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Old 05-15-2003, 06:30 AM   #1
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Angry Pressure behind Eyes and Top of Head

On March 15 I developed a severe sinus infection/ flu. The kind that puts you in bed for a few days. I felt like I had terrible pressure in my head. Especially behind my eyes. My eyes felt like I was out in the sun without sunglasses. I also thought if I had a valve at the top of my head to release the pressure it would go away. Nine weeks later I still have pressure behind my eyes and at the top to my head. It is noticble to some extent every day, but especially when I am in bright lights or outside. Dim rooms help. I had a CT scan done of my sinuses a few months back. It showed minor inflammation of the ethmoid sinuses (the onese behind your eyes). The ENT didn't think that it was significant, told me to wait a month and go see a neurologist. The neurologist cannot see me until 8/22. I am sick of suffering. I want my life back. Anyone else out there ever had these symptoms after a sinus infection??

 
Old 05-19-2003, 07:59 PM   #2
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I too have the pressure feeling in the same spot on the top of my head on and off all day. This has been going on for almost a year. I have been to a neurologist and had a cat scan which came back normal. I occasionaly get the migraine in the eyes and my eyes feel as you described. It was interesting to read that you have a sinus condition as well. I never made the connection before, but I had a cat scan on my neck and head (for recurring neck pain) and it was discovered that I had some calcification in one of my sinuses. The specialist said if it doesn't bother me then they would just leave it alone. Now I am wondering if this could be a cause of my skull pain and migraine headaches? I will rethink the situation and perhaps go back to the ear/nose/throat guy and see if I should have the calcification removed. Maybe this is the source of my pain? Thanks for your post. It is good to read what others experience so you know you are not the only one out there with these weird pains.

 
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Old 05-28-2003, 07:40 AM   #3
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I had horrible headaches, symptoms which sound like yours, and couldn't figure out the cause. Neither could my doctors. I went to a general practioner, I was referred to an ENT (ear/nose/throat) and also to a neurologist. Still no answers. I had a CAT scan and MRI, all normal. Finally I asked the Dr. to put me on amitriptyline b/c I heard it worked for a friend of mine who had chronic tension headahces, with the same symptoms as mine. I started taking 10 mg/night, and now I take 2.5 mg/night and it relieved all of my symptoms. Although it is an anti-depressant at high doses (150 mg/night), at low levels it works to "normalize" neurotransmitters in your head which relieve tension headaches, migraines, or mixed tension and migraine headaches, regardless of the fact that you are NOT depressed. Some people don't want to take it b/c they are scared of anti-depressants and think they only work for those who are depressed, but this is NOT the case. Amitriptyline has worked so well for my headaches that I thought I would share this with you. Good luck.

 
Old 05-29-2003, 04:24 AM   #4
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Kimberly
THanks for the info. I am seeing a neurologist today. I will ask him about it.

 
Old 10-16-2003, 11:54 AM   #5
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Hello Miza03, I know it's been a while since this has been posted, but I just read this and was curious about what happened? Did did you find relief somehow. I am going through something similar w/ pressure in my eye area, etc. Please let us know what happened... Thanks.

 
Old 10-18-2003, 01:49 PM   #6
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Hi ya all, I thought I might add, hopefully a little advice. I also had pain and pressure behind my eyes, and even had 3 sinus surgery. My last sugery, started having periods of poor side vision and also double vision. I thought it was due to a botches surgery, but the ent said it had nothing to do with the surgery ans sent me to a neurolgist. I previously had been treated for migraines for over 10 years, without any med really helping me. Anyway, the neuro sent me to an opti-neurologist. They deal with any vision problem that stems from a neurological problem. They tested my eyes and showed I had papiledema(swelling of the optic nerve). I had a spinal tap, that showed I had elevated pressure from cerebral fluid around my brain. BIH(benine intracranial hypertension) is caused from too much fluid surrounding the brain. It is a relatively rare, orphan disease, but does cause severe headches, and can lead to blindness, if not treated. It can be controlled with meds, but sometimes(in my case) the med doesn't work, so I have a shunt to relieve pressure. I am just wondering how many people have BIH, instead of migrains, especially, if no migrain meds ever seem to help. A spinal tap is needed to find out if she has this disease. Can't believe it took 10 years to find out it wasn't migrains and no dr's had ever suggested doing a spinal tap to se if they had BIH. Good luck, and feel free to ask any questions you might have. God Bless,SusieQ

 
Old 10-18-2003, 10:36 PM   #7
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SusieQ, Thanks for sharing. So, how do you feel now? Are you headache and symptom free now, that the shunt was placed? Do you still have to deal with the BIH in anyway? I do not really have migraines. Mine is just pressure, started about a month ago. The pressure varies in place, from by my ears, to behind my nose, to now between my eyes. Is that what you had? Decongestants help me, but I cannot take them now, because I realized it affected my high blood pressure badly. I get a CAT scan next week. If the doctor cannot find anything wrong with my sinus', I'll mention the BIH possibility. Thanks.

