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Old 06-13-2007, 01:18 PM   #1
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Angry 30 years of constant headaches

Can any one help with suggestions fof pain relife. I have had typical migraine type headaches for over 30 years. Ive seen no end of doctors regarding these but to date still have no confirmation as to whether or not they are migraine. Ive tried all manner of tablets all to no avail. My doctor prescribes Co-Codamol but these never get rid of the pain all remove my headache. The only sure way is to go to bed for at least 3 to 4 hours having takem Co-Codamol. Often these seem to start typically during the weekend which has a serious effect on my relationship. The intense throbbing pain is exagerated with sudden movement or exertion. Dose any one else experiance this sort of pain and if so what pain relife works for you.

 
Old 06-19-2007, 07:17 PM   #2
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Re: 30 years of constant headaches

Know Headaches Caused By Food You Eat

Last edited by wanida; 06-19-2007 at 07:23 PM.

 
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Old 06-19-2007, 10:24 PM   #3
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Re: 30 years of constant headaches

I have been suffering of constant daily headaches since 2002. Not only do I have daily headaches, but I suffer sever ones that pretty much put me out of commission for a while. I had been treated for migrains, but it was like taking candy because non of the did any good. I have went to a number of doctors and by accident, found something that helps to lesson the sever headaches that I get. Once I was visiting my mother when a sever one hit, she thought I was having a heart attack and so she gave me a nitro (usually used to treat heart attacks). Well, to my surprise, by taking the nitro, it helped me get through the sever one. I do have lessions, which my doctor now believes are scars from mini strokes.

I don't know if this will work for you, but after suffering 30 years, I would be willing to try anything. This is just a thought....

Good Luck!

 
Old 06-21-2007, 08:52 AM   #4
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Re: 30 years of constant headaches

Thanks for your mail, sounds like youve been through the mill too. I have told my doctor that at the time of getting a headache I would take a handfull of tablets if that was guaranteed to cure me. They simply dont beleive me you can see it in tere face. My headaches often start on a saturday and I always live in fear of one starting spoilling my weekend. I often take some tablets when i have breakfast just in case one starts. Does this sound familiar to you. Cheers all the best.

 
Old 06-24-2007, 11:58 AM   #5
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Re: 30 years of constant headaches

I have suffered headaches for 20 years non stop. The main meds they give for
headache prevention in the uk and Ireland is amitriptyline and inderal.
But both these drugs can have bad side effects. I am now 41 having lost the best years of my life to this constant pain In my head. What concerns me over the last few weeks i have started to consider suicide as I dont want to live the rest of the next 20 years like this.The constant pain as destroyed my will to live. I call tell you one thing regular use of Co-Codamol can cause rebound headaches it is not the best medication for prevention.

 
Old 08-18-2007, 02:42 PM   #6
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Re: 30 years of constant headaches

Hi! I know that the headaches get very frustrating and it is even worse when you can't really explain the way you feel to the doctors. It is almost like if they haven't heard of it already, then there can't be anything wrong. Like I said before, I was lucky to find a doctor would listen to me. I am enclosing a list of medications that she has put me on to at least treat the symptoms. I know that with my headaches, my memory is getting worse, head is sore to touch, hard concentrating and talking at times. I have numbing feelings in my hands, feet, and at times my face. (these mostly accure when the headaches are at their worse.)

Here is the list:
Nitro - as needed
oxygen - as needed
Ice Pack - as needed to freeze the head from the outside
Diamox - each day for swelling
Imdur - daily Headache
Clonidine - Daily Headache
Prilosec - Daily Acid Reflex
Folamin - Daily Vitamin
Citalopram - Daily Anti Depressent
Warfarin - daily blood thinner
Namenda - Daily Memory
Amitriptyline - Daily Anti Depressent
Iron - to help me with energy

I don't know if this helps, but it is good to know that there are things out there to help you get through these. My family knows how hard it is to live with me like this, I only hope I am strong enoug to wait for an answer.

