always good with protein so I am sure that did not help the situation. The dermatologist said that with someone in my situation Rogain is not a good option and that the only suggestion they had was to wait it out and take at least a 2500mg biotin daily. I am still on a pill but a different one and am hoping that this one will not send me into a bout of TE again. I can't say I have notices any regrowth yet but it is still early. I am hoping that in a year or so I can post a more positive update but I just wanted those who have just started to know that it will eventually slow down. I showered with my eyes closed for a while because I do believe that seeing the shed can cause major trauma so try take your mind of of it but trust me I know its hard. Keep positive and try to forget about it for a while.

 
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Old 09-06-2012, 05:14 AM   #2
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Re: Telogen Effluvium Recovery

Hi

I too had a major shed in May following a long flu illness in March and so it would be good to compare notes! This may also help anyone else going through the TE nightmare. I can quite honestly say that it has been the most stressful time of my life and I feel for anyone going through the same thing. It felt like I lost half of my hair over a period of a few weeks. My hair is very fine and therefore I considered the loss to be very noticeable. Although my husband, who has been very supportive and friends who I have told have told me my hair looks fine, I know how different it is. Your hair takes on a different character - in my case very dry and I was for a long time too scared to do anything with it. On my first visit to the doctor I was told that "it's going to do, what it's going to do and most people's hair grows back". The only advice I received was not to colour my hair! Two weeks later I went back and saw a female doctor due to my anxiety levels, which was also causing me to lose a bit of weight. (Small mercies!) She was more helpful and I persuaded her to do some blood tests to rule out thyroid problems etc. The results were normal, however I noticed my Ferritin level was 28, which although in the normal range, considering I had been taking vitamin supplements for a few weeks appeared to tally with other stories on the internet as a possible trigger indicator for TE. The Doctor recommended a healthy diet with lots of leafy vegetables etc. After spending many hours trawling the internet for advice and reading similar stories I started taken Iron supplements and Lysine to try to encourage and speed up re-growth and even bought blackstrap molasses! I have just purchased Biotin and wonder how you are getting on with it, as I see it can cause acne.

I am fed up with finding my hair everywhere but I do think the shedding is now minimal. I have not had it cut at all since this started and as recommended by the doctor allowed my hair to dry naturally which does give it a bit of a wave to make it look a bit thicker.

It is now the beginning of September and I have noticed some re-growth which is encouraging. It is obviously going to be a long and painful process to get my hair back to it's normal shoulder length bob. Good luck to you and anyone else going through this.

Last edited by Administrator; 01-30-2013 at 03:28 PM.

 
Old 01-17-2013, 12:32 PM   #3
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fearofbears HB User
Re: Telogen Effluvium Recovery

hello! I'm not sure if you still check this - but how is your hair doing? I went through two nasty bouts of telogen effluvium from stopping birth control pills and lost considerable density.

It stopped falling out about a month or two ago and I see some short sprouts, but not all of what I lost yet.

Please tell me you have seen more recovery! I hope you are diong well!

thanks!

 
Old 01-29-2013, 01:00 AM   #4
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Mulberry12 HB User
Re: Telogen Effluvium Recovery

Hi there

All I can say is, it is a very long and slow process. I have quite a few hairs now that are about 6cm long, but the shedding has still not stopped completely. I saw a trichologist. She recommended I take a high dosage iron tablet, Vitamin C and Lysine to boost my Ferritin level up to 60-70. (It was 27 previously). I do not know what it is now but am due a further blood test to see. Have you had your Ferritin levels checked, as this is now commonly linked with hair shedding?

 
Old 02-17-2013, 06:59 PM   #5
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Chestnut20 HB User
Re: Telogen Effluvium Recovery

