It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Headaches & Migraines Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 05-12-2011, 12:34 PM   #1
Newbie
(female)
 
Join Date: May 2011
Location: Brantford, ON CA
Posts: 1
Dawniss HB User
Chronic Daily Headaches, changing patterns

I've been suffering from headaches since I was in elementary school, probably about grade 4 or 5 (maybe even earlier). I am 24 years old now. For many years I believed that everyone had headaches like I did. It wasn't until a few years ago that I realized that it was not normal. I had went through so many emotions when I believed that everyone suffered as I did. I thought that I was weak and couldn't handle it, while everyone else seemed to be handling the pain perfectly fine. I went through a lot of guilt, shame and I lost a lot of my self-worth. Since this revelation, I've been building myself back up. It's a daily struggle and I admit that sometimes I feel like throwing in the towel.
I feel like no one close to me truly understands what its like to feel this way. I know some people I know who are sick with disease or other illnesses, so they can somewhat relate to me. But at the same time they look at me as if they are thinking "you're not dying so stop complaining". To me I'm not complaining, I am curious and I believe I deserve answers. The quality of life caused by chronic daily headaches/migraines is very low, it is no way to live. I'm exhausted all of the time, doing simple daily tasks is extremely difficult and tiring, my social life is non-existent, and my weight is out of control. I have little-to-no energy, my sleep pattern is out of whack, and I'm so emotionally drained. Just when I think I find a cause for a headache, they change and then I'm back to square one. I can't pinpoint the triggers of my headaches, they are constant as in nearly every day I get one, but they are sporadic as to what causes them and what time of day they occur as well as the severity.
I have little hope in seeing a doctor or specialist, I don't want another prescription of harsh chemicals. I also don't want to be brushed off for the millionth time, or be bombarded with questions about my mental health. This is crazy, I'm frustrated and tired.... If i was depressed I would admit it, because then at least i would get help, but i am not depressed. I have a lust for life but I feel trapped in this sick body, like a prisoner who has been wrongfully accused.
If anyone knows what this is like, please let me know. I don't wish this on anyone but i also don't wish to be alone. So if you can relate I'd love to hear from you. I've had other symptoms but lately the most important symptom is frustration. I am beyond sick of living this way.

 
Sponsors Lightbulb
   
Old 05-13-2011, 01:50 PM   #2
Senior Veteran
(female)
 
Join Date: Aug 2005
Posts: 5,485
tUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB User
Re: Chronic Daily Headaches, changing patterns

Wow, it is so comforting to know that others are feeling this way too, although I wish none of us did! I was actually going to post on getting some advice on this as well. I constantly feel achy and so tired and just want to lay down and rest. I feel like I've wasted a lot of time from not feeling so great, and I often do lose joy for things I usually enjoy. I had been doing pretty well for a while and it's been more of a recent struggle. I am very fortunate that I found a doctor who is VERY helpful and has helped me improve so much without just covering up my symptoms with lots of medication. I am so thankful for this! I still have my bad days though and parts during the day when I still don't feel my best... it's a gradual process. I have a constant nagging fear of getting a migraine and I wish I could stop. I feel like I get obsessive about avoiding anything that might cause a migraine. They are just so debilitating that I've developed a fear for them! I'd rather go through my hernia surgery again over my migraines.

I heard a good way to describe one who suffers from headaches/migraines... it's more of a "silent" way of feeling bad without signs to others. Even my doctor said that just because you aren't noticeably injured to someone, it's usually assumed that you feel normal. I don't ask for sympathy, but I just hope for people to understand. Sure it might not be life threatening, but it greatly does affect your quality of life and can really take a toll on one, and could be a lifelong struggle. I recently had food poisoning and so many people commented that they were sorry at work, but it is no big deal to me since it's something that passes and then you feel better later!

I would love any ideas on how to keep a good positive attitude and stay cheerful. I make sure to keep up my faith and hope, and I think I have a pretty positive outlook on life, but that doesn't mean I'm always happy. Most of all, I don't want to slip into the kind of depression I went through in the past. I just want to be me and enjoy life!