 
Old 10-21-2003, 10:58 PM   #8
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Hello! I am a 26 years old woman and for 2 months now Iíve been experiencing a continuous pressure in my head (top) and behind my eyes, a feeling which just wonít go away. I went to every doctor possible, finally when all of them said they donít know whatís wrong with me they sent me to the neurologist. They did X-rays, NMR (twice: first for my back, then my head), EMG, EEG and the conclusion was that the pressure in my eyes is a little bit low and I have a C5-C6 disc protrusion, but they say these donít explain the pressure that Iím feeling and that I donít need surgery. I took some anti-inflammatory medication but it didnít work, I feel the same pressure, also I feel numbness in my left index finger, which comes and goes, sometimes pain in my left shoulder muscle, sometimes tingling in my legs and arms and from time to time burnt skin sensation on my head, my arms and my legs. Now the doctors say that I should stop thinking about it and it will go away, but I know that what I'm feeling is real. Please tell me if any of you felt something similar, I really don't know what to do anymore. Thanks, Gabi.

 
Old 10-22-2003, 11:12 AM   #9
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Hello again, Sorry it took so long to get back to you. To the lady that replied after my post, I think you sound as if you also may have BIH.. Like I said, the only true test to see if you have this disease is to have a spinal tap. Usually mri's are normal but the spinal tap will show if your pressure is high. Please read all you can about this disease because most dr's don't know or treat many people with this problem. An answer to the question about the shunt helping, well, actually had no headaches for about 5 months after the shunt, but they have come back. I am going to Mayo clinic to try to get some answers. Take care,SusieQ

 
Old 10-22-2003, 02:08 PM   #10
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Thank for for your responses. I will look into the the BIH possibility. I see my ENT doctor next week. Got the CT scan today along with blood work yesteday.
One more question... did any of you feel a terrible strain on your eyes when reading, because of the pressure on the eyes? Whenever I read now (and I am a full-time student), my eyes start aching. Also, when I lay my head down at night, I feel unusual pressure, which makes it difficult to get comfortable.
Thanks again.

 
Old 10-24-2003, 06:38 PM   #11
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Hi all - can men get this condition?
thx

 
Old 10-24-2003, 11:53 PM   #12
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Today I came home with a migrane. I had so much pressure behind my right eye, I thought it would burst right out of my head. My right eye has an almost constant twitch. The migranes are becoming more frequent also. When I get them I experience nausea, my vision gets blurry and sometimes everything has a yellow glow around it. Could this just be caused by stress? (I have 3 small children, work full time, and I'm a full time student.) I had a similiar eye twitch during my second pregnancy, that turned out to be Bels-Palsey. I worry because my paternal grandmother had similiar symtoms at one time. Her's turned out to be an aneurysm. Is that genetic?

 
Old 10-25-2003, 12:18 AM   #13
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Gabi,
Have you ever experienced whip-lash? I have some of your same symptoms. I tried to take OTC meds and go on until one day the pain was literally paralyzing. I went to a chiropractor. He took x-rays and told me that some time previously I had whip-lash. When this happens C-5 & C-6 are moved out of line. After a few chiropractic adjustments, I was back to normal. However, it reoccurs 1 or 2 times a year. My husband says chiropractics are a temporary fix. I say maybe so, but it beats surgery.



 
Old 10-28-2003, 05:01 AM   #14
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Dear AIM,
Thank you for your suggestion, I will try chiropractics. Gabi

 
Old 10-28-2003, 09:53 AM   #15
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Hello! To the man that asked the question about, can a man have this disease(BIH)? Yes, it is more common for women of child bearing years, but it also can affect men and children. I am not the norm, as far as age, because Im 53, well over the child bearing age! Prominent symptoms of BIH are severe ,daily headaches, especially pressure headaches behind the eyes. Usually not one sided, fatique, vision problems, whoosing in ears,shoulder and neck pain,also can have alot of back pain. If you suspect that this may be what you have, try to find an optineurologist, to check out your eyes, and then to a neurologist to do a spinal tap to see if your pressure is high. Like I said before, if you do have BIH, it is nothing to mess around with, as it can lead to blindness. Hope this answers your question. God Bless,SusieQ

 
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