Anyone have body and joint aches from Topamax? - Headaches & Migraines Message Board

samswife · 01-30-2006, 09:18 PM

I'm up to 200mg of Topamax and not only do i have a terrible chronic daily headache, but now my body is hurting, joint pain in fingers, and body aches.
does anyone know anything about this?

agravy · 01-31-2006, 06:32 AM

I am on 225mg of topomax a day and i ache in my legs constantly on a daily basis; however, I hurt like that prior to being on the topomax. I do think though that the meds have made it increasingly worse. I have only had 2 migraines since on it so any side effects is wort it to me. Plus i have lost 10 lbs. Also on klonopin & flexeril for muscle spasims & cramps for the nuero is still trying to rule out possible ms. Not only do I have BAMS(Basilary Artery Migraines) but I could also possibly have multiple sclerosis. Oh well, we have to take the hand we're dealt.

How long have you been on the topomax? Did you increase your dosage very slowly? That's the whole key to it. Go slow! I've had excellent results, but it's not right for everybody. Some people heve tried zonegram, maybe if this doesn't work for you, you could ask about that. Best of luck to ya.

Alicia

Mz Migraine · 01-31-2006, 02:01 PM

Quote:

Originally Posted by samswife

I'm up to 200mg of Topamax and not only do i have a terrible chronic daily headache, but now my body is hurting, joint pain in fingers, and body aches.
does anyone know anything about this?

I have been on 100mgs for approximately 2 1/2 years & I have just started having these muscle/joint pains for the past 2 months.
As much as I love Topamax but, hate the side effects, I do not like it one bit.

Going to do my own research on zonegram. If I like what I read, going to ask my Neuro about it.

Mz Migraine · 01-31-2006, 02:12 PM

Quote:

Originally Posted by agravy

I am on 225mg of topomax a day and i ache in my legs constantly on a daily basis; however, I hurt like that prior to being on the topomax. I do think though that the meds have made it increasingly worse. I have only had 2 migraines since on it so any side effects is wort it to me. Plus i have lost 10 lbs. Also on klonopin & flexeril for muscle spasims & cramps for the nuero is still trying to rule out possible ms. Not only do I have BAMS(Basilary Artery Migraines) but I could also possibly have multiple sclerosis. Oh well, we have to take the hand we're dealt.

How long have you been on the topomax? Did you increase your dosage very slowly? That's the whole key to it. Go slow! I've had excellent results, but it's not right for everybody. Some people heve tried zonegram, maybe if this doesn't work for you, you could ask about that. Best of luck to ya.

Alicia

Thanks for bringing Zonegran to my attention.

I just did my own research. I don't think this drug is for me. It's sort of like Topamax. Basically does the same thing. However, what I don't like about it is that one of the side effects is: "headaches".

zephyrqueen · 01-31-2006, 02:27 PM

I've been on Topamax 100mg for almost 3yrs now and don't have the joint pain but I do have the tingling hands like crazy!!! Also could be due to nerve problems in my neck ....hard to decifer. Have never heard of Zonegram. I may have to check it out. However the Topomax has worked for me. I went from 3-4 Migraines a week, literally!!! ....to maybe 2 every 3 months or so. Not bad at all!

The only ones I get now are related to my neck.

I'm afraid to switch to anything else since it took almost 8yrs to find something that worked and two trips to the ER with allergic reactions. One with Depakote and one with Botox.

Nora