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Old 02-21-2012, 06:07 PM   #1
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Irritated nerve in right side of neck behind ear that causes migraines!!!

Hi all! I have had migraines for the past 12 years and they all start with a soreness deep on the right rear side of my neck (behind my ear area) that turns into pain and which then proceeds up the back of my head over my head behind my forehead and into a full blown migraine. I have been on many medications. I also found out a couple years ago that I have chronic high blood pressure, although they don't think that this is the reason for my neck/migraine issue. I have had xrays, ct scan and it shows degenerative disc disease with a slight bulging disc. Which means that a nerve is getting irritated (not really anything definite sets it off other than white wine and lots of stress) and then once it is sore, I am pretty much hooped. The only med in the past 12 years that I have found that helps to slow it down or stop it sometimes it toradol (anti-inflammatory) that they give me in the hospital when I go in and now have in pill form to help reduce the pain. I find these headaches so life stopping, I have four kids and work full time so I just do not have time for this kind of pain, it leaves me unable to function. Has anybody else ever had this pain and consequent migraines? I swear my doctors think I am a big baby and that it is just some "muscle" issue and should get physiotherapy...........whatever. Just touch the area and it is instantly worse. I was on Amitriptyline for over a year and couldn't stand it anymore, too many side effects. My doctor put me on propananol thinking this would help my high bp and the migraines but it hasn't helped the bp enough so I was put on Tiazac along with the propanalol (60 mgs) and my pharmacist almost had a stroke with me being on both of those because my heart rate could go down too low (even though my heart rate is too fast as it is). So I am now on the hunt for another med to replace the propanalol to help the nerve neck issue. Any suggestions for a med that doesn't cause too severe side effects, especially weight gain? Thanks!!!!

Leah

 
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Old 02-22-2012, 02:02 AM   #2
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Re: Irritated nerve in right side of neck behind ear that causes migraines!!!

Are you working with your Family doctor or a neurologist. If you aren't seeing a Nero. That would be my suggestion.

 
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Old 02-22-2012, 12:36 PM   #3
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Re: Irritated nerve in right side of neck behind ear that causes migraines!!!

Quote:
Originally Posted by maggietaz View Post
Are you working with your Family doctor or a neurologist. If you aren't seeing a Nero. That would be my suggestion.
Hi, I was referred to a neurologist two hours away, went down but he had a locum there, a young guy who told me although I had degenerative disc disease and a slight bulging disc, it was basically just a muscle problem and to do neck exercises!!!!!!!!! I couldn't frigging believe it, what a complete waste of time. I am seeing my gp next week and am going to ask him for a referall to a different doctor, a pain clinic, for the possibility into a nerve root block. It is frustrating.......I start to feel like nobody is taking me seriously but this impacts my life so much, it gets frustrating......

Leah

 
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Old 02-23-2012, 10:24 AM   #4
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Re: Irritated nerve in right side of neck behind ear that causes migraines!!!

My neurologist gave me verapamil ER 180 mg and then a month later 240 mg. It seems to have helped the throbbing in my neck and it is a blood pressure medicine. I don't know if it would help. I seem to have degenerative disks in my neck and bulging disks too. I get an epidural steroid shot four times a year in my lower back and I take Amerge or Imitrex for my migraines. I find if I sit too long at my desk that I get headaches and eye aches. Best wishes to you.

 
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Old 02-25-2012, 02:05 PM   #5
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Re: Irritated nerve in right side of neck behind ear that causes migraines!!!

Yes! I was going through this as well. It all started in spring of 2011 and every day I would start with that neck/base of skull aches and tightness that would spread up through my head and turn into a migraine as the day went on. I was lucky that I could just barely make it through the day and still work, but had to go straight to bed as soon as I got home to lay down and get the weight off my neck. I never had a neck MRI, so I can't be sure exactly what all is going on. I went to a spine specialist/headache institute (they believed many kinds of headaches to be a result of neck issues at this place) and went through frequent physical therapy. I feel that it did help some when I was going twice per week, but going that often for the long run is VERY unrealistic. I never got full relief and it started getting worse again after I decided to stop going back. I felt like as time went on, my visits were less helpful.

Anyway, today I still have that feeling in my neck. I haven't been as bad as I used to be because it doesn't result in a migraine unless I overdo it during the day and skip some of my new habits. I had to make a lot of recent lifestyle changes to deal with everything. I can no longer do tough workouts, have to lay down for a few minutes here and there throughout the day, really pay attention to my sitting posture at work, and I stretch and do my physical therapy exercises as well. I have found no medicine to be helpful for this. I find that if I'm tightening up other muscles because of the discomfort, taking a Xanax actually helps the most (no luck with muscle relaxers). Pain meds don't seem to help. Have you gone through any physical therapy? I was going to consider injections, but I realized I would have to keep getting them until I corrected what is causing them in the first place (which is hard to figure out). I am actually going to consider a chiropractor in the near future. I know people have mixed feelings about them, but something in my neck just feels "off." The risks are really no worse than trying other procedures, so I figure why not. I'm willing to try most things at this point, but not extremes like surgery since problems like this can often come back.

