I found this great message board via google and have really felt alone until now....
I am grasping at straws to get something sorted out with my head problems which started on the 1st of December 07 when I was out shopping and I thought I was going to pass out with this feeling in my head, very intense and sort of watery electric feeling. Over the next few weeks what happened was short like electirc shocks on and of constanlty, not to painful but worrying and very sudden.
I have seen the GP on 13 occasions since December the 1st, ended up in A&E twice and seen a neurosurgeon at the beginning of Feb. The symptoms I get seem to be constant & daily, one sided (right side) and it pulses away constantly, the scale can vary from 1-10. The feeling never ever goes away and has been pres since December 1st. I can cope with the pain but I feel it causes me a great deal of worry that I have another problem. The pulsing when it goes up the scale say to 8 or 9, it is usually present at this for a long period of time, I feel a pressure feeling that makes me feel like un-zipping the side of my head to let it out, it has been 11 days now since the latest rise in pain and I am totally worn out and tired. The pulsing can be sharp and nippy, it seems to leave a 'shape' where the pulsing is and it really does get me down. The neurosurgeon recons I have migraines, I thought he was great with priceless information but I have never heard of a person have a constant migraine for 5 months without a break, as the time is passing I can't digest migraine and am at my wits end with it all. The GP's have totally fobbed me of with endless medication that makes me sick and I just don't know where to turn to. Sharing symptoms and stories does help, maybe you readers can explain more? Much in need of guidance and support,many thanks to all who have read this.
Your symptoms sound similar to mine which started about a year ago and got gradually worse and although mine have not gone away fully i have seen a marked improvement since.
I dont know if this will help but after reading your post it could have been me you were describing, at first i thought it was a ear infection but after seeing my GP and getting antibiotics it did not clear up. I then went back to him and was told it was probably wax in the ear and to get the ear syringed( i knew it wasnt as i had had them done about 8 months earlier). All the time the pain was getting worse and i was getting by on painkillers. Eventually i went to see the GP again who told me he was stumped and referred me to hospital (which was 2 months ago and still i have no appointment date) and he gave me nothing to help with the pain and i felt as though he had not listened to a word i said. I decided to go and see a different GP in the practice and after explaining the symptoms of pain all around my right ear, at the back of my head on the right side, bottom jaw hurting from time to time on right side and also in my neck below the right ear aswell as not being able to turn my neck to the right fully. The GP told me to take a de-congestant called Pseudoephedrine as there are 2 tubes in the area causing concern below the ear which can get blocked and result in pain and it would take 4 or 5 days till i noticed any improvement. This has helped a great deal and instead of maybe 4 or 5 days of being pain free in a month it is now maybe 4 or 5 days of pain a month which happens if i stop taking the medicine. And im still waiting for a hospital appointment. Hope this helps.
I found this great message board via google and have really felt alone until now....
I am grasping at straws to get something sorted out with my head problems which started on the 1st of December 07 when I was out shopping and I thought I was going to pass out with this feeling in my head, very intense and sort of watery electric feeling. Over the next few weeks what happened was short like electirc shocks on and of constanlty, not to painful but worrying and very sudden.
I have seen the GP on 13 occasions since December the 1st, ended up in A&E twice and seen a neurosurgeon at the beginning of Feb. The symptoms I get seem to be constant & daily, one sided (right side) and it pulses away constantly, the scale can vary from 1-10. The feeling never ever goes away and has been pres since December 1st. I can cope with the pain but I feel it causes me a great deal of worry that I have another problem. The pulsing when it goes up the scale say to 8 or 9, it is usually present at this for a long period of time, I feel a pressure feeling that makes me feel like un-zipping the side of my head to let it out, it has been 11 days now since the latest rise in pain and I am totally worn out and tired. The pulsing can be sharp and nippy, it seems to leave a 'shape' where the pulsing is and it really does get me down. The neurosurgeon recons I have migraines, I thought he was great with priceless information but I have never heard of a person have a constant migraine for 5 months without a break, as the time is passing I can't digest migraine and am at my wits end with it all. The GP's have totally fobbed me of with endless medication that makes me sick and I just don't know where to turn to. Sharing symptoms and stories does help, maybe you readers can explain more? Much in need of guidance and support,many thanks to all who have read this.
Hi there, many thanks for the reply to my post, I only just got in form work, read up on what you had said and as soon as pos I was back out the door getting what you have been using, the pharmacist gave me one box only of twelve that will last 3 days, so I am going to give it a try, I will honestly try anything. It is really interesting how what doctors say can differ so much, in all the appointments I have had not one mentioned what your doctor said, it really does amaze me, but the body is a HUGE thing and so many things that have the same symptoms but can have a different diagnosis! It was reassuring to hear your story, it makes you feel better and worry less about what your thoughts are - the over active imagination which at times you can't help when you feel so bad and get not joy from medication. I will let you know how I am doing at the end of the week. Hope you are well and had a happy Monday!!! Regards, Karen :-)
Last edited by KarenHaston; 04-28-2008 at 02:29 PM.
Reason: The reply was for Fresh J .....
Hi Karen, the medication i got off the pharmacy came in the liquid form and i was to take two 5ml spoonfulls 3 times a day when required. That was on 18 march and i have just finished the bottle, i took it as prescribed for about 7 days and after day 2 i found it was helping a lot. I stopped taking it for about 10 days until i could feel the pain starting to come back and so started taking it for a few days and although the sensation of knowing that something is always there remained, the pain would ease away and i would stop taking the medicine until i could start to feel it coming again. The pharmacist told me when i went to pick up the new bottle that sometimes it affects the sleep pattern which it did but i found this a small price to pay, and if i wanted i could just take it twice one in the morning and one early evening. He said it is a very commonly used medicine in Liverpool and is mainly used for sinus problems. You are right about the worry and active imagination and reading that other people have the similar things going on. I will check back at the end of the week and see how you got on.
Last edited by Fresh J; 04-29-2008 at 09:30 AM.
Reason: update
Headache, migraine, chronic or what :-( 
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