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Old 10-27-2011, 07:01 PM   #1
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Angry fed up with headaches

I'm new to this site, and I've seen numerous posts on headaches. Please forgive me if I'm starting a post listed elsewhere. I need to know I'm not alone in this.
I have had migraines/baromtric pressure headaches my whole life. My mom, gramma, aunt, sister, and now my sons all have the same type of headaches. I thought I wasn't alone until I tried treatments. Different things have worked for them, but I have yet to find relief. I have been to doctors, neurologists, mental therapists (it's "in" my head), eye specialists, rheumatologists... I have had over 15 different types of meds, from anti-depressants to epileptic meds. None have worked. I have been to a chiropractor, massage therapist, herbalist... I have had MRI's that showed all is fine-- no aneurisms, tumors, etc.

I get bad headaches when the weather changes (rain/snow on the way). When I check the barometer, I'm never wrong! My doctor told me flat out that she doesn't believe me because, according to her, the weather does NOT cause headaches. She says I'm looking for excuses to get narcotics. I"M NOT! Vicodin is the one thing that that still works (when I am able to get a prescription), so why would I abuse it once I do get a script??!

She has referred me to a pain clinic. It has been a month of waiting, and they are still collecting all my records. When that process is complete, then they will consider my application--there is no guarantee I will get an appointment. My doctor says she can't understand why I haven't gotten an appointment yet-- as if I'm holding up the process.
I'm tired of the constant headaches (pain, pressure) and lack of support or relief. Can anyone relate?? Any ideas or suggestions? I'm out of ideas, frustrated, and tired of all the pain
Thanks for listening.
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Old 10-28-2011, 07:04 PM   #2
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Re: fed up with headaches

So sorry to hear about the trouble you are going through Do you use insurance and do they require that your doctor refer you to this pain clinic? I know each insurance plan is different with how they handle things, but I know with mine, I do NOT need a referral and can go visit a place on my own. If this is a possibility for you, I wonder if any other places might be able to help you out sooner. I've heard of friends who visit pain management doctors, not only for headaches and migraines, but various types of pain. Once you are able to see one, maybe they will realize that you have tried so many things, and at this point, it's more about keeping things manageable rather than trying to completely cure them.

It's sad when the only things that helps us are things that not all doctors are willing to prescribe. Some doctors will prescribe medications that have the potential of being abused, but they will closely monitor them. I personally do not do well with Vicodin. I have plenty from surgeries I had, but it made me depressed and didn't necessarily make me feel that much better. As soon as I could stand it, I was taking over the counter pain medication after those surgeries. Maybe once you finally are able to see a pain clinic/pain management doctor, they will be willing to give you what works, but will give you limited amounts. Or you can talk to them about something that might work similar.

I can't believe your doctor told you that she doesn't believe in the headaches from the weather changes! Although I don't get them, I know very well that those kinds of headaches do exist and can be severe for some people. Again, I hope that the next doctor can help more with this and maybe find something that helps specifically for this type of headache. Have you tried taking any beta blockers or blood pressure type medications as a preventive? It sounds like you have tried so many things. I wonder if with your family members, they were not as sensitive to the barometric changes and that's why other medications worked better for them.

 
Old 10-30-2011, 08:39 PM   #3
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Re: fed up with headaches

tUrRrRa--Thank you for your reply! I do have insurance which is a blessing to be sure. I couldn't afford any of the visits or medications without it. I know many people don't have the option of insurance, so I'm glad I have it. I do need referrals for some of the places I go-- the pain clinic being one of them. I just found out on Friday that my doctor is telling me now to go to a different pain clinic which she didn't mention until now. Go figure. I'm not sure she is comfortable with any of this so she brushes it all off as non-existant or just not a problem to take seriously--just me looking for drugs. I spent 18 hours in bed this weekend from a migraine she said didn't exist

I have been on--and am still on--verapamil which is a blood pressure medication. They have tried 3 different dosage amounts and none seem to make a difference. Now they tell me to stay on it for my high blood pressure instead. I think the high BP is due to stress dealing with all this. I have also taken amatriptalyn which is an AD that is also used for pain, but it actually gave me more pain behind my eyes so I had to quit that. I am on Lexapro for anxiety so I can't take the imitrex as it can cause seratonin syndrome. Since I'm on the Lexapro, I'm considered more as a pyschiatric patient than a person who is also dealing with chronic headaches, so I'm dismissed as the drug-seeker. I understand the doctors' hesitancy to prescribe narcotics, but there has to be something that works for them and for me.
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Old 10-30-2011, 09:48 PM   #4
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Re: fed up with headaches

tUrRrRa-- thank you for your reply! I do have insurance which I am feeling very blessed to have. I don't need referrals for everything, but for the pain clinic I do need one. My doctor "forgot" to mention that there is a different pain clinic I can visit sooner, but didn't give me the contact info. I don't think she is comfortable with this situation (she is very new) and so she brushes me off claiming I'm only there to get my "fix" as she puts it. I do understand why doctors are hesitant to prescribe certain meds, but there has to be a time and place for them as well.

I am taking verapamil for my blood pressure. They tried 3 different dosages for the headaches and nothing seemed to work. Now they say they are prescribing it for my high BP, which I think is simply from the stress of dealing with headaches.

I have also tried amatriptalyne which is an older AD, but is used more for pain now. I've had to quit this one because it actually caused pain behind my eyes.

I'm on Lexapro for anxiety (and it helps tremendously) so I can't take the imitrex or other types of regular migraine meds. The mix of the two can cause a seratonin "overdose". Not a good thing. However, my doctor wants to take me off the Lexapro so I can take the imitrex. Not a move I want to take, but she doesn't want to discuss it. If I mention that I'm not comfortable going that route, she claims I'm avoiding any real means of helping myself. Time to find a different doctor, I believe!
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Old 10-31-2011, 09:46 PM   #5
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Re: fed up with headaches

I hope your doctor can give you the information soon! That's tricky when they seem a little hesitant like that.

Oh goodness.. when you mentioned the serotonin syndrome, my last doctor was telling me how rare it is and was going to have me go on Lexapro along with the migraine medication. Although it's very rare, it still worried me since it can be life-threatening. Since the Xanax had been working so well for me, I decided to just keep doing that. I did go on Wellbutrin just a few days ago, but more as an anti-depressant and not for anxiety. That's too bad that your doctor wants you to change medications even though you don't really want to. It's YOUR body and you know what has helped you! Unfortunately it seems like a lot of us on here don't find full success with migraine prescriptions anyway.

Although I haven't tried amitriptyline, I've been on nortriptyline, which is pretty similar. It gave me heart palpitations like crazy and prevented me from sleeping (a migraine trigger for me), so unfortunately didn't work out. I've heard mixed things about these older AD's since some people do great with them and others don't. I'm sorry that it gave you the pain behind your eyes!

Best of luck with finding a new doctor. At this point I think that would be the best bet. Hopefully someone new can get your referral to a pain clinic, and quickly! Maybe they might even have some other ideas of similar medications that may help you. I really like doctors who listen to what you say has worked and hasn't worked, because some just give you whatever THEY think is a good medication.

 
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