Just found out about Topamax - Headaches & Migraines Message Board

deannapayne · 12-09-2004, 06:01 PM

My doctor just introduced me to topamax since I am new to the area and suffer from severe migraines. Usually 3-4 a week. I am unable to take any of the other drugs that are out there bc I am allergic to narcotics (sp?) and have horrible reactions so we are trying this. I am having some horrible side effects and was just wondering how long they usually last? The tingling in the feet and hands (whish is not too bad) but the pressure in the ear is killin me! it sounds like I am in a tunnel. This comes and goes and seems top be worse when I am off the gound level, or in a closed in room such as a store or department store.... Just was looking for feedback from others that have been on it...thanks in advance

Susanbrennan80 · 12-11-2004, 11:28 AM

My doc said to try potassium suppliments for the tingling but for the first time in 28 years I don't have a headache 24-7 so I don't care it I vibrate like a tuning fork! I also suffer from run on sentences. How many mgs are you taking? Do carbonated beverages taste lousy to you? Do you notice a loss of appitite. Please respond, I'm not just suffering from nosiosity.

libbylou · 12-11-2004, 02:31 PM

My husband takes Topamax. He has the same side affects. He is taking 100mg but has taken up to 200. He also is off all narcotics. Nine days ago he started taking Magnesium and hasn't had a headache since. He has had headaches 25 years. Been in and out of the hospital for all kinds of tests and they have never found a reason for the headaches. I am NOT a vitamin or natural herb person, but a friend called and told us about it and it is really working. It's cheap. I know 4 Frova pills was $80. and the Topamax is close to $300. for two months so a $3.97 bottle of Mag. is great.

deannapayne · 12-11-2004, 06:10 PM

Thanks for the reply. I am on 50 mgs in am in 50 mgs in pm so far this is the 3rd week I think. The extra noise thing seems to be not as bad this week But I am noticing that I am forgetting a lot of things! simple little things well I should not say sinple. I fprgot that I was cooking pancakes and went and started cleaning bathroom (thank goodness the stove was on low) I am noticing the tingling more and now I am having charlie horses which I believe is potasium related if I remember from my dads diabetes correctely. But like you said I am not waking up with intense headaches don't get me wrong I think IF this what I decide to go with my dosage will need to go up bc I am getting small headaches granted they are not nearly what I have been suffering for the last 20 some years... Yes sodas taste NASTY!!!! all I want to drink is water really and I drink lots of it. My sense of smell is really sensitive. I have two cats and I can not stand the smell of their litter box so I have 3 Oust fans on the top of their box that I change the fan every 3 weeks (friends say that I am crazy bc they can not smell a thing) but I can smell it I am still trying to get used to things.....

deannapayne · 12-11-2004, 06:11 PM

Quote:

Originally Posted by libbylou

My husband takes Topamax. He has the same side affects. He is taking 100mg but has taken up to 200. He also is off all narcotics. Nine days ago he started taking Magnesium and hasn't had a headache since. He has had headaches 25 years. Been in and out of the hospital for all kinds of tests and they have never found a reason for the headaches. I am NOT a vitamin or natural herb person, but a friend called and told us about it and it is really working. It's cheap. I know 4 Frova pills was $80. and the Topamax is close to $300. for two months so a $3.97 bottle of Mag. is great.

So does he take topamax at all?