 
Old 08-19-2007, 08:55 AM   #7
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Re: 30 years of constant headaches

Quote:
Originally Posted by deno View Post
I have suffered headaches for 20 years non stop. The main meds they give for
headache prevention in the uk and Ireland is amitriptyline and inderal.
But both these drugs can have bad side effects. I am now 41 having lost the best years of my life to this constant pain In my head. What concerns me over the last few weeks i have started to consider suicide as I dont want to live the rest of the next 20 years like this.The constant pain as destroyed my will to live. I call tell you one thing regular use of Co-Codamol can cause rebound headaches it is not the best medication for prevention.
Hi DENO, I TOO TOOK AMTRIPTYLINE FOR HEADACHES AND FIBROMYALGIA. IT WORKED FOR A YEAR AND THEN QUIT WORKING, WHICH I WAS SORT OF GLAD BECAUSE OF THE SIDE EFFECTS. I AM STILL TAKING MEDS FOR THE FIBRO. I TAKE NEURONTIN AND CYMBALTA. NEURONTIN IS FOR THE NERVE ENDINGS AND CYMBALTA IS FOR PAIN AND AND A ANTI-DEPRESSANT. I AM NOT DEPRESSED, BUT IT HELPS ALL AROUND. NOTHING HELPS THE HEADACHES, I HAVE HAD THESE FOR 12 YEARS, I USUALLY WAKE UP WITH THEM. THE ONLY THING I FOUND THAT HELPS IS IBUPROFEN 800 MG, AND SOMETIMES I HAVE TO TAKE THIS 4 TIMES A DAY.

SUICIDE SHOULD NEVER BE AN OPTION, I KNOW HOW THE PAIN CAN MAKE YOU FEEL, BUT PLEASE, JUST KEEP TRYING TO FIND THE RIGHT MED, AND MAYBE THE RIGHT DOCTOR. kEEP SMILING DENO AND KEEP TRYING, YOU HAVE FRIENDS HERE AND A SUPPORT SYSTEM.

TAKE CARE AND LET UP KNOW HOW YOU ARE DOING,

SUNNY

 
Old 08-22-2007, 04:41 PM   #8
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Re: 30 years of constant headaches

pudin & deno

hey guys, i am so sorry you are both suffering and anyone else out there.. i am also a sufferer and in the uk... i acually went private to see a neuro who i found didnt have a clue..

Amyway Has Hemicrania continua and chronic paroxysmal hemicrania ever been mentioned as a diagnosis? Have you tryed indomethacin if not ask your doctor for it and if it works on your headache then you have hemicrania ..

I also posted on another board and was giving great advice from someone at the mayo clinic in the us who reccomended Sanj Bassi from Harley Street london... i am looking into it to go see him.. am not sure how i go about it, but im going to make an appointment with my reg doc and see if he will refer me if he can.. or i may just move to london lol

hope ive helped... xx

Last edited by donna80; 08-22-2007 at 04:43 PM.

 
Old 08-23-2007, 01:26 PM   #9
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Re: 30 years of constant headaches

Pudin,

I am in the same boat as you. I'm 21 years old and have headaches since I've been in high school. Actually, both headaches and migraines. I'm on Imitrex to treat my migraines, which works great, but I am simply just taking Motrin for headaches (which I get between 5-6 a week). I feel like I miss out on a lot of things in my life because I'm always afraid something will trigger a headache or I already have a headache and this certain activity will make it worse. You're not the only one My doctors have suggested stress therapy, getting my eyes checked, seeing a neurologist, and even accu-puncture. Haven't tried the accu-puncture yet.... anyone heard anything about that?

 
Old 08-28-2007, 04:06 AM   #10
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Re: 30 years of constant headaches

I too have suffered years and years of headaches. I have tried all the usual remedies, but the most succsessfull one of all, is magnesium oratrate twice a day.

Since taking this i have been much better, and if i do get a headache now, i can cope with it easier, it isnt as severe since i have been taking the magnesium.

 
Old 06-23-2008, 11:17 AM   #11
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Re: 30 years of constant headaches

There is something out there that is called CADISAL disease. I too suffer from daily headaches and some of them are really sever that they will put me out of commission for a few days.

You should talk with your doctor about this. All you need to do is type the name CADISAL for a search and it will give you information on it. I hope this helps..

 
Old 07-07-2008, 06:20 AM   #12
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Re: 30 years of constant headaches

My son, now 21, has had a constant intractable migraine since 14 with what I figure was his last puberty growth spurt (I mean it is unresponsive to just about anything thrown at it, except some triptans which caused heart arrythmias (spelling, sorry) and Topamax which reduced it to a level 4 but nearly took out a kidney). The narcotics do nothing and neither do the NSAIDS nor the anti-depressants to a great degree. Shortly after Topamax he started suffering paresthesia in his extremities and he says that that is sometimes worse than the migraine.