Hi, I also have been experiencing TE since October 2012. My hair became very dry and it has always been on the oily side before. Has that improved for you? When I shampoo it with a anti-falling shampoo (IF brands) it feels fine but by the end of the day it is dry again, although sometimes it improves throughout the day. Also, I had noticed that before the shedding began my hair especially around the crown, which is where the most has fallen (although it is diffuse shedding), got very dry and was easily tangled (I have fine hair). Maybe several months before that I noticed some hairs were getting discolored - not white, just a lighter shade of my chestnut brown, and unevenly so. The two dermatologists I saw were pretty useless - wait it out. They did give me ketonazole 2%, however, since I had also developed some dandruff, which I've never had before - that started shortly before the shedding began. After a few applications the dandruff is pretty much gone.
I lost a good 40-50% of my hair in the course of 3-4 months. In the beginning of January I finally had a blood test and it showed my vitamin D deficiency was worse than last year (23 from 27) and my iron was on the verge of being low. My doctor said to take biotin and iron supplement. In January hair continued to fall and at the end of the month I had my usual heavy period, during which it shed pretty badly so I asked for more specific tests. My hormones appeared to be fine except for a DHEA of 600, but my ferritin was at 19, although my blood iron had practically doubled in a 6 weeks and was normal at that point. In the past two weeks my hair has stopped shedding in the shower as much, but it continues to shed throughout the day. I am unable to tell how many I lose but probably around 50, however I used to lose few hairs before this started. I'm wondering whether this is the end of it or not, because my hair quality has not improved. I can see many short hairs (2-3-4cm) growing on top of my head where I've lost the most hair, but not really in the front or anywhere else - maybe I cannot see them as easily on the sides.
Please update with your progress.
I'm also taking nettle tea and evening primrose oil -- this improved my heavy period significantly the last time. We'll see what happens next month.

 
Old 03-11-2013, 02:57 PM   #6
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Mulberry12 HB User
Re: Telogen Effluvium Recovery

Hi there
Been waiting for my latest blood results. I'm no expert but it may well be your Ferritin. Mine is now in the 80s and things are getting back to normal. I read that ideally you should get your Ferritin up to 70 and keep it there for three months to see much improvement and touch wood, this has been the case with me.

I don't think the anti-fall shampoo did anything for me. I think it's more important what you are eating and what supplements you are taking to address the problem. My hair is still quite dry but I use Argon oil and anti-frizz serum to help with this.

I haven't had any hormone tests.

Good luck

 
Old 05-22-2013, 10:11 PM   #7
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msbunny23 HB User
Re: Telogen Effluvium Recovery

@chestnut20 my telogen effluvium also started in October wondering how u are. If u would like to Talk or compare notes let me know

 
Old 06-28-2013, 08:14 PM   #8
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Sharilew HB User
Re: Telogen Effluvium Recovery

I have had alopecia areata on and off for 20 years, but this is my first (and hopefully only) bout with TE. I have always had VERY thick hair and no one ever knew I had alopecia because my hair was so thick it hid it really well. In mid-April I noticed handfuls of hair coming out when I shampooed. I saw my dermatologist who diagnosed TE. She said it was probably as a result of the surgery I had in Oct (although I've had several other surgeries in the past 10 years and nothing like this ever happened). She said that it was a shock to my body, and that the new hairs were pushing the dead ones out. She said it could be 3 to 6 months before I would see any new growth. By the end of May I had lost about 75 or 80% of my hair. I am completely bald on the sides, barely any hair on top, and very thin in the back. I've cried, mourned the loss of my hair and now I am resigned to wearing scarves and the wig I just bought. I'm not feeling very hopeful. I'm on Biotin (5000 mg/day) which has made a big difference in my nails, but haven't noticed any new hair growth. Has anyone had an extreme case like this, and if so, did the hair grow back?

 
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Old 07-04-2013, 09:44 AM   #9
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Re: Telogen Effluvium Recovery

Quote:
Originally Posted by msbunny23 View Post
@chestnut20 my telogen effluvium also started in October wondering how u are. If u would like to Talk or compare notes let me know
Hi msbunny23,

it has not really gotten much better. I still shed about 25-30 hairs after washing my hair and I'm noticing that many of these are now finer than the ones that used to shed initially. I checked my ferritin at the end of May and it has not changed from the 22 I had in March. I'm taking more iron now -- about 70mg elemental 3 times a day. I have been having irregular and heavier periods in the past couple of years and am currently trying to figure out the reason, but this is why more ferritin is not improving. I feel like my hair loss is not getting worse, or at least I can't notice it, but it is not getting better. I always see regrowth right on top, however it does not make up for what I've lost, which is a good 40%. It is definitely diffuse hair loss, but I'm worried about the thinning of individual hairs. The only specialist I have not seen is a trychologist, but it does not make sense before I fix my iron leak.
How are things on your end?

