Constant lightheaded dizzy odd feeling for 4 months now. - Headaches & Migraines Message Board

DizzyAmber81 · 11-11-2007, 03:56 PM

Ive seen alot of posts from people out there experiencing virtually the same symptoms as me, so I thought I would give this a try to help me feel somewhat better and possibly get some answers. So here is my story. Back around the first to middle part of August I begain experiencing a dizzy lightheaded and/or heavyheaded feeling constantly, it came on suddenly one day and just never left me. I went to the ER like 2 weeks after it began and was dismissed as having a virus after some bloodword with elevated white blood cell count. So it continued on then about a month later I went to a general dr, and was given antibiotics for 2 weeks and a steroid predisone for 5 days. Well neither took away the symtoms but the steroid made me wake in the night with the blood vessels in my eyes pulsating horribly with an awful headache so I stopped taking that. Next on to the ENT where I had a hearing test and was examined hearing perfect had a CT scan of sinuses and I DEMANDED one of my head with contrast. Both came back fine. During this time my symptoms got way worse as did my anxiety of thinking I had a Brain tumor. The dizzy odd feeling is always there, but the anxiety of thinking I had a tumor and acually preparing myself in my head for death had caused me to clench my jaw so tight that I was actually causing myself tension headaches the ENT had one useful bit of advice, to keep my jaw loose which I did and it has helped with the headache part. But now I am all hypersensitive to everything about my body some days its just the weird feeling some days my neck feels all stiff and almost like the blood vessels in my neck are constricted causing limited blood flow to my brain. My heart pounds when I stand up and other times for no reason I have had some chest pains and this odd cold feeling in my chest at times. When it first started I had different parts of my face go numb but I am unsure which symptoms are the anxiety and which are the actual. Its all so frustrating the only REAL TRUE symptom that never goes away is this feeling in my head like a brainfog dizzy odd lightheaded/heavyheadedness just not normal me. I cant enjoy anything anymore I dread things I used to love. Im only 26 I just want to be a good mom and wife and this is ruining my life. Ive been to the neurologist and he did bloodwork for lupus, lyme, b12 definincy, west nile encepilitis, and a few other things all negative. I have an appointment with the cardiologist this week, so we will see where that leads. I have asked the Neuro where we should go next with this but still have not received a phone call back yet. Its all messed up its like I have to figure it out on my own and tell them where to go next ya know? I have heard that Lymes usually doesnt show up on bloodwork. I dont know I just want to wake from this nightmare and be me again, I constantly spaz out thinking I am going to die. I also have a horrible sensitivity to light as in floresent lighting I cant even barely go into a store and can hardly tolerate the drs appointments. This makes things hard as well. My husband now has to do all the shopping on top of working a 60 hour a week job. I have 2 little kids one is 6 and one is 2 and I can hardly stand to be around them because they are loud and move alot and it makes my head spin when all I want is just to play with them and be normal. Please if anyone is feeling similar symptoms lets talk about it I really need a support system of people feeling like I feel. I feel alone and the anxiety is hard to place on the back burner not knowing what is wrong with me.

Jaxzilla · 11-12-2007, 08:42 PM

Go to the inner ear board.

DizzyAmber81 · 11-13-2007, 08:17 PM

Ive been to an ENT its not an inner ear problem its also a constant dull ache headache that never leaves and becomes a horrible headache every so many days.

anders15 · 11-19-2007, 01:20 AM

Quote:

Originally Posted by DizzyAmber81

Ive been to an ENT its not an inner ear problem its also a constant dull ache headache that never leaves and becomes a horrible headache every so many days.

I have generalized anxiety disorder and seem to have similar symptoms. I am constantly dizzy and experience some brain fog. I have had a CT scan which came back fine, but I don't know if I shuold go to a neurologist. All the Drs. just tell me I had GAD and give me anti-depressants and anti anxiety. Do you experience any nausea? cold sweats? anything else?

DizzyAmber81 · 11-19-2007, 04:54 PM

Is your brainfog constant? Or like a constant presurre in your head that NEVER goes away sometimes better than others? I do have a mild amount of nausa especially in the morning. I also have shaky vision at times and like a buzzing feeling in my head sometimes too. Also sometimes floaters in my eyes. Also the back of my neck at the base of my skull hurts too. I dont really have the sweats or anything like that though. I have anxiety too but my anxiety is caused by my feeling so yucky all the time. At least I think so, because I can be fine not feeling any anxiety at all and the symptoms are always there then when I start to feel the anxiety come on then I do feel worse but I think If it were just anxiety there would be some sort of break in between and these symptoms never let up. Im still undergoing testing for different neurological problems. Today I had two different types of eeg's done and later in the week a chest xray next week I will probably have an MRI. If its none of those things Im looking into Cronic migraine or TMJ If not that then some sort of neck problem I have heard having neck problems can cause all sorts of wacky stuff too. So then if its none of those things then I guess its all in my head literally. I have also had heart tests done that seems to be fine. The doctor is looking at MS or seizures right now. I had a Lyme disease test done but I have heard those are notorious for giving false negatives. I dont know what are all your symptoms??? Doctors often like to write things off as anxiety if you really feel there is something beyond that then you are probably right and it is always best to have it checked if only for peace of mind. Let me know all your symptoms and I will keep you updated as to if we find what it is or if it turns out to just be generalized anxiety disorder. Hope you feel better.