Like I mentioned, I'm not 100% sure what all is going on in there. My old physical therapist suspected a bulging disc, but I don't have any pain or numbness in my arms. I do get tingling on the right side of my neck. My ears ring loudly and sometimes my hearing goes in and out more than it ever did in the past. My neck "crunches" and just doesn't move smoothly. Upper shoulders/back gets bothered as well. I notice I have developed a lot of trigger points. Trigger point therapy (at home doing it myself) has been a little bit of help as well. It seems like it helps keep the symptoms not as severe, but again, no complete relief. Just wanted to share my experience so far! I wish I had a good answer of something that definitely helps, but it seems like this is very tricky to treat.

 
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Old 09-20-2012, 10:35 AM   #6
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Re: Irritated nerve in right side of neck behind ear that causes migraines!!!

I too have a huge issue like this. I go to my chiropractor for this. Its the only way I get relief! She cracks (or as they say, adjusts) my neck in just the right spot and by the next day I feel so much better. You may have to go a few time a week to get all the kinks worked out but you will not regret going to a chriopractor. I regret not going in soon enough. Waiting until its full blown was a huge mistake! Hope this helps.

 
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Old 09-26-2012, 12:14 PM   #7
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Re: Irritated nerve in right side of neck behind ear that causes migraines!!!

I have chronic pain from a damaged nerve, and have tried many medications. The one that has worked the best for me is my current medication, Cymbalta. I take 60mg once a day, and have significant relief from the very sharp pains I used to get. My side effects are very mild (mostly constipation, which I deal with by taking stool softeners with each meal.)

Other meds that have helped in the past include Lyrica and Keppra. Some people get relief from Neurontin, but it did nothing for me, even at high doses. I was also on amitriptyline, and it helped a bit, but the side effects were pretty bad.

Quote:
Originally Posted by crbrowniegirl View Post
Hi all! I have had migraines for the past 12 years and they all start with a soreness deep on the right rear side of my neck (behind my ear area) that turns into pain and which then proceeds up the back of my head over my head behind my forehead and into a full blown migraine. I have been on many medications. I also found out a couple years ago that I have chronic high blood pressure, although they don't think that this is the reason for my neck/migraine issue. I have had xrays, ct scan and it shows degenerative disc disease with a slight bulging disc. Which means that a nerve is getting irritated (not really anything definite sets it off other than white wine and lots of stress) and then once it is sore, I am pretty much hooped. The only med in the past 12 years that I have found that helps to slow it down or stop it sometimes it toradol (anti-inflammatory) that they give me in the hospital when I go in and now have in pill form to help reduce the pain. I find these headaches so life stopping, I have four kids and work full time so I just do not have time for this kind of pain, it leaves me unable to function. Has anybody else ever had this pain and consequent migraines? I swear my doctors think I am a big baby and that it is just some "muscle" issue and should get physiotherapy...........whatever. Just touch the area and it is instantly worse. I was on Amitriptyline for over a year and couldn't stand it anymore, too many side effects. My doctor put me on propananol thinking this would help my high bp and the migraines but it hasn't helped the bp enough so I was put on Tiazac along with the propanalol (60 mgs) and my pharmacist almost had a stroke with me being on both of those because my heart rate could go down too low (even though my heart rate is too fast as it is). So I am now on the hunt for another med to replace the propanalol to help the nerve neck issue. Any suggestions for a med that doesn't cause too severe side effects, especially weight gain? Thanks!!!!

Leah

 
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Old 09-30-2012, 08:52 AM   #8
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Re: Irritated nerve in right side of neck behind ear that causes migraines!!!

I was so bummed out when the chiropractor didn't help me, but I highly recommend giving it a try. I might consider seeing a different one to just see if a different technique might work better for me. I went twice a week for about a month at the one I chose to see. They also recommended I get a TMJ consultation and the TMJ specialist did think I had some issues with that and recommended over $10,000 in treatment. With the high cost and the fact that the tests they did are not 100% accurate (it's still kind of guess work), I'd like to try other things first.

I too used Cymbalta but had a horrible experience with it. I didn't get any kind of benefit and got into a car accident because of how disoriented it made me. Thankfully it was not a bad one! I wasn't myself on that medication and had a difficult time getting off of it. A friend of mine was recently going through the withdrawal symptoms for about a month or so. I felt more depressed on it and just didn't feel myself at all, and no improvement. I am glad to hear that it really helps other people though! It's all trial and error and finding what works for you

 
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