Like you, I also really didn't want to just take a ton of medicine. My neurologist just ruled out anything life threatening and gave me medication. It also takes forever to get an appointment. I came across a headache & migraine institution and saw a doctor there twice a week for physical therapy! I had no idea something like that could help, but I had a cervical spine issue contributing to headaches and migraines. I don't expect to be 100% headache free, but I mainly wanted to decrease the frequency and intensity. So far I have noticed a big improvement. I've kept a very open mind to look into causes that I normally wouldn't expect. I know a person who got amazing results from acupuncture as well, and I'd definitely consider it if this doesn't work out. Even though my neck didn't bother me that much, even minor problems can cause a lot of head symptoms. Mine became worse with age, but the doctor said some of his patients are children, since it can happen at any time.

I've also wondered what the typical, pain-free person feels like. Is it a big difference or does everyone have a slight amount of discomfort all the time? My body aches all over quite often and I'm curious if most people are this way or not. I just hope those of us who get headaches and migraines can continue to improve a little at a time... and greatly improve our lives I'm glad there are so many great people on this board (although I'm sorry they are all struggling in one way or another) so we can support each other!

 
Old 05-14-2011, 12:16 AM   #3
Senior Member
(female)
 
Join Date: Sep 2010
Location: Virginia
Posts: 241
tinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB User
Re: Chronic Daily Headaches, changing patterns

Hi this is Tinkerbell45 and i read your letter about chronic daily headaches,etc.. I too suffer from MASSIVE migraines. I am 46 years old now and i have had to be treated for them as long as i remember actually since i was in about middle school. At that time the only thing that helped me was my mom loading me up going to the hospital going getting me knocked out with a shot of demerol and phenegran. As time when on i went to see a neroulogist and he did confirmed that yes i do suffer from migraines he said they could actually be considered cluster migraine. He tried me on ALL kinds of meds starting with Maxalt,Medrin,Imitrex Shots all of this stuff NEVER helped i ALWAYS ended back up in the ER getting knocked out with demerol and phenergran. FINALLY they found me a medicine called Stadol Nasal Spray it only takes ONE spuirt and it takes my headache away in about 10-15 minutes. It is a REALLY old drug and alot of drs haven't written it for years but trust me if they know how bad your headaches are they WILL write it for you but it does make you VERY drowsy!!!!

 
Old 05-14-2011, 01:04 PM   #4
Senior Veteran
(female)
 
Join Date: Aug 2005
Posts: 5,485
tUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB User
Re: Chronic Daily Headaches, changing patterns

Wow, thanks for sharing about those nasal spray! I am interested in possibly looking for a nasal spray for migraine treatment, because with all of the throwing up that occurs with migraines, it's hard to keep pills down long enough to get any benefit! I typically can take a pill later on when my stomach settles down, but that means having the migraine for a while before being able to improve. I also find that when pills do work for me, it still takes at least a couple of hours.

 
Old 05-15-2011, 12:00 AM   #5
Senior Member
(female)
 
Join Date: Sep 2010
Location: Virginia
Posts: 241
tinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB User
Re: Chronic Daily Headaches, changing patterns

You are more than welcome and i hope that you can get the nasal spray for your migraines. It IS a wonderful drug i don't know how i could make it through my life without it. Please feel free to write me back anytime. I am glad i was finally able to help someone because ALOT of people have helped me.

 
Old 05-16-2011, 12:37 PM   #6
Senior Veteran
(female)
 
Join Date: Aug 2005
Posts: 5,485
tUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB User
Re: Chronic Daily Headaches, changing patterns

My goal was to avoid missing work so much from migraines, so I'm not sure the spray would be good for when I'm not at home, but sometimes it's necessary to just take what you can to get rid of the pain, even if you are very drowsy! I'm glad that when you were younger, your mom helped take you to get relief! Out of all of my migraines, the absolute worst ones that come to mind were all when I was home by myself... I don't know why it has to end up that way with the worst when nobody is around haha, but I guess life isn't fair! Of course I can't function enough to make a phone call during a massive attack, so getting to a hospital wasn't an option. I remember trying to call my husband and that wasn't working. I've heard that some people have gotten very good relief from what the hospital gives! The medication I had through an IV for a migraine did not work at all for me. Unfortunately I don't remember what it was!

