Headaches for 12 years............ - Headaches & Migraines Message Board

summerbreeze1 · 02-09-2006, 07:49 PM

Hello, I just was wondering if anyone has headaches/suffered for this long???????????? (due to several medications not working)

It is so hard when you want to live your life, and you are tired of taking/fighting pain for so long. I have good days

but it seems it's just not enough any more. I am allergic to many meds. migraine family, vicodin, darvocet, many!!!!!!!!!!!!!!!!! I also have systemic mastocytosis (a mast cell disease) That is another story that if any one is interested I can explain it a little more. Any opinion/advice would be appreciated

take care, summerbreeze

Mz Migraine · 02-09-2006, 11:49 PM

What kind of doctor are you seeing for your *migraines*?

My migraines started 1996.

I suffer from 2 completely different kinds of migraines which must be treated differently: Occipital

& Hormonal

Took 6 years to find the correct Migraine Management Programe. What a balancing act let me tell you!!!

summerbreeze1 · 02-10-2006, 08:10 AM

Thanks for the reply, and I (early on when headaches started) I seen and ent. Doctor, rheumatologist (who dx me with fibromyalgia) those meds. early on were aspirin,ibupfofen,tylenol. Then when the headaches continued I seen a neurologist who prescribed different types of migraine meds. I thought at that point I would get relief, but no such luck

Infact I had a severe reaction to one of the migraine meds; my chest hurt, felt like I couldn't move, and worst of all the pain was still there.

Recently dx. with systemic mastocytosis (bone marrow produces too many mast cells) I guess I am at a crossroad right now. My SM is very rare, and many Doctors don't know that much about it. I am wanting to try massage therapy or maybe see a chiropractor; I have had MRI's etc. so it's very frustrating (all reports came back normal) but the pain still exists. I don't want to keep taking pills. I try to work out and eat well, but so many days I have to just ride through the pain.

I was told recently that my estrogen levels were low, and my endocrinologist wanted to put me on premarin (I am still trying to decide if I want to go that route) I was 28 (now 45) when my headaches started; I also found out I have a thyroid disorder so I will talk to my Doctor at next appt. and see what he suggest about the chronic daily headaches.

I have read where sometimes you can have arthritis of the jaw joint which can also cause headaches

again thanks for the reply, and I hope your headaches are under control!!
Take care

Mz Migraine · 02-10-2006, 01:53 PM

Quote:

Originally Posted by summerbreeze1

Thanks for the reply, and I (early on when headaches started) I seen and ent. Doctor, rheumatologist (who dx me with fibromyalgia) those meds. early on were aspirin,ibupfofen,tylenol. Then when the headaches continued I seen a neurologist who prescribed different types of migraine meds. I thought at that point I would get relief, but no such luck

Infact I had a severe reaction to one of the migraine meds; my chest hurt, felt like I couldn't move, and worst of all the pain was still there.

Recently dx. with systemic mastocytosis (bone marrow produces too many mast cells) I guess I am at a crossroad right now. My SM is very rare, and many Doctors don't know that much about it. I am wanting to try massage therapy or maybe see a chiropractor; I have had MRI's etc. so it's very frustrating (all reports came back normal) but the pain still exists. I don't want to keep taking pills. I try to work out and eat well, but so many days I have to just ride through the pain.

I was told recently that my estrogen levels were low, and my endocrinologist wanted to put me on premarin (I am still trying to decide if I want to go that route) I was 28 (now 45) when my headaches started; I also found out I have a thyroid disorder so I will talk to my Doctor at next appt. and see what he suggest about the chronic daily headaches.

I have read where sometimes you can have arthritis of the jaw joint which can also cause headaches

again thanks for the reply, and I hope your headaches are under control!!
Take care

Sounds more like rebound headaches rather than migraines. If this is the case, you will need to weaned off of the over the counter asprins. This may take a few weeks. Depends on how long you were taking the asprins.
Asprins are the leading cause of rebound headaches a/k/a chronic daily headaches.

I had to be weaned off of asprins because of rebound headaches. I have been headache free now for 3 years.
Still have migraines though.

Due to all your medical problems you are caught between a rock & a hard place when it comes to taking medications to treat each medical problem.
Does your Neurologist know about each medical problem you have, know about all the prescribed medications you are taking including the over the counter ones?

Is your Neurologist a headache/migraine specialist?

Yes, my migraines are under control & have been for 3 years now thanks to a wonderful Neurologist & of course the drugs!!!

Good luck!!!!

duff19 · 02-21-2006, 02:06 AM

Im going to be 20 next month and I have had migraines since I was 10. Been to all sorts of doctors, tried all types of different medicines in different forms, different doses, different mixes. Missed school so much that I had to drop out, ect. Its good to know that other people understand the pain, its not good to know that you have had migraines for 12 years but it is good to know that Im not alone in this. Hopefully one day I will find the cause/cure for all of this. Same to you.