The only thing that keeps him sane is when it gets too bad he takes 3 Benadryl and knocks himself out. And the only thing which makes the nerve pain go away is cold moving air so we keep a fan handy.

We are now at a major medical center pain clinic and all they can do is do trial and error drugs (at his last visit they told him we'll call you if anything new pops up but we've done all we can, bummer). I pray that since it seemed to start at his first real puberty growth spurt, that once he cycles out of puberty it may go away or diminish in intensity.

Low atmospheric pressure (when a storm front is coming), certain smells, exertion of almost any kind and a couple other triggers make them worse. We watch what he eats and all but he just survives from day to day. With all that he is one of the least depressed people I know. An amazing guy. It takes special people to be able to handle paid at the level you all cope with.

Last edited by BSBGeezerFan; 07-07-2008 at 06:21 AM.

 
Old 08-05-2008, 10:53 AM   #13
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Re: 30 years of constant headaches

My God, I can't believe some of the horror stories I'm reading and I feel horrible for those of you suffering this badly. I suffer from a rare form of migraine called "migraine associated vertigo". It's also called "vestibular migraine" and mainly causes blood vessel CONSTRICTION so I don't get the headache pain that much although headaches CAN and DO come on now and again but NOT to the degree that I am hearing here. However, I have my pain as well. I am dizzy 24 hours a day and cannot tolerate light, motion, or visual motion on a 24/7 basis so that's MY prison. I also see the world constantly moving, shimmering and vibrating. Pretty horrible.

Anyway, I have a suggestion that was made to me by Dr. Hain, one of the foremost experts on migraine. He claims that it is not often that headache control is NOT achieved even in very difficult cases when multiple preventatives are used TOGETHER. He will often combine an anticonvulsant (Topamax is his favorite. yes, the side-effects are terrible. I know, I am on it. But it works!), an anti-depressant (most antidepressants do NOT work for headaches, and in fact, make headaches worse. Effexor is the AD reported to have the most success with migraine and the one Hain uses most. Best to start at 12.5mg working up to no more than 75mg because withdrawl from the higher doses can be a BIG problem), and a blood presssure medication (usually verapamil). He says that it is VERY rare not to get control over headaches or at least a very good reduction so that the headaches actually start to respond to OTC medications.

He also suggests reading "Heal Your Headache" by Dr. David Buccholz. I have it, and it's an excellent book. It goes over the migraine triggers caused by food. MSG, cheese, caffeine, sugar, and anything "aged" are the big ones but there are others. If you have not given this protocol a 100% try, and you are suffering that badly, I would strongly recommend having your doctor look into it. Perhaps you tried each of these medications alone, but have you tried them combined, ad the maximum therapuetic dosages while at the same time avoiding rebound medications??

I wish you all the best of luck. I know what it is like not to be able to function. I am going through it right now, although I can't claim to have suffered as long as many of you, but for me, it's a 24 hour a day battle with MAV. Still, Topamax, all by itself, has stablized my symptoms so that I don't have wild fluctuations from day to day. Now, we're adding some additional preventatives to get me some more progress. Good luck to all of you and god speed!

Rich

 
Old 08-08-2008, 09:39 AM   #14
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Re: 30 years of constant headaches

ANYONE who has headaches and who hasn't been checked by a Specialist for TMJ... not just any M.D. but someone who knows TMJ dysfunction should do so. I can't tell you how many people I know that have had headaches for years ... some constant that were helped. It was their TMJ that was the problem. It can give you a constant, debilitating headache if not treated.

 
Old 08-10-2008, 06:31 PM   #15
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Re: 30 years of constant headaches

The older I get the worst my headaches get, which leads me to believe that they maybe hormone related. Joy.

I'm 33 I have at least 5 migraines a week. I have been on Topamax for over a year now, up to 200mg a day in fact. I've completely changed my and my husband's diet. *grin* He just loves that.

Nothing has worked. And I think the Dr. I'm seeing is a complete nut job. He won't listen to me. "Just keep taking the Topamax." He says.

The only thing the Topamax has been good for is misplacing 25 lbs. WoOT!

I'm doctoring myself by looking things up on the internet, adding in supplements and trying this and trying that. That's really the only thing I can do since I live in a Podunk town that has Goober, Donald Duck, and Gomer Pile for medical care specialists.

Just hang in there and keep trying. It will get better.

 
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