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Old 05-21-2009, 09:33 AM   #1
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LilyMac HB User
Question Migrane help without triptans?

Hi. I'm new and was hoping someone who suffers from migranes can share advice with me. I have had them for about 15 years. I'm in my late 30's. I have never been treated with Triptans as at the time my migraines weren't frequent - I had the battery of MRIs/EEGs and everything seemed normal. My dad's sister and mom had them, so it was just assumed I got the lucky gene. Mine weren't that frequent when they first started so he just gave me 75mg of Topamax along with a low dose of either Lortab (5/325) or later, Panlor SS for the ones that did flair up & it seemed to clear them right up.

When they began to worsen about around the age of 34, I coorelated the main trigger of the migraine cycle to the pain associated with my menstral cycle. Due to many other reasons surfacing at that time, I decided to undergo a hysterectomy then. The migraines returned to their previous level.

Then in Jan of 2008, I had a heart attack due a birth defect that had went undetected. It required emergency bypass surgery. After recovering from that, my migraine frequency went up threefold. Along with the migraine frequency increasing, I developed an sudden onset of a seizure disorder that my mom had in childhood and my brother had in his twenties. At this time, I was referred to a neurologist and epilitologist. It was assumed that being on the lung / bypass machine for so long and my core temp being brought down so low and basically my brain "rebooted" during open heart surgery "awoke" what my mom and brother had and was recessive in me until that surgery occurred. They thought as my brain healed (who knew?), which would take 2-3 years and it would just "go away".

So my topamax level was increased to 250 mg and Depakote ER was added at 1000 mg. I also take 2 mg of Klonopin as an adjunct med for both the seizures and to counter the Depakote that doesn't create somolance in me - I have the reverse effect of hyperactivity. My cardiologist has ruled out all triptans due to the LAD artery, even though bypassed, is still in use supply a wee bit of blood to a small section of heart muscle. Since triptans constrict, it is too high of a risk of heart failure in that still defective artery to use any of the triptans to stop the migranes that I still have. And due to the amount of drugs that I do take, all the seizure preventatives that also do double duty as migrane preventatives and all the heart medications, they are highly reluctant to add any further medications to my long list without being absolutely certain of interactions. Also, I have a LOT of meds being processed by my liver right now so have to watch everything and they check my blood every 30 days.

So I am still left with three "stop" meds. I have my old lortab 5/325 and allowed to take 2 advill with it if the migraine occurs during the evening, if it doesn't subside in 2 hours, I can take one more. OR I can take a Panlor SS if the migraine is during the day. The 10 mg of caffeine is all the vasoconstrictor I'm allowed to have in 24 hours, which is about the amount in half a cola. If the migraine hasn't cleared by then, I have to go the hospital for a demerol / phenegran shot. If I've taken Panlor SS, I have to suffer 12 hours as it "blocks" demerol (or so the ER doc told me). So I try to avoid the Panlor if possible. (Has anyone else ever been told this?)

The other stop med I have is for seizures, If I have breakthrough seizures, I have the type of epilepsy that causes clustered seizuers, so after the second one, I have about 10 minutes before the next one. So not enough time for a pill to digest and work, so I have the lovely job of having to take a 10 mg Valium gel, shall we say, not by mouth.

yea, that's my life.

What I'm asking for is this: have any of you had a situation where you have migraines where you can't take triptans and you find other methods of relief that stops them? I've heard there are vitamins, a head wrap that had pressure points, old timey folk remedys, something called Q enzyme 10, all kinds of people wanting all kinds of money from me. Tell me what works for you. And then I can ask my doctor if it is safe with my drugs and maybe I'll get some relief. At least there would be one thing in my life that I might have some control over. Sorry for so much info, but thought this might avoid some questions you might have back to me even if some of it may be irrelevant info.

Much much thanks!

Lily

 
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Old 06-01-2009, 10:46 PM   #2
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srfrgrl1 HB User
Re: Migrane help without triptans?

I love my triptans, but sometimes Imitrex doesn't do it, and I'm not ready to head to the emergency room for morphine. My doctor's assistant told me about Toradol. I get into the Dr.'s office and she gives me a shot. It can be a miracle. After 30-45 minutes, the headache can be banished! It's an anti-inflammatory, and I go right back to work.
I hope this helps you. She also told me that Topamax is helping her mother, showing incredible promise. You probably know it's for seizures, but being prescribed as a once-a-day preventative.

Good luck to you!

 
Old 06-03-2009, 04:01 PM   #3
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Chele60 HB UserChele60 HB UserChele60 HB UserChele60 HB UserChele60 HB UserChele60 HB User
Re: Migrane help without triptans?

Oh my goodness, all the things you have gone through at such a young age! WOW! I have to admire some one like you!

I suffer from menstrual migraines, have since I was in my 30s (I'm 49 now), and with the onset of perimenipause, they have gotten worse. I think my doctor has tried everything! I did a lot of research on my own, mostly into natural, homeopathic treatments, and I found something very interesting. There is a connection between migraines and magnesium. Go figure. It seems that when women have their cycle, their magnesium levels drop and this can cause migraine headaches. I had read in other homeopathic and natural books that, as women age, they should increase the level of magnesium in their diet - between 400 and 800 mgs. I, too, take Topomax (100mg) and have a prescription for Relpax (triptan), but I have found that as long as I remember to take my 600 mg of magnesium a day I really don't need the Relpax. I am almost completely headache free, and what headache I do get is controlled with OTC pain meds.

Now, I can't guarantee the same for you. And with all the meds and health concerns you have, I would definitely check this out with a physician first. But doing the research is easy. You don't need to pay for advice or special diets or anything. If you search on migraines and magnesium, you will find all kinds of information, from reputable sources.

Sorry if I sound like I'm over zealous, but I suffered for so long and I feel like it was such a simple solution.

 
Old 06-15-2009, 11:15 AM   #4
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esther123 HB User
Re: Migrane help without triptans?

I have to tell you that I am now off of topamax. I am so happy about this. Magnesium is kinda good, better than nothing for sure but, what cured me was, I went to a bio-identical hormone doctor and my estrogen was very high. I am peri-menaposal just at the start and I started watching the things I was eating and drinking that would increase estrogens and stopped them and the doc gave me some pills to take called indole-3, to reduce my estrogens. I am migraine free and off of topamax. Just had to share.

 
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