I'm new here and I'm frustrated and need advice or just someone to listen.
I've had migraines in the past ever since 1997 when I had a head injury that caused a concussion. After I healed from the concussion, I only had migraines once or twice a year with the usual sensitivity to light and sound, blurred vision, and dizziness.
I've had auras twice, not very often. Well, last August, a migraine attack happened, but it never stopped. Every day since August 26th, I have had moderate to severe headaches with dizziness, a couple of episodes of fainting, memory loss, blurred vision, and concentration problems. I have been hospitalized once. I have tried so many drugs for pain and none have worked. I have lost my job and mostly stay home and rarely have a day without pain. I went to several doctors. The current one is at Mayo Clinic. After an extensive battery of tests, my doctor's prognosis yesterday was he does not know how to explain why I have headaches everyday and why nothing is working. He chose to keep having me to take 4 25 mg of Topamax and 25 mg of Elavil everyday. I' m tired of medications that make me sleepy and make my memory problems worse. I don't know what to do. I feel like I am not my old self. I hate not being able to remember not being able to think clearly. I am tired of always being in pain. I already had chronic back and neck pain thanks to degenerative disc disease caused by a car accident. I also have painful muscle spasms in my back, feet, hip/thigh joint, and hands. My hands and feet curl up all the time.
The only new thing that I found out from the Mayo CLinic was that I am high risk for developing autoimmune diseases. Should I try again and find another doctor that can correctly diagnose me and help me? If so, where do I start? Could this be firbromyalgia? Thanks for listening.