It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Headaches & Migraines Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 09-18-2012, 08:44 AM   #1
Junior Member
(male)
 
Join Date: Oct 2009
Location: greenville, sc
Posts: 40
not4sakn HB User
Daily persistent headache/pressure and neck pain

Since April of 2008 I have been dealing with undiagnosed daily head pressure, neck pain, brain fog, intermittent facial tingling, along with other symptoms as well. It's as if I'm hungover while being sober. All these symptoms followed a horrible flu I fought for about a month before it finally cleared up. Within a month or two of the flu ending the brain fog and spacey feeling set it. It was downhill from there.

In the past 4 years I have seen 4 neurologists, neurosurgeons, chiropractors, tmj specialist, had MRI's, CT Scans, MRA's, biopsy of my intestines to test for celiacs disease, and a whole slew of lab tests.

The only issues the doctors have found in 4 years is 2 herniated disc in my neck. Based on the location the neurologist says it would cause left arm tingling or pain but it wouldn't radiate up into my head creating these nonstop headaches. He says theres a 60-70% chance the discs are causing neck pain but he wouldn't recommend surgery at my age for such a small chance of improvement. He honestly doesn't think the headaches/pressure are a result of the disc but perhaps another underlying issue yet to be diagnosed.

He's wanting to send me to another neurologist to have a lumbar puncture. He believes I couldve had a viral infection associated with the flu that could have contributed to this illness.

My question is now that it's four years later would a lumbar puncture be worth it? If there is an infection still in my body would the damage be permanent at this point?

 
Reply With Quote
The following user gives a hug of support to not4sakn:
xSky (09-18-2012)
Sponsors Lightbulb
   
Old 09-26-2012, 01:23 PM   #2
Senior Member
(male)
 
Join Date: Sep 2010
Location: Normal, IL, USA
Posts: 164
jverive HB Userjverive HB Userjverive HB Userjverive HB Userjverive HB Userjverive HB Userjverive HB User
Re: Daily persistent headache/pressure and neck pain

It is possible that your flu had an accompanying virus that is responsible for your symptoms, or you may have had a condition (like Lyme disease) that mimicked the flu and left you with a long-standing infection. A lumbar puncture may help rule out these possibilities.

As to the herniated discs in your neck, what is their location? Do you know what caused the herniation? If it was a head/neck injury, other discs may have been affected leading to nerve trauma, even though it may not show up on MRIs or other imaging studies.

A pain doctor may be able to help if you don't get anywhere with the neurologists.

Quote:
Originally Posted by not4sakn View Post
Since April of 2008 I have been dealing with undiagnosed daily head pressure, neck pain, brain fog, intermittent facial tingling, along with other symptoms as well. It's as if I'm hungover while being sober. All these symptoms followed a horrible flu I fought for about a month before it finally cleared up. Within a month or two of the flu ending the brain fog and spacey feeling set it. It was downhill from there.

In the past 4 years I have seen 4 neurologists, neurosurgeons, chiropractors, tmj specialist, had MRI's, CT Scans, MRA's, biopsy of my intestines to test for celiacs disease, and a whole slew of lab tests.

The only issues the doctors have found in 4 years is 2 herniated disc in my neck. Based on the location the neurologist says it would cause left arm tingling or pain but it wouldn't radiate up into my head creating these nonstop headaches. He says theres a 60-70% chance the discs are causing neck pain but he wouldn't recommend surgery at my age for such a small chance of improvement. He honestly doesn't think the headaches/pressure are a result of the disc but perhaps another underlying issue yet to be diagnosed.

He's wanting to send me to another neurologist to have a lumbar puncture. He believes I couldve had a viral infection associated with the flu that could have contributed to this illness.

My question is now that it's four years later would a lumbar puncture be worth it? If there is an infection still in my body would the damage be permanent at this point?

 
Reply With Quote
Old 02-02-2013, 05:22 AM   #3
Newbie
(female)
 
Join Date: Feb 2013
Location: Bloomfield, MO
Posts: 3
mystellic HB User
Re: Daily persistent headache/pressure and neck pain

Hello. I have the same problem you have. Chronic neck pain that radiates up the back of my head, down into my face and in my ears. I've been diagnosed with TMJ w/ myofascial pain, fibromyalgia, arthritis and herniated discs in my neck(C5&6) and a slightly pinched nerve on the left side of my neck. I have seen neurologists, rheumatologists, neurosurgeons, and a physiatrist. I'm also going to a pain clinic and they have done injections that made me worse. I can't find a doctor to help me and I am in constant chronic pain. I was prescribed Percocet 10/650 last month and it doesn't even take the edge off this pain. Also take Lyrica, Zanaflex and Celebrex. Can anyone offer any advice on what I should do? I would so much appreciate it...

 
Reply With Quote
Old 02-02-2013, 08:16 AM   #4
Senior Member
(male)
 
Join Date: Sep 2010
Location: Normal, IL, USA
Posts: 164
jverive HB Userjverive HB Userjverive HB Userjverive HB Userjverive HB Userjverive HB Userjverive HB User
Re: Daily persistent headache/pressure and neck pain

Have you tried Cymbalta or Tegretol? Both are fairly commonly used for nerve pain. Neurontin is another possibility.

 
Reply With Quote
Old 08-02-2013, 11:10 AM   #5
Newbie
(female)
 
Join Date: Aug 2013
Posts: 1
kbg20 HB User
Re: Daily persistent headache/pressure and neck pain

I am going thru the same thing for about 4 years as well. Chronic head pressure pain that starts at the bottom of my head and goes up. Neck pain, sometimes I can't even move my neck because its so stiff. Facial pressure. Ears feel clogged all the time, constantly trying to pop them. I too have two bulging discs in my c5-6 and c4. I really think this has a lot to do with all this. I went to my ENT and they put a telescope up my nose and went down my throat and said the back of my tongue is swollen. He put me on antibiotics and I have CT scan of neck/throat today. I don't know whatever this is has to do with all the pain I've been going thru for so long. Just praying it's not cancer or something like that. If anybody else has had anything like this please let me know.

 
Reply With Quote
Old 08-06-2013, 01:17 PM   #6
Newbie
(female)
 
Join Date: Aug 2013
Location: Oceanside
Posts: 8
EasyGoinGal HB User
Re: Daily persistent headache/pressure and neck pain

I can really relate. I am getting my first Botox injection in my neck on Friday.
I hope it helps. It was a real process getting my insurance to pay, but I finally got it approved with a $95 copay that I will try and get reimbursed by my secondary insurance.
Has anyone tried Botox yet?

 
Reply With Quote
Reply Reply




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 11:02 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!