I'm a first-time poster here. I looked back through the older threads, but didn't see anyone whose symptoms sounded just like mine. I'll apologize in advance for the length here.
I have been having a headache or possibly eyeache very frequently for over 5 years. The pain is always right behind my right eye. Sometimes it almost feels like the eye socket itself is radiating the pain. However, it is not eyeball pain. It varies from a dull ache to a sharper, stabbing pain. The pain can last as little as a minute or two to as long as 4 or so hours.
When this first started 5+ years ago, I had one of those feelings like "something is really wrong". I went to an internist who recommended something like Excedrin Migraine. After a couple of months with no relief, I went back to the internist who referred me to a neurologist. The neurologist had an MRI and MRI taken of my head. Both of the scans turned out negative.
So, the neurologist diagnosed it as a migraine or some related type of vascular headache. I found this surprising because I have had no
other symptoms (no auras, no nausea, no light sensitivity, etc) that you typically hear about in association with migraine. At the time, the Dr tried me on several months of Nortryptoline (sp?). It seemed like it helped a bit for a while, but not for long. So, I eventually gave up on it.
So, over the past 4 years, I mostly learned to live with the pain. I have a pretty high tolerance for pain, so since I was convinced that it wasn't something that was going to kill me, I just decided to do nothing about it. Sometimes I would go for days in a row with the head/eye aching for 2-4 hours a day, then I would sometimes go for a week with no pain. T
hen, over the past year, I started having the pain every day
for at least 2 hours. The pain was bad enough that it was hard to focus on work at times. I was taking a lot of Ibuprofen. So, after about 3 months of that, I went back to the neurologist. He did a standard neuro exam on me and decided that he still believes it is a migraine. He felt that I was into the rebound headache cycle because of all of the Ibuprofen. So, this time, he had me try Effexor as a preventitive. I stepped up to 225mg/day of Effexor over about 5 weeks. For a month or so, I was beginning to think that it was really helping and it still may be. But, I am still having the head/eye pain at least 2-3 times a week for a couple of hours at a time. My followup appointment with the neurologist is in about a month.
I have done the headache calendars, etc, but there doesn't seem to be any rhyme or reason about what triggers the pain. It happens at all times of day, I wake up in the morning sometimes with the pain, and it doesn't seem to relate to what I eat. I have my eyes checked once a year by an Opthalmologist and I wear contacts daily.
So, after the absurdly long story, my question is whether anyone else has heard of anything similar? Does the diagnosis of migraine sound believable in absence of any other symtoms? Any advice on different approaches to treatment?
Thanks in advance.