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Old 09-13-2012, 06:26 AM   #1
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LucyBee210 HB UserLucyBee210 HB User
CLUSTER HEADACHES... omg

I am a sufferer or episodic Cluster Headaches. I usually get them around the end of the year and they normally last 6 to 8 weeks. How some people live with these hadaches year round have my sympathy. I think I've tried every pill out there for relief when a headache hits but my last episode had me taking Prednisone (40 mg) and when it was time to start weaning off the headaches came back in full force at 30 or 20 mg. I tried Verapmil and Sumatriptan but that RX is so restricted (8 pills every 30 days) and expensive the Prednisone is inexpensive and effective.. Of course there are terrible side effects but well worth it when you think what pain is involved with a Cluster Headache. Just thought this bit of info would help...

 
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Old 09-15-2012, 01:34 PM   #2
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Re: CLUSTER HEADACHES ... omg

Hello LucyBee210;
I've been a episodic sufferer for several years. About 20 years ago I had a period of multiple attacks every day that lasted for 19 months, and was thus adjudged chronic.After that stoppped, I went almost three years without another cluster. In a similar fashion, I just broke a two year period with no clusters, when the one I am experiencing now began about two weeks ago. Within the cluster cycle I typically get two attacks per day. Te first occurs right after lunch aroud 2 pm, then another strikes whie I am asleep, around 2am. The timing is similar to what other experience so it fits a know pattern. Occasionally I will be awakened with an attack even after the 2 am attack but that isn't as regular as the "two attacks at two" my name for this startling condition. You mentioned prednisilone and Sumatriptan in the same sentence, and then mention restrictions. Prednisone (or prednisilone) is not an exppensive drug and in my experience it was always subscribed to be taken with Verapamil. I would urge you to speak to your doctor about the timing of taking both meds. However, the one suggestion that I want to bring to your attention is oxygen. Pure Oxygen breathed at a flow rate of 15 lpm works very well for me when I can catch the headache before it ramps up the full weepy eye, runny nose, intense orbital pain behind my right eye. If I am lucky to get to the oxygen early I typically abort the attack in 10 - 12 minutes. I hope you find all the solutions you need to get at least some control back. Best

 
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Old 09-15-2012, 03:29 PM   #3
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Re: CLUSTER HEADACHES ... omg

thanks for your post. Just thinking about those headaches gives me nightmares but something we have to face when they strike. As for the oxygen it is impossible to get since my insurance absolutely refuses to pay for it and to pay for it myself and the amount I need would exceed $500 a month .. an amount I cannot afford. As stated in my post, the prednisone worked for me but in high dosage with side effects. I am hoping and praying I do not have to think about this again for a long time ... thanks again and best of luck to you.

 
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