 
Old 07-04-2013, 09:52 AM   #10
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Chestnut20 HB User
Re: Telogen Effluvium Recovery

Hi Sharilew -- I don't know of anyone experiencing such a dramatic hair loss so fast, but that probably means that it will grow back. From all the research I've been doing about hair loss, I remember reading a natural remedy for stimulating regrowth, esp. for the areata issue (which you may still have) - it is rubbing onion juice on the scalp and leaving it on for a couple of hours before washing. It's best if you can juice the onion with a juicer. It will smell, but if you use a shampoo with essential oils, it will counteract the onion. You have to do this every day for at least a month. Good luck!

 
Old 07-04-2013, 01:46 PM   #11
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Sharilew HB User
Smile Re: Telogen Effluvium Recovery

Quote:
Originally Posted by Chestnut20 View Post
Hi Sharilew -- I don't know of anyone experiencing such a dramatic hair loss so fast, but that probably means that it will grow back. From all the research I've been doing about hair loss, I remember reading a natural remedy for stimulating regrowth, esp. for the areata issue (which you may still have) - it is rubbing onion juice on the scalp and leaving it on for a couple of hours before washing. It's best if you can juice the onion with a juicer. It will smell, but if you use a shampoo with essential oils, it will counteract the onion. You have to do this every day for at least a month. Good luck!
Hi Chestnut 20,

Thanks for the onion juice suggestion. I will definitely try it. Also, I hope the rapid loss means it will grow back. I will let you know if/when I see some new growth!

 
Old 07-04-2013, 03:14 PM   #12
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Chestnut20 HB User
Re: Telogen Effluvium Recovery

Please do let me know. I did the onion for a while -- every few days, could not manage every day because i did not want to wash my hair every day and i have a public profession, but if you wear a wig, then it should be easier. I also rinsed off (again not on a regular basis) with nettle root and/or burdoch root -- it's easy to prepare - boil for 10 min and then let cool off for an hour (with the herb still inside the pot), then drain and use as a rinse. These two roots is also good to take internally, but don't let it stay for an hour - it's ready after 10 min. I noticed regrowth from these procedures and my hair looks shinier when I do the rinses, but I did not lose as much to begin with. People are not able to tell I have hair loss because it is pretty diffuse and I don't have bald spots. It just looks - and is - thinner.

 
Old 07-04-2013, 06:20 PM   #13
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Sharilew HB User
Re: Telogen Effluvium Recovery

Thanks Chestnut 20. I do have to wear a wig or scarf because I'm pretty bald. But that means washing my hair every day is no big deal. There's not much left to fall out. We'll see how well it works. I figure I haven't got anything to lose (no pun intended)!

 
Old 10-22-2013, 02:56 PM   #14
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Lexx1245 HB User
Re: Telogen Effluvium Recovery

I just posted in this forum about hair loss after stopping the pill. My TE started a little over a month ago and I'm horrified. I haven't purchased it yet, but have you heard of Folicure? It's a line of shampoos/conditioners/treatments that are supposed to help with hair loss and regrowth. I think I may pick some up this week because if I lose all of my hair I'm not sure what I'll do

 
Old 10-22-2013, 06:02 PM   #15
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fearofbears HB User
Re: Telogen Effluvium Recovery

If you have TE, nothing will stop it or change the cycle. You just have to wait it out. Easier said than done I know, but it's not a permanent condition. I've had TE twice in one year from switching around birth control pills. It's been almost a year since my episodes stopped and my hair is doing great. There are not really any thinning parts anymore that are noticeable. I had almost no hair at the sides and hairline when the TE was in full motion. the regrowth comes in waves, kind of like how grass grows. every month I notice more hair coming in and it is very slowly and steadily thickening up. I imagine it's going to take another full year to get back similarly to the thickness I had before all this started, but I'm okay with waiting.

As the hairs grow in, the better my hair looks monthly. just hang in there and I wouldn't try anything crazy to try and stop it because you risk kicking off another round of shedding. Best to let your body fix itself and be PATIENT. Again easier said than done, but trust me I never thought I'd see the end of this hair nightmare. I'm 27 by the way, this started when I was 25-26. Be careful with your hormones ladies! They don't tell you these things when they prescribe you bcp even though it's listed as a side effect.

 
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