Last edited by tUrRrRa; 05-16-2011 at 12:40 PM.

 
The following user gives a hug of support to tUrRrRa:
tinkerbell45 (05-17-2011)
Old 05-17-2011, 09:54 AM   #7
Senior Member
(female)
 
Join Date: Dec 2010
Location: New England, US
Posts: 260
LessStress38 HB UserLessStress38 HB UserLessStress38 HB UserLessStress38 HB UserLessStress38 HB User
Re: Chronic Daily Headaches, changing patterns

Dawniss,
You are definitely not alone. Your primary care doctor should refer you to a neurologist who should help you get to the root of these headaches. Perhaps you have already wrote down some of your daily habits to find patterns as to how these come about?
For myself, I would just wake up everyday with a headache and it would last ALL day....get worse by 5pm and I would be in bed by 8pm. The only break I got was sleeping. So, I would take naps. After 4 days I went to the doctor. She sent me to the neurologist....it has been a long road...story for me. Starting actually in Sept. '10 and today I got a head ache! I have found out why I get them....it's just getting rid of them that's a process!
So, hang in there, keep posting!

 
Old 05-17-2011, 09:58 AM   #8
Senior Veteran
(female)
 
Join Date: Aug 2005
Posts: 5,485
tUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB UsertUrRrRa HB User
Re: Chronic Daily Headaches, changing patterns

Quote:
Originally Posted by stressless37 View Post
Dawniss,
You are definitely not alone. Your primary care doctor should refer you to a neurologist who should help you get to the root of these headaches. Perhaps you have already wrote down some of your daily habits to find patterns as to how these come about?
For myself, I would just wake up everyday with a headache and it would last ALL day....get worse by 5pm and I would be in bed by 8pm. The only break I got was sleeping. So, I would take naps. After 4 days I went to the doctor. She sent me to the neurologist....it has been a long road...story for me. Starting actually in Sept. '10 and today I got a head ache! I have found out why I get them....it's just getting rid of them that's a process!
So, hang in there, keep posting!
Wow, that sounds very similar to what I had going on not long ago! Those headaches would start off lighter and then turn into migraines by night. It was such a pain, literally, to have it happen every day and not be able to do anything in the evenings but lay in bed and not move. I hope yours go away very, very soon! Unfortunately my neurologist wasn't as helpful and just gave me prescriptions, but I found another doctor who helped me get to the root cause. It also takes me a while to get an appointment with my neurologist, where with the other doctor, they can squeeze me in on short notice and within several days of calling

 
Old 05-17-2011, 08:09 PM   #9
Senior Member
(female)
 
Join Date: Sep 2010
Location: Virginia
Posts: 241
tinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB Usertinkerbell45 HB User
Re: Chronic Daily Headaches, changing patterns

Thanks for your letter.I too wanted to keep from missing work but sometimes my headaches made the decision for me.I did want to tell you that when i did go to the hospital for my migraines they gave me shots,one of demerol and one one of phenegran.They didn't ever give me an iv until one night i had one SOO bad that's when they gave me the iv of stadol and THEN i told my primary care doctor about it and he let me know it was available in a nasal spray.It has been my BIG TIME SAVING GRACE. I do realize that i could not work on because of the sleep issue but i am currently disabled.I look forward to talking to you in the future.Until next time TAKE CARE!!!

 
Closed Thread

Tags
headache, migraines



Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



tingles (31), tUrRrRa (26), sjb (8), Paddy55 (6), grad1000 (5), 92261 (4), jonnstar (4), ladybud (4), jverive (4), AnnaMontana (3)

Site Wide Totals

teteri66 (1180), MSJayhawk (1004), Apollo123 (905), Titchou (848), janewhite1 (823), Gabriel (759), ladybud (754), midwest1 (669), sammy64 (668), BlueSkies14 (610)



All times are GMT -7. The time now is 